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  • Link between Low RBC, Carbon Dioxide & Lyme...

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    Old 01-07-2005, 07:21 PM   #1
    cjFTWORTH
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    Link between Low RBC, Carbon Dioxide & Lyme...

    I got a call from my gp's office saying they wanted to go over results of test that I'd had run (for neurologist).
    They said that my red blood cell ct, hemoglobin, and hematocrit were all low. Wanted me to pick up some more acid reflux samples (long story... when I'd felt so crummy with multiple symptoms a few months back, I'd had classic gall bladder symptoms. When that was ruled out, he put me on prilosec and it eased the esophogeal spasms, tightness - no reflux ever. )
    so i'm thinking he's suspicious of bleeding ulcer... i've only been to him twice. very young doc, totally poo-pooed the idea of lyme when i mentioned it to him the one time. whatever, not even sure why i'm mentioning this. i guess because it's why i'm asking YALL instead of him...

    Any relationship between tick borne stuff and low rbc stuff???
    anyone know anything about low carbon dioxide readings???
    i have a copy of report if numbers are important.
    about to fall over on keyboard at moment.

    i don't really HAVE a family doc that i claim and NEED to get one that i have confidence in. i really like this guy, good christian, but not sure about my confidence in him.

    i am pursuing references like i'm pursuing everything else... headsaspinning.....

    check back with all of you fine folks tomorrow when i'm rested (hopeflully)...cj ps... sweet dreams

     
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    Old 01-07-2005, 07:40 PM   #2
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    Re: Link between Low RBC, Carbon Dioxide & Lyme...

    Hi cj. The red blood cell count, hemocrit, and hemoglobin could be low from Babesiosis, anemia, or something else. Not everyone who has Babesiosis has low values of these but some do. When these values are low, they can definitely make you extremely tired. Were your iron and iron saturation also low?

    If you are questioning your confidence in your doctor, then you need to find a different one. It is nothing personal against him, it is about you getting the best help possible.

    I hope you feel better soon

     
    Old 01-08-2005, 07:23 AM   #3
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    Re: Link between Low RBC, Carbon Dioxide & Lyme...

    Hi cj, sorry you're feeling so crummy. I hope you are able to get some answers soon and get well. I see that you're saying in a lot of your posts that you can't get answers and you aren't getting much sleep, lots of neurological problems. Sorry you're going through this, that happened to me too but I'm finally getting better--this is my 8th month of treatment.

    Just wanted to share my feeling on what you said about your doctor. I'm glad your doctor is a Christian because I'm glad whenever anyone is devoted to Christ. However, I believe you need an LLMD right now. The truth of the matter is, your doctor does not have to be a Christian. The God of all creation can use ANYONE to get you the answers you need. What matters is that YOU trust God, not that your doctor does. Ask the Lord to guide your steps to a knowledgeable person who has the background and experience to help you with this illness and He will do that. Don't limit God to power and work through only believers, He is bigger than that. Go where He tells you to go and when you get healed don't forget who did it for you. It's not the doctor.

    Keep your faith in God, not in Christians. Sorry for the exhortation, you know I'm speaking in love. I want you to get better.

     
    Old 01-08-2005, 07:49 AM   #4
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    Re: Link between Low RBC, Carbon Dioxide & Lyme...

    morning sw,
    no apologies needed, rather, thanks for sharing your heart. I totally agree. and for clarification, for those who've read previous posts and might think i've truly gone off mental end...
    this thread and comments are about a gp that i've only visited a time or two right when i was slammed with a myriad of unrelated health issues. a friend recommended him as i was looking for a new gp.
    he sent me for a scan of gallbladder as i had classic symptoms, really was suspicious of my 'myriad' of symptoms list...
    in some of my past posts, i've also commented on the lyme lit. doc i've seen once now. she is on board of iliad, is professor at medical university in dallas, does research on lyme, etc.
    however, based on the appt. I had with her, I would describe her as demeaning, uncaring, arrogant and power seeking. Communication with her was very difficult, she honed in on my depression diagnosis, poo-pooed my general lyme symptoms... did not order bloodwork for other tickborne illnesses. and now has post-poned my appt. and thus treatment because she wants the cbc and cmp bloodwork that i chose to hold off at initial visit.
    So i'm pursuing testing on other tickborne illnesses, have faxed her the cbc and cmp results, and trying to find another lyme literate doc. not a lot of trust in her and zero respect.
    really venting this morning, sw. hope its not too toxic. pretty early for this kind of stuff.
    i haven't run it by my board friends yet, as it hasn't hit the top of the priority list, but i'm running into some other possibilities for lyme treatment from integrative docs who would treat with both antibiotics and other stuff. just scratching the surface, but if i find good resources or have intelligent questions, i will share.
    just re-scanned your post and think i need to spend more/much time on the faith part. so easy for me play god when i'm scared. i do appreciate your exhoration. you are being used, believe me. i need those words TODAY.
    How are YOU?
    just took a deep breath... good sign. thanks, cj

     
    Old 01-08-2005, 07:58 AM   #5
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    Re: Link between Low RBC, Carbon Dioxide & Lyme...

    ticker, as always, thanks so much for your reply, your time and that incredible machine in your head!! so i'll wait for igenex results and see...

    i do have an appt with another doc on tuesday to have lymph nodes checked out and get a mamogram referral. we'll see what that 'feels' like, as far as doc/patient match. he's associated with the femcentre here in fort worth. heard many good things about place.

    also just had an excellent referral from a frend yesterday ona female gyn. which would be great.

    keeping priority list straight is crazy-making!!

    question: when you are with a llmd, and your body is being attacked in multiple areas, are you usually having to work with your gp and or other specialists as well? your lyme doc, if a neurologist, for example, isn't going to treat all of that or even check it all it are they?? ideally, do they communicate well, or are you your own 'go-between'???
    probably over my limit of questions but am curious about how all this works.
    hope you wake today feeling great, ticker. cj

     
    Old 01-08-2005, 08:08 AM   #6
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    Re: Link between Low RBC, Carbon Dioxide & Lyme...

    Oh, thank you cj, I was holding my breath waiting to see if I upset you. You are right to look for another LLMD. It upsets me so much to hear when one of us is treated with disrespect like that. When doctors shove us aside they harm us in more ways than one.

    When I was sixteen I had an ovarian cyst. I was just a kid, really. I was very thin and I could see the cyst whenever I laid down. I told my mom and she brushed me away (that's a long story and a whole different counselling session) but anyway, I finally convinced her to take me to a doctor. You know what he said? He examined me for about two seconds and he said, "silly little girl...you are just constipated. Go home and stop wasting my time and your mom's time too." Three years later when I finally got my own insurance they had to do major surgery and by then the thing was so big they couldn't save my ovary and ripped it out along with the cyst. My hormones haven't been the same since.

    Anyway, I don't listen to doctors too much anymore. I make sure they are listening to me. Ooooh, I'm still fuming mad, I'm typing so fast right now!!!!!!!

    I hope you find a doctor who respects you, you deserve it cj.

     
    Old 01-08-2005, 08:22 AM   #7
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    Re: Link between Low RBC, Carbon Dioxide & Lyme...

    so sorry you had to go through that, sw.
    praise god you chose to come out of strong.
    i am strong and usually assertive. i was and had to be assertive with neuro that day. but i really do have an issue with docs - that whole pedestal/god thing. i don't know why. i give them way to much power and tend to be so easily intimidated by them.

    i just want to be able to able to go in to a doc's office and have a dialogue, human to human. respect their knowledge base, but other than that, be able to trust that we are both shooting straight, and have my health in mind.

    not sure why that seems to be so dang difficult to capture. in theory, its sounds like a no brainer.

    where are you from agian??? just flashed back you at 16. same with mom's. lots of 'wishes', but you do the best with what you were given. and i sense that today, you are better, stronger, more nurturing, compassionate, sensitive and caring for what you missed out on. not to in anyway discount your losses or hurts, but to celebrate with you your victories.

    (sw, sometimes i really quesiton myself and the limbs i go out on... hope this one doesn' t break and i'm not way off track - don't sense i am, but obviously don't 'know').

    ttfn... cj

     
    Old 01-08-2005, 10:04 AM   #8
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    Re: Link between Low RBC, Carbon Dioxide & Lyme...

    Yes, you are on track. Thanks for what you said. I realized something now that I am a parent and that is--we all do the best we can. Some parents aren't really so great, but then again maybe their parents were even worse. Now that I'm an adult I know my family history and it's really not pretty so I just try to move forward and not repeat the patterns.

    Thanks cj.

    p.s. I am from Connecticut

     
    Old 01-08-2005, 10:35 AM   #9
    cjFTWORTH
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    Re: Link between Low RBC, Carbon Dioxide & Lyme...

    sw, pleased to say that i do hear you. at one time i couldn't.
    i know my parents did the best they could. today, i try and honor my mom as the one who gave me birth, but...
    need i say more.
    i did learn much from my growing up that i wouldn't trade as far as where/who i'm at/am today.
    loving my family (husband/daughter) cj

     
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