It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lyme Disease Message Board

  • tips on taking doxycycline

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 10-07-2004, 07:19 AM   #1
    Bothrops
    Senior Veteran
     
    Bothrops's Avatar
     
    Join Date: Jul 2003
    Location: Greenville, SC, USA
    Posts: 577
    Bothrops HB User
    tips on taking doxycycline

    Can anyone tell me the best way to take doxy 100mg? What are the best times? Is there any thing I should be aware of and most of all does it work?

    I was not diagnosed with lymes but did test positive for chronic EBV and cytomegalovirus. My doc says it is chronic fatigue and wants me to take doxy 100mg for 3 to 6 months.

    Thanks

    Derek

     
    Sponsors Lightbulb
       
    Old 10-07-2004, 07:57 AM   #2
    ticker
    Senior Veteran
    (female)
     
    ticker's Avatar
     
    Join Date: Jan 2002
    Posts: 5,790
    ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
    Re: tips on taking doxycycline

    Hi Derek. Were you ever able to see a Lyme doctor? Are you asking if 100 mg of Doxy would work for Lyme? The recommended dose of Doxy for Lyme disease is 300-600 mg daily.

    Some tips when taking Doxy. Do not have any dairy or magnesium products two hours before or after the Doxy or it will not be absorbed properly. Avoid the sun. You can get a severe burn in minutes even when wearing sunscreen. Do not lay down for at least an hour after taking it or you can ulcerate your esophagus. This is very painful! If it makes you nauseous, eat something substantial and non-dairy when taking it.

     
    Old 11-06-2004, 03:36 PM   #3
    mammachase
    Newbie
     
    mammachase's Avatar
     
    Join Date: Nov 2004
    Posts: 2
    mammachase HB User
    Re: tips on taking doxycycline

    I take 100 mg 2x's a day, morning right after my breakfast and night right after I eat dinner and so far no reactions, been on doxy for 2 months, added it to my cocktail of biaxin & plaquenil.

     
    Old 11-06-2004, 08:58 PM   #4
    ncgirl88
    Senior Veteran
    (female)
     
    Join Date: Aug 2004
    Posts: 1,456
    ncgirl88 HB User
    Re: tips on taking doxycycline

    Hi Bothrops -

    I would urge you to find a lyme literate doctor in your area...Ticker here on the board can suggest someone that is good and hopefully close to you in proximity. I was diagnosed with EBV but still pursued Lyme testing. After going to a specialist I found I had Lyme, Babesiosis, and Ehrlichiosis. These are tick borne infections...I can't imagine what would have happened if I had stopped at the first diagnosis and did not get proper treatment.

    I find it interesting that your doctor prescribed doxy to you in that most doctors say that nothing can treat EBV and from what I read on CMV (which isn't much) that only antivirals or strong HIV medications can keept this virus at bay. I get the suspicion that your doctor may be suspecting lyme and is not coming out and saying it...I could be wrong...but it is curious about the choice and duration he/she chose for doxy.

    I know it can be expensive to get tested but I bit the bullet and went through IgeneX in CA. I had three false negative tests through LabCorp and Quest. Finally the last test with the specialist was run through IgeneX standards and the lyme and tick borne coinfections were found to be present. Because the Babesiosis is a malaria like protozoan, antibiotics will not touch it. It is so critical to get tested by a specialist using a specialty lab.

    I wish you good luck and healthier days ahead.

    -ncgirl88

     
    Old 11-07-2004, 06:29 AM   #5
    brennd8
    Inactive
    (female)
     
    Join Date: Nov 2004
    Location: Michigan
    Posts: 102
    brennd8 HB User
    Re: tips on taking doxycycline

    ncgirl88
    what do you mean antibiotics won't touch your thing that is wrong with you? What are you doing then to help ? I suspect that I have Lymes but have been to only idiotic drs so far.
    Brennd8

     
    Old 11-07-2004, 10:30 AM   #6
    Komondor
    Inactive
     
    Join Date: Jan 2004
    Location: Charlotte Hall, MD
    Posts: 341
    Komondor HB User
    Re: tips on taking doxycycline

    Hi brennd8,
    NCgirl is talking about Babesiosis... Babesia must be treated with antimalarial drugs. If you suspect lyme or other tick borne diseases please see a lyme literate medical doctor.

    Derek,
    Please see an LLMD asap. You have received wonderful advice from the others so listen to what they are telling you and research, research, research. Many of us test negative through labs like Quest, Labcorp... which are labs that do not specialize in testing for tick borne diseases. I highly recommend you have your blood sent to Igenex in Palo Alto California. This is the only lab that my doctor will use.

    Here is a site that you will find interesting [url]www.fda.gov/cdrh/lyme.html[/url] which was issued in 1997. Just passing along for info so please do not contact them for doctor referrals. Ticker can give you the name of a reputable LLMD.

    Last edited by Komondor; 11-07-2004 at 10:34 AM.

     
    Old 11-07-2004, 11:45 AM   #7
    brennd8
    Inactive
    (female)
     
    Join Date: Nov 2004
    Location: Michigan
    Posts: 102
    brennd8 HB User
    Re: tips on taking doxycycline

    Komondor
    Thank you
    this my first time here, and I have an appt with a lyme dr in my area on nov 17. i am counting down the days. i have been sick for 1 1/2 yrs with no clue what direction to go and everyone at this sight has been more helpful than any doctor or articles that i have read . thank you all so much.

     
    Old 11-07-2004, 02:15 PM   #8
    ncgirl88
    Senior Veteran
    (female)
     
    Join Date: Aug 2004
    Posts: 1,456
    ncgirl88 HB User
    Re: tips on taking doxycycline

    brennd8 -

    This board is made up of incredible people...your sentiments are mine too! I am so sorry you have been sick for so long without definitive answers. Please keep us posted after your appointment...Nov. 17th will be here soon...hang in there. I have a strong feeling you are on your way to better days

    If you don't mind me asking do you live in an area that has been regarded as endemic to lyme (not that it matters because it is everywhere) and what month did you first start having symptoms? Just curious....

    All my best,
    ncgirl88

     
    Old 11-08-2004, 06:55 AM   #9
    ticker
    Senior Veteran
    (female)
     
    ticker's Avatar
     
    Join Date: Jan 2002
    Posts: 5,790
    ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
    Re: tips on taking doxycycline

    Hi mammachase, welcome to the board!

    You know about not taking the Doxy within two hours of any dairy , magnesium, or iron products? Have you been tested for all the co-infections that ticks can transmit?

     
    Old 11-08-2004, 06:59 AM   #10
    ticker
    Senior Veteran
    (female)
     
    ticker's Avatar
     
    Join Date: Jan 2002
    Posts: 5,790
    ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
    Re: tips on taking doxycycline

    Hi brennd8, welcome to the board

    Has the doctor you will see been recommended by a Lyme patient? Make sure you are tested for all of the co-infections that ticks can transmit--Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplamsa. Many people who have Lyme are co-infected.

    Good luck at your appointment! Let us know how it goes.

     
    Old 11-09-2004, 07:22 AM   #11
    Bothrops
    Senior Veteran
     
    Bothrops's Avatar
     
    Join Date: Jul 2003
    Location: Greenville, SC, USA
    Posts: 577
    Bothrops HB User
    Re: tips on taking doxycycline

    Hey everyone, thanks for all the replies.

    I know I should see a specialist but what kind. I have a feeling if I see a LLD I will have lymes. If I see a CFS specialist I will have CFS. If I see a inner ear specialist I will have MAV or some sort of inner ear problem. I have strong symptoms from all. I have tested neg 2 times for lyme. I have tested positive to CMV, Chronic EBV my ANA and hemoglobin are high. I have high colesterol. I have always had problems with stress, anxiety and depression. One leads to another.

    I do not know why they have put me on doxy or what there thinking is but I am willing to try it. Another reason why I have not tried an LLMD is because it would be very hard for me to make the 150 mile trip to Huntersville NC with my kids while my wife is at work. I am running out of visits that I can make in a year on medicaid. I think I have one more.

    Another reason is the way my problems all started abruptly after getting sick back to back times with flu-like symptoms. Is that normal with lymes. Maybe so but my joint pain I have had for 10+ years. I am a prime canidate for lymes but I have my doubts. Here latly I have had my doubts about everything.

     
    Old 11-09-2004, 08:00 AM   #12
    ncgirl88
    Senior Veteran
    (female)
     
    Join Date: Aug 2004
    Posts: 1,456
    ncgirl88 HB User
    Re: tips on taking doxycycline

    Hi Bothrops -

    I know that feeling of uncertainty well. I had three tests for lyme disease, one of which was done by a John's Hopkins infectious disease doctor...this lab work was also for coinfections. They all came back negative. After returning from Maryland I brought the test results to my homeopath who tested me for Epstein Barr Virus and said it was positive. Something just didn't feel right though...I had never had Mono...not that you have to have mono to later develop reactivated EBV but I have always been so healthy except for the occassional migraine. When all of my symptoms had started it was following the worst 2 week cold I had ever had in addition to the worst swollen glands I had ever had. My husband didn't get this cold.

    My homeopath looked at me and said the John's Hopkins doctor tested you for everything including the germs between rabbit's toes...it was his way of saying you need to just sit with the EBV diagnosis and accept it. At this point I already had my appointment with Dr. Jemsek's clinic which is 2 1/2 hours from me. I felt like I was really shooting in the dark at this point. I had all of these tests saying I was negative, all of these doctors saying the same thing...I was really questioning my sanity at this point but despite all of it I was waking up every day and getting sicker by the day. It was always something new...it was horrible.

    Two things kept coming up for me...I couldn't deny that I had become sick in May (the start of tick season) and the fact that the John's Hopkins doctor gave me a three month script for doxycycline despite the fact my bloodwork had come back negative. He had looked me in the eye and said when you get back home to N.C. do not give up trying to find a diagnosis. He wrote me a doctor's note for the rowing camp I had been scheduled to go to but couldn't and the letter said her strongly believed I was suffering from Ehrlichiosis....so I continued on my way to Dr. Jemseks.

    It took a month for the results of the blood that Dr. J's clinic had taken to come back. I started having heart palpitations more often and my hair started falling out...I was convinced it was a thyroid issue. It just couldn't be lyme...I had been tested 3 times, I had seen over 15+ doctors...many who denied lyme could be the issue.

    I did research into Chronic Fatigue Syndrome and the fact that many CFS patients had bad bacterial overgrowth in their small instestine. I had a colonoscopy and endoscopy but no breath tests for bacterial overgrowth so I requested this test. Guess what? Bacterial overgrowth was detected so I went to my integrative doctor who wanted to put me on an antibiotic...I had seen this doctor on the 6 o'clock news after he accompanied a veterinarian who had lyme disease and took a year to be diagnosed who did a segment on the news to awaken awareness....anyway this doctor is very good and he said before I put you on this antibiotic I really want to know what Dr. J's clinic has to say about your bloodwork...I wasn't scheduled for followup for another 2 weeks...so this Dr. called down to Huntersville and I found out I was positive for Babesiosis and Lyme...I would later find out at Dr. Js that Ehrlichiosis is in the mix too.

    I cannot tell you how emotional that next two hours was. I had not been barking up the wrong tree, I wasn't losing my mind (which both I was questioning and other's in my life were questioning), but now how do I live with this, the implications of having these illnesses were overwhelming to me...it was quite a day.

    This is a long post...but I wanted you to realize that questioning the diagnosis has been part of the process for me too. Even the night before the appointment with Dr. Js I was getting paranoid about the lab results...were they really for real? Now that I am being treated and feeling less heart palpitations and I am starting to remember my dreams again when I sleep I realize this diagnosis is for real.

    I wish you luck...If I were you I would find a way to get down to Dr. Js. They do accept a lot of insurance plans...He and his staff have very difficult jobs...they deal with very sick people. Believe me I can size up a doctor in about two seconds now - I can see through their motivations very easily...Dr. J and his staff are here to help people and get them well. They are dealing with some of the most difficult cases you can imagine...they are truly making a difference. They will not diagnose you with Lyme disease unless you have it. There are a lot easier ways for a doctor to make a living...Dr. J and staff are in it for principle and to make a difference in this world.

    Take care,
    ncgirl88

     
    Old 11-09-2004, 08:44 AM   #13
    dancergirl587
    Veteran
     
    dancergirl587's Avatar
     
    Join Date: Mar 2004
    Location: South Carolina
    Posts: 313
    dancergirl587 HB User
    Re: tips on taking doxycycline

    I second what NCgirl88 said, I'v been through so many stages in me illness. I'v been angry that docs didn't mention LD to me 9 years ago when I was bit, Iv been and still do get depressed, When alll the docs are trying to put me on antidepressants and/or stimulants, I have even doubted my sanity and that I really have LD. All the info online and the wonderful people on this board have kept me going, kept me searching for the truth. And I really hope you can get up to Dr. J 's clinic. I have an appointment with him in Jan. And I never thought I would be this excited about a docter's visit! Goodluck and Godbless!!!

     
    Old 11-11-2004, 06:00 AM   #14
    Bothrops
    Senior Veteran
     
    Bothrops's Avatar
     
    Join Date: Jul 2003
    Location: Greenville, SC, USA
    Posts: 577
    Bothrops HB User
    Re: tips on taking doxycycline

    Quote:
    Originally Posted by ncgirl88
    Hi Bothrops -

    I know that feeling of uncertainty well. I had three tests for lyme disease, one of which was done by a John's Hopkins infectious disease doctor...this lab work was also for coinfections. They all came back negative. After returning from Maryland I brought the test results to my homeopath who tested me for Epstein Barr Virus and said it was positive. Something just didn't feel right though...I had never had Mono...not that you have to have mono to later develop reactivated EBV but I have always been so healthy except for the occassional migraine. When all of my symptoms had started it was following the worst 2 week cold I had ever had in addition to the worst swollen glands I had ever had. My husband didn't get this cold.

    My homeopath looked at me and said the John's Hopkins doctor tested you for everything including the germs between rabbit's toes...it was his way of saying you need to just sit with the EBV diagnosis and accept it. At this point I already had my appointment with Dr. Jemsek's clinic which is 2 1/2 hours from me. I felt like I was really shooting in the dark at this point. I had all of these tests saying I was negative, all of these doctors saying the same thing...I was really questioning my sanity at this point but despite all of it I was waking up every day and getting sicker by the day. It was always something new...it was horrible.

    Two things kept coming up for me...I couldn't deny that I had become sick in May (the start of tick season) and the fact that the John's Hopkins doctor gave me a three month script for doxycycline despite the fact my bloodwork had come back negative. He had looked me in the eye and said when you get back home to N.C. do not give up trying to find a diagnosis. He wrote me a doctor's note for the rowing camp I had been scheduled to go to but couldn't and the letter said her strongly believed I was suffering from Ehrlichiosis....so I continued on my way to Dr. Jemseks.

    It took a month for the results of the blood that Dr. J's clinic had taken to come back. I started having heart palpitations more often and my hair started falling out...I was convinced it was a thyroid issue. It just couldn't be lyme...I had been tested 3 times, I had seen over 15+ doctors...many who denied lyme could be the issue.

    I did research into Chronic Fatigue Syndrome and the fact that many CFS patients had bad bacterial overgrowth in their small instestine. I had a colonoscopy and endoscopy but no breath tests for bacterial overgrowth so I requested this test. Guess what? Bacterial overgrowth was detected so I went to my integrative doctor who wanted to put me on an antibiotic...I had seen this doctor on the 6 o'clock news after he accompanied a veterinarian who had lyme disease and took a year to be diagnosed who did a segment on the news to awaken awareness....anyway this doctor is very good and he said before I put you on this antibiotic I really want to know what Dr. J's clinic has to say about your bloodwork...I wasn't scheduled for followup for another 2 weeks...so this Dr. called down to Huntersville and I found out I was positive for Babesiosis and Lyme...I would later find out at Dr. Js that Ehrlichiosis is in the mix too.

    I cannot tell you how emotional that next two hours was. I had not been barking up the wrong tree, I wasn't losing my mind (which both I was questioning and other's in my life were questioning), but now how do I live with this, the implications of having these illnesses were overwhelming to me...it was quite a day.

    This is a long post...but I wanted you to realize that questioning the diagnosis has been part of the process for me too. Even the night before the appointment with Dr. Js I was getting paranoid about the lab results...were they really for real? Now that I am being treated and feeling less heart palpitations and I am starting to remember my dreams again when I sleep I realize this diagnosis is for real.

    I wish you luck...If I were you I would find a way to get down to Dr. Js. They do accept a lot of insurance plans...He and his staff have very difficult jobs...they deal with very sick people. Believe me I can size up a doctor in about two seconds now - I can see through their motivations very easily...Dr. J and his staff are here to help people and get them well. They are dealing with some of the most difficult cases you can imagine...they are truly making a difference. They will not diagnose you with Lyme disease unless you have it. There are a lot easier ways for a doctor to make a living...Dr. J and staff are in it for principle and to make a difference in this world.

    Take care,
    ncgirl88
    Hey ncgirl,
    I called my GP today to find out exactly what they are treating me for and she said CFS. I have not heard of using doxy to treat CFS, I guess this is a new idea. She went on to say that it has worked on 70 percent of patients. I have been taking it a little over a month without any differance in symptoms. She has made me an appt. to see this ID Dr.

    How long did it take your symptoms to ease up or disappear after starting doxy? What all meds did Dr. J put you on?

    Thank You

    Derek

     
    Old 11-11-2004, 06:41 AM   #15
    ncgirl88
    Senior Veteran
    (female)
     
    Join Date: Aug 2004
    Posts: 1,456
    ncgirl88 HB User
    Re: tips on taking doxycycline

    Derek -

    I hope that doctor starts to question why doxy is helping his CFS patients...either acne is causing their CFS or could it by lyme and ehrlichiosis?!? I am sorry, I have become very jaded in the last 6 months. This doctor sounds like he is running his own experiment on people which in some ways is good that he is open minded but I wonder what he is thinking? I bet he suspects lyme disease...what else would doxy treat?

    The doxy did not help me...it made me much worse because I was herxing at the time. This was back in August when I was still searching for a diagnosis and a veterinarian looked at me and said I think you have lyme disease. He gave me 2 weeks worth of doxy. Well I took it and on day five after uping my dose from 200mg a day to 300mg a day because I heard 300-500mg was therapeautic I herxed. I knew nothing about herxing and was scared out of my wits. I thought I was having a heart attack, I couldn't think straight, I couldn't drive...I was stuck at my Mom's house in MD when I was supposed to be in MA at a friend's wedding...anyway I took it for 6 days and then stopped because I still didn't have an official diagnosis. I skipped a day then tried to go back on it but I was still herxing so I decided to stop until I had an official diagnosis.

    I finally got my diagnosis late October of Lyme, Babesiosis, and Ehrlichiosis. So the doxy was fighting the lyme and Ehrlichiosis and made me herx really badly. I hope that if I start on it again it won't be as bad. I am now on the Mepron and Zithromax for the babesia and while it is leaving me foggy headed the herx has not been nearly as bad.

    I hope you have good luck with the ID. The ID I saw was pretty sure I had lyme and coinfections but the labs that he took came back negative thanks to the CDCs requirements and inaccuracy of the lab testing techniques. I still recommend an LLMD. Take care.

    -ncgirl88

    Last edited by ncgirl88; 11-11-2004 at 06:43 AM. Reason: made mistake

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    what happens if you go tanning while taking doxycycline Hondagirl90 Acne 1 02-11-2009 05:28 PM
    what are your side effects from taking p.p.i.s ? 2bnorm Acid Reflux / GERD 14 02-10-2008 06:00 PM
    been taking DORYX _side affects HELP ME Kc1985 Acne 9 07-21-2006 12:46 PM
    Can taking Doxycycline cause muscle loss while weight training? frogthedon Acne 1 04-29-2006 09:01 AM
    Doxycycline Use for Arthritis in the TMJ's CherylL24 TMJ Disorder -TemporoMandibular Joint 1 11-29-2005 08:12 AM
    Lyme Test Negative/Taking Doxycycline Confused47 Lyme Disease 4 08-30-2004 09:31 PM
    been taking Retin-A (cream, 4months now), just given doxcycline, have questions orange Acne 3 01-06-2004 08:31 AM
    doxycycline xandrr Eye & Vision 29 01-04-2004 09:34 PM
    Doxycycline dgp54 Acne 7 12-27-2003 06:19 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 09:19 AM.





    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!