Quick recap: Been misdiagnosed for two years; diagnosed with Lyme by infectious disease doctor (IDMD) Oct 2004; 28 days rocephin, no improvement; Dec 2004, IDMD says it's most likely that I don't have Lyme since there was no improvement; Finally seeing LLMD in January.
Anyway, I've been feeling especially sick lately and have been psychologically a mess since my IDMD now told me that it's most likely that I don't have Lyme while at the same time my neurologist told me before that to not listen to anyone who says that they know anything about Lyme. Leaves me caught in the middle.
So what do I do? Naturally I hit the net, researching other conditions and self-diagnose myself with just about everything. I read that a symptom of ALS is difficulty swallowing. All of a sudden I start to notice that I may have this but also think that I may be psyching myself out. Oh yeah, I also think I have MS. The only thing saving me from going nuts is that none of these conditions have the "pressure in the head" thing associated with it.
Only Lyme and tumors have this symptom and I've had several clear MRIs.
So my question is, what's the best way to combat this paranoia I now find myself consumed with?
Just an aside, I've found that Ambien makes all my symptoms about 100x worse...
And also, just got a call from my LLMD, someone cancelled and I'm getting in there Dec. 28th vs. Jan 27th!