It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lyme Disease Message Board

  • How reliable is the Lyme Titers Blood Test ???

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 07-05-2005, 03:17 AM   #1
    mish-el's Avatar
    Join Date: Apr 2005
    Posts: 51
    mish-el HB User
    How reliable is the Lyme Titers Blood Test ???

    can anyone tell me how reliable the Lyme Titers Blood test is and if it would be useful to detect late-stage lyme disease?????

    Many thanks

    Last edited by mish-el; 07-05-2005 at 03:22 AM.

    Sponsors Lightbulb
    Old 07-05-2005, 04:06 AM   #2
    Senior Veteran
    laurie864bla's Avatar
    Join Date: Feb 2004
    Posts: 1,319
    laurie864bla HB User
    Re: How reliable is the Lyme Titers Blood Test ???

    Don't know the exact percentage--but HORRIBLY unreliable. The worst of them all, and will not pick up late stage disease. Read on, on this site and others why this is and you will understand more. The key to this disease is first understanding it yourself, and then finding a LLMD who understands it.

    Old 07-05-2005, 08:58 AM   #3
    Kali M
    Kali M's Avatar
    Join Date: Nov 2002
    Location: FL USA
    Posts: 405
    Kali M HB User
    Re: How reliable is the Lyme Titers Blood Test ???


    Ticker may come by and give you more info, but I asked a similar question on 6-26 around 10pm (you'll find it on about the third page of this board - just find it by date and time).

    Denise Lang (in "Coping with Lyme Disease") says some researchers believe Lyme may be difficult to detect (through current tests) in folks with chronic disease because our immune systems have been so pummeled that we're not producing the antibodies the test is designed to find (which identifies us then as having the disease). According to Lang, other things like antiinflammatory drugs (NSAIDS, COX-2 inhibitors) or prednisone can inhibit antibody production as well. Also, the spirochete can HIDE and we can have Lyme but our bodies not produce antibodies because our bodies don't know it's there. (Slimy little suckers!)

    To date, my understanding (which is still very limited) is that most general practitioners (and many specialists) will start testing with the ELISA because this is what the CDC has recommended. I think I read somewhere that the ELISA is only 66% reliable for finding Lyme Dz. (Don't quote me on that number - but whatever the correct figure is, it is definitely LOW). If the ELISA comes back positive, the CDC then recommends the Western Blot Test. But again, low reliability, especially if docs only test for the "CDC-specific" bands (only 3 bands on the IgM blot and 10 bands on the IgG blot out of 99 possible bands). Ticker put a really good list of the Western Blot bands on one of the strings that's at the top of this board (I think the "Lyme disease info" string). Look at it!

    There are other tests, in addition to the ELISA & Western Blot, but again, my understanding is that unless folks have seen a Lyme specialist (LLDS) or a Lyme-sympathetic doc, it's unlikely you're going to be tested using the other diagnostics. IGeneX labs in Palo Alto, CA is one that's widely mentioned here on the boards as being meticulous about testing for Lyme.

    Have you been tested? Who tested you and what tests did he/she use?

    I've had the question about chronic lyme showing up on these tests as well. I'm currently waiting to be seen by a LLDS. Good luck!

    BTW - I wanted to add that I'm quoting Lang's book a lot only because it's the only one I've really been reading to date. (And it's very good!). I've got others I've bought and that I will read after Lang's, and others that are highly recommended through folks on this board.

    * * * * * * * *
    Discography 10/29/02
    IDET (single level) 10/30/02

    Last edited by Kali M; 07-05-2005 at 08:59 AM.

    Old 07-05-2005, 07:36 PM   #4
    Senior Veteran
    ticker's Avatar
    Join Date: Jan 2002
    Posts: 5,790
    ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
    Re: How reliable is the Lyme Titers Blood Test ???

    Hi mish-el, welcome to the board!

    No Lyme test is completely reliable. From what I understand the ELISA, also called the titer, is the least realiable and the one most doctors run first.

    When Lyme disease is a possibility, the most important thing you can do is see a Lyme knowledgable doctor. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It is important to be tested by a Lyme reputable lab such as IgeneX in Palo Alto, Ca.

    If you tell me where you are located, I will tell you of the closest knowledgable doctor to you that I know of.

    Hang in there okay?

    Old 07-06-2005, 04:05 PM   #5
    yogadiet's Avatar
    Join Date: Jul 2005
    Posts: 1
    yogadiet HB User
    Re: How reliable is the Lyme Titers Blood Test ???

    Can anybody please reccommend an MD in Nassau county Long Island or New York City.

    Old 07-06-2005, 04:17 PM   #6
    gottagetbetter's Avatar
    Join Date: Jan 2005
    Location: Dallas, TX
    Posts: 437
    gottagetbetter HB User
    Re: How reliable is the Lyme Titers Blood Test ???

    Yogadiet ,

    Welcome to the board!! You might want to post a new thread so that when Ticker comes along he/she will see this and respond.


    Old 07-08-2005, 05:15 PM   #7
    Senior Veteran
    ticker's Avatar
    Join Date: Jan 2002
    Posts: 5,790
    ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
    Re: How reliable is the Lyme Titers Blood Test ???

    Hi yogadiet, welcome to the board!

    Do you think you have Lyme? It is very important to see a knowledgable doctor and also be tested for the co-infections that ticks may also transmit--Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.

    I know of three Lyme doctors in NY: in Armonk, Hyde Park, and East Hampton. Would you like one of their names?

    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Now dx'd w/possible lyme? fibropain48 Lyme Disease 6 12-15-2009 11:31 PM
    Got the test results; not Lyme, its Babesia Ducanti Nexis Lyme Disease 15 12-04-2008 02:28 PM
    Dr says no to Lyme testing???? texasfire Lyme Disease 4 10-26-2007 05:26 AM
    Epstein-Barr or Lyme's? Please help. KeyLyme Lyme Disease 6 11-08-2006 02:00 PM
    According to eMedicine, the Lyme blood test is 100% accurate in LATE stage Lyme Emak Lyme Disease 4 05-29-2005 12:57 PM
    Lyme Questions please help. mish-el Lyme Disease 4 05-10-2005 03:05 PM
    Chronic Fatigue or Lyme Disease? deejavu Chronic Fatigue 1 04-16-2005 02:45 PM

    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off

    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 08:06 AM.

    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!