It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board

  • Muscle twitching ... lingering Lyme?

  • Post New Thread   Reply Reply
    Thread Tools Search this Thread
    Old 10-06-2018, 05:24 AM   #1
    BabsB8
    Junior Member
    (female)
     
    Join Date: Nov 2010
    Location: USA
    Posts: 46
    BabsB8 HB User
    Muscle twitching ... lingering Lyme?

    Lyme is literally getting on my nerves!

    First...Cliff notes to my Lyme story:
    December 2013 sinus infection plus pink eye turned into full blown dry eye syndrome. Used OTC drops per eye dr until my OBGYN of all people started me on Restasis. March 2014.. fatigue set in - felt like I had the flu all the time. April 1 - bright red streaky rash appeared on forearms and my chest look sunburned although I didn’t have enough sun exposure to explain this. Rash became violent and spread to my face and shawl area while at the same time my leg muscles became so painful and weak I could hardly walk. Muscle weakness spread to arms and jaw. I felt breathless and fatigue was unbearable that even taking a shower was a major chore. Family dr was convinced I either had Lyme or Dermatomyositis. He immediately treated me with 60mg prednisone for the scary rash and Doxycycline in case of Lyme. Lyme blood test came back “equivocal” or borderline. Continued Doxy for 4 weeks. Had every test imaginable under the sun by rehumy, neurologist and dermatologist...to rule out dermatomyositis...skin biopsy looked like DM so started Plaquenil. Rash and muscle symptoms began to improve by June. By July Rheumy wanted muscle biopsy to confirm DM but I was getting better so I said no and fired her. She should have done that 1st thing in April when I was at my worst. Weaned myself off prednisone and stopped plaquenil = major hairloss...but it grew back! Stopped Restasis when I used prednisone and dry eye syndrome has never returned! Saw a homeopathic dr in July who confirmed Lyme (I know this is not LLMD)...he gave me remedies for Lyme. I continued to improve. By April 2015 the next year I was at Disney World and buying a new house and remodeling. But symptoms remain and I believe it is lingering Lyme...

    Since 2014 I have experienced:
    Currently suffer from something similar to lichen sclerosis, but not severe and no itching
    GERD
    Rectal bleeding
    Ice pick headaches lasting for weeks
    Electrical nerve sensation in legs and face
    Random sensation of one foot getting hot (but wasn’t hot to touch)
    Eyelid twitching for several months
    Random muscle twitches everyday...today it is my right calf that has been twitching almost constantly for an hour. Sometimes my left fingers will twitch and they move on their own.
    Muscle weakness and tremors like I’ve maxed out...probably due to severe muscle damage when I had DM symptoms...I would like to get back to gym to gradually strengthen my muscle because I have the maxed out feeling when I try to do activities I love like gardening and hiking....walking is fine but climbing and frequent bending/squatting is what gets me.
    I also have reactions to every single class of antibiotic available...I always breakout in a greasy pimply rash on my face and neck 🤷🏼‍♀️ Dr’s are reluctant to Rx them to me If I need one for occasional strep or sinus infection.

    I think it’s interesting that Lyme has tried to disguise itself as 3 auto-immune conditions with me: Dermatomyositis, dry eye syndrome (Sjorgen’s), and lichen sclerosis. I think the LS will also go away but then it will be something else I’m sure.

    Anyway...I seem to have so much nerve/muscle involvement still. What do you all recommend as far as a food plan (foods to avoid), supplements, activities? I have been in denial that this is lingering Lyme. But I’m starting to get back to taking care of my health to overcome this. Lyme is literally getting on my nerves 🤨

    Last edited by BabsB8; 10-06-2018 at 05:30 AM.

     
    Reply With Quote
    Sponsors Lightbulb
       
    Reply Reply

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Does menopause cause muscle weakness & twitching? TJ1962 Menopause 3 07-22-2016 04:39 PM
    Muscle twitching, no diagnosis yet, 2 abnormal labs tomsar82 General Health 0 05-09-2016 09:40 AM
    Muscle twitching, soreness/weakness. I am terrified denis1301 Neurology 5 09-05-2014 02:55 PM
    stinging burn in muscle lyme symptom??? lightfoot500 Lyme Disease 10 06-23-2012 09:48 AM
    Muscle Twitching (all over body), Headache, Ear Pressure/Discomfort, Ear Ringing (Tin blackant5 Lyme Disease 8 06-04-2012 04:46 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 01:19 AM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!