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ncgirl88 03-20-2005 07:53 PM

Sore Throat and Tongue Pain - Herxing?
Ok this is a new one for me...the side of my tongue is hurting - the back right side - I mean a lot of pain. My throat is hurting too - no white marks so I don't think strep.

I do feel like I am starting to enter herx land...

Anyone else experience this? My tongue feels like it has been severly burned or weird...the pain is like a dull throb almost and I am having problems swallowing - more like I won't be able to when I do...

Thanks for any info.


laurie864bla 03-21-2005 03:52 AM

Re: Sore Throat and Tongue Pain - Herxing?
This is a strong, previlant symptom of Sjogren's Syndrome that people complain about. Reason I know this is b/c they thought Mark had this and Telvock was Dx w/it before Lyme. It is autoimmune.

Mark has had these symptoms in the beginning/middle of his undx period. He has a strong band 31 which Dr. Jones says is very suggestive of autoimmune triggers from the Lyme. Mark has had such strong Sjs symptoms at times--not being able to swallow, very dry mouth and eyes, and a burned tongue feeling.

All turned out to be Lyme--and has gone away with treatment. You could just be doing that herx thing with new weird symptoms that pop up. But oh yeah, I have not only heard of this, but experienced it and talked to many with the same.

I would watch closely and take some benadryl if you can stand it today. Helps with that a lot. Also you can get some Biotine mouth rinse which seems to help some. Careful with toothpast or any other mouth wash as it makes it worse and burns.

ncgirl88 03-21-2005 04:39 AM

Re: Sore Throat and Tongue Pain - Herxing?
Thanks for the info. Laurie. It is miserable I must say - the tongue just really feels like I am one of those cartoon characters and my tongue was pulled real hard out of my mouth.

I looked up Sjorgren's syndrome and the only strange thing that doesn't seem to apply to me is that I am salivating a lot too which is the opposite of what they say - they claim it is a drying out of mouth and eyes. Although maybe it is my mouth drying out and that is why I am salivating.

This just stinks! I am so tired of all of this. Anyway thanks for the info. ;)

fotomom 03-21-2005 09:15 PM

Re: Sore Throat and Tongue Pain - Herxing?
I have that too this week! I thought I was getting a cancker soar on my tongue!!!!

laurie864bla 03-22-2005 04:45 AM

Re: Sore Throat and Tongue Pain - Herxing?
How are your tongues today ladies???

ncgirl88 03-22-2005 05:30 AM

Re: Sore Throat and Tongue Pain - Herxing?
Mine is a little better. I kind of forgot that I burned my mouth on Friday when I went out to lunch. It was a vegetarian restaurant and I was eating a spinach wrap that had been heated. I bit into the inside and OUCH. It rolled around my mouth under my tongue and on top.

I forgot about it and I think what is going on is that healing is different know. Very swollen and painful. Getting better though. I swished with Salt Water last night.

I was going through my medical records and getting them organized into a binder and saw that Dr. J's did test me for Sjouren's Syndrome and I came back negative of course that was in September so things could have changed. I am praying that is not what I am dealing with...I don't want to add any more to my plate.

Thanks for the info. Laurie and the Concern ;) I hope you are having a great morning!

laurie864bla 03-22-2005 05:40 AM

Re: Sore Throat and Tongue Pain - Herxing?
The only true test for Sjs is a lip biopsy. The rest is clinical for dry eye, mouth sores, dry mouth, somtimes neuropathy, etc. Where does your band 31 stand?

ncgirl88 03-22-2005 05:45 AM

Re: Sore Throat and Tongue Pain - Herxing?
Band 31 was equivocal both in IgM and IgG antibodies...

gottagetbetter 03-22-2005 10:27 AM

Re: Sore Throat and Tongue Pain - Herxing?
Ladies :wave: ,
Weird that this conversdation happens this week. I woke up this mornin' with the right side of my tongue(back) feels like an ulcer on the back of the tongue/throat and attached to the gland in the throat/neck. I have this flair up every so ofter. I thought I had dealt witha situation last night but come to find out I just suppressed it :nono: . Guess I just buried it down. Gosh, I hate this!!

ncgirl88 03-22-2005 11:03 AM

Re: Sore Throat and Tongue Pain - Herxing?
That is weird that we are all having this problem the same week! Mine is still hurting like He** today.

I hope you all get better. I find the salt water rinses help. :wave:

bbird 03-22-2005 04:46 PM

Re: Sore Throat and Tongue Pain - Herxing?
I get the 'soar tongue' thing allllll the time.
Definetely helps to gargel with REALLY HOT salt water

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