Afraid it's going to get chronic before treatment can even begin
I have been dealing with some strange symptoms for about 5 years now. In 2010 I noticed extreme anxiety and depression. Now this may sound like not a big deal, but it was something where i knew something was wrong...i had really bad intrusive thoughts and inability to deal with stress, I felt like i could hardly handle life at that point. Also an enlarged thyroid with nodules, one of which grew substantially in a small amount of time. I had gone to an endo because i thought thyroid disorder was the culprit to my symptoms. They tested all the thyroid hormones and antibodies and everything came back normal. Other symptoms I had were fatigue, change in hair texture, and just an overall unhealthy look. In three months I gained 20 lbs for no reason. I have been thin all my life and I went from 130 to 150 lbs in 3 months. Then i gained another 10 lbs. I had also gotten estrogen, progesterone, testosterone and 24 hr cortisol test done. everything was normal.This was in 2014.
Anyway i went to a rheumtologist after the endo because I thought maybe it was lupus or something autoimmune. They tested me for everything like celiacs, r.a., lupus, lymes, sjorgrens, inflammation, etc. My dr. called me and said i have inflammation but she didnt know where it was coming from.
She said to wait another 2 months and to have it tested again. this was done and the inflammation was still there. She said wait and see her again in 6 months...it sounded ridiculous so I decided to go to another dr. Well, I alwsys get my bloodwork from the lab and i was looking over it and i noticed that there was a flag under the IGG lymes 23 band. My dr. never even told me this. If it wasn't for me requesting my own bloodwork from the lab, I would never have pursued looking into having lymes. Anyway, I looked into lyme literate drs and found one near me. I saw her in August and she ordered a lot of tests, some from Labcorp, some from Igenex, some from Spectracell and another lab i forgot th name..I recieved the results from Labcorp and the test she used is the remission test: HNK1 CD57 and it came out LOW! i think its been lymes all this time and I am just finding out... I didn't get the results from the ohter labs yet because they take a while.. btw the first lymes test from lab corp was the western blot...
What I am worried about is, after waiting five years could it now be chronic?? i'm worried about not getting the treatment in tiime...i'm still not diagnosed. I hae to wait what the dr. says and I see her in mid Oct
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