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    Old 07-21-2005, 04:56 PM   #1
    chocolatesprinkle
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    Lyme and thyroid

    Hello everybody,

    I have read a couple of times here that their thyroid has been affected w/ Lyme. How is that? I think ticker mentioned hypothyroidism was kicked off with his/her situation. How do you definitely know that's what happened? My thyroid has tested normal, but many of the hypothyroid symptoms are in common with Lyme. I also have an intolerance to cold, and that sounds more hypothyroid, right? Do people with Lyme have this problem (w/ cold?)?

    Ticker, what was your situation? How was your thyroid test? What do you do for your hypothyroid? Are there things I can do w/o treatment? I was reading about fluoride in our water being associated w/ hypothyroid (scary stuff) and so I'm going to try and eliminate tap water. And my favorite drink, tea, too, who would have thought that would be a large source of fluoride.

    Thanks to everybody, what a great supportive group you are, and ticker, you are my hero.

    ChocoS

    ~~Working on a mystery~~

    A brief synop:
    Flu-like symptoms days before EM 9/2001
    2 courses of doxy 100 mg b.i.d. x 3 weeks before end of 2001

     
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    Old 07-21-2005, 06:03 PM   #2
    ticker
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    Re: Lyme and thyroid

    Hi chocolatesprinkle, thanks for the compliment The people at this board are terrific.

    Many symptoms of thyroid and Lyme disease overlap, and many people who have Lyme have a thyroid disorder. Often this is Hashimoto' s Thyroiditis, which is a type of hypothyroidism. Even if your test result are in the normal range, they may not be optimal for you. Important thyroid tests to have done are the Free T3, Free T4 (in addition to the T3, T4) and thyroid antibody tests. They are not usually done but are necessary for a comprehensive view. If your thyroid antibody tests are elevated, it is a sign of Hashimoto's. If you have not had these done, I suggest that you do. When you get your results, post them here or on the thyroid board for interpretation.

    It is my understanding that if you are hypothyroid, you need to take meds. I do not know about the flouride connection. There are excellent water filters available that you can connect to your tap. It filters the gunk and the water tastes good. Most of them have a way to switch back and forth between tap and filter for dishwashing etc.

    Good luck with your tests! Will you be seeing a Lyme doctor soon?

    Last edited by ticker; 07-21-2005 at 06:04 PM.

     
    Old 07-21-2005, 06:30 PM   #3
    Kali M
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    Re: Lyme and thyroid

    Chocolatesprinkle,

    Supposedly the spirochetes cause damage to many body systems, including the adrenal system (which controls the thyroid functioning).

    I've had the same problem - have many symptoms that seem like they could be hypo as well as Lyme. I have a stronge fm history of Hashimoto's and hypothyroidism. And I had hypothyroidism in 1998 that resolved on it's own (seemingly). But by 2000 it seemed like I was having some hypo symptoms (with no change in labs). By 2004 I seemed to be having massive hypo symptoms; but again, with no changes in labs. Just this past month I had a TSH come back at 4.7 (with old range high norm being 5.5, but new range high norm being 3.0). My doc mentioned that 4.7 was higher than desired "but still within normal." And the problem is, even with the new guildelines from the endocrinologists association, many docs (both generalists and specialists) still consider the old values normal.

    Very very frustrating! I feel some of my symptoms might get better with thryoid replacement. (Who knows, perhaps hypothyroidism might even be my main problem; I don't know).

    Kali
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    Last edited by Kali M; 07-22-2005 at 07:58 PM.

     
    Old 07-22-2005, 07:16 PM   #4
    chocolatesprinkle
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    Re: Lyme and thyroid

    Hi ticker and Kali, (I just love that wavy guy)

    Thank you, I have printed out your posts.

    It prompted me to remember (!) to call my GP about thyroid tests she had ordered awhile ago. I know when she followed up with me, she said they were normal. And they indeed are normal. At least these are:
    TSH w/ free T4 2.13 (range .4 - 5.5)
    T3 121 (range 60-181).

    While we're talking about tests, I just went into my folder. My Lyme tests done in Dec 2001 - I only have one piece of paper.
    Lyme by PCR, negative.
    Lyme Western blot negative (IgM bands present 23; IgG bands present 41) - but I just noticed it said see attached sheet for result interpretation (!) which I don't have. Should I?
    Also negative results for Babesia WB, Erlichia and Bartonella by PCR.

    Also, have you ever heard of the Stricker test [HNK1 (CD57) Panel]? My LLMD ran this last time I went. It's supposed to tell you how your immune system's running. The first two lines say this:
    %CD8-/CD57+ Lymphs 3% (range 2-17)
    Abs. CD8-CD57+ Lymphs 60 /UL (range 60-360)
    The rest are an extensive run down on the blood, WBC, RBC, Hg, Hct, etc, all normal.
    But the first two look like they're in the lower range. I will talk to my LLMD about these when I next see her in August. I've got lots of questions for her.

    BTW, ticker, I had give a lil bit of my hx in the thread 'end of treatment and cats claw question' if you care to read.

    Re fluoride, it doesn't take long to find info on the web about its effects on the thyroid. I also read that it had been used many years ago to treat hyperthyroidism, and something about how it was given to prisoners to dull their behavior. Yikes, if that's all true. I've cut out drinking tap water although I was using Brita, and I am presently going through withdrawal from drinking tea. Just another experiment. I have read a lil bit about filtering the water, reverse osmosis filters are good apparently but I have to wait to get myfoggy brain wrapped around that possible project.

    Thanks all. Happy Friday.

    Chocolatesprinkle

     
    Old 07-22-2005, 07:37 PM   #5
    dorkdad
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    Re: Lyme and thyroid

    Hypothyroidism prevails with people on this Board, but my wife had a hyper thyroid (overactive) and a small luimp to go with it. She took medication for a while on top of the alternative Lyme protocols and her blood tests are all normal now after about 6 months. A surprise showed up on the most recent blood test that she was severely low in B6. Really odd because two previous doctors had here taking B6 supplements. I guess sometimes with Lyme, B6 is not metabolized in the digestive track. She now takes sublingual B6 and is slowly increasing doses until she starts remembering her dreams. Of course that means SLEEP first. She's slowly getting there.

    DD

     
    Old 07-23-2005, 05:20 AM   #6
    chocolatesprinkle
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    Re: Lyme and thyroid

    Thanks for your message dorkdad. I've read of your wife and family, and I'm heartened to hear of some progress for her.

    My LLMD recommended some great vitamins/supplements - prepared using pharmaceutical standards. And I think they do help. But it's interesting your note about the B6. Can anyone get sublingual B6? I don't sleep well either, and don't remember dreaming. I now know how important sleep is. How it can only help your body heal itself. I've only known personally one person w/Lyme, a neighbor, and he's feeling better. He's a man of few words, but he would say to me when I'd talk to him now and then, make sure you're getting enough rest.

    Peace and blessings,
    chocolatesprinkle

    PS I was just looking on the web about vitamin B6. And was amazed to see the natural food sources. The first two - avocado and banana - I love both, and always have both in the house, and if I can eat every day. Chicken, hazlenuts, tuna, potatoes. All foods I love. I also have chicken and tuna a lot, and I joke that potatoes are one of the main food groups. Interesting how we crave what we need.

    Last edited by chocolatesprinkle; 07-23-2005 at 07:35 AM.

     
    Old 07-23-2005, 09:10 AM   #7
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    Re: Lyme and thyroid

    Dear chocolatesprinkle,

    I know you talked about the tea issue in another post but I am not sure you detailed why you shouldn't drink tea. Up until a few months ago I had never been a tea drinker. My acupuncture doctor loves the tea for a calming influence so I started to drink sleepytime because of sleep problems. I used to drink it nightly but haven't done so for a while. Somebody in my paper recently wrote in that Tazo calm tea works great for this problem and I was going to try it. I don't drink iced tea at all and was wondering if that is what is bad for you. My husband drinks tons of it though. Is it the tea or the water you are adding to it? Just curious, as you said who would have thought tea could be a problem.
    BDFM

     
    Old 07-23-2005, 09:26 AM   #8
    Betterdaysforme
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    Re: Lyme and thyroid

    Dear dorkdad,

    Did Dr. J say that dreaming means you are getting better? Now that I think about it I haven't been dreaming for a long time but like you said, you need to sleep in order to dream. I do have to say though that the day before you posted about the dreams I got out of bed and told my husband about a weird dream I had the night before. I dreamed we were having a huge barbecue and the thing that stuck in my mind the most was that my best friend knew every single person there even though they were mostly my husband's friends. She is very outgoing but shouldn't have known "everybody". I didn't even think of it being strange or even how long it has been since I had a dream until I read your post but I guess this is good? Let's hope so. I told my husband it must mean I am getting better if I am going to have a big barbecue at my house. Heck, I don't even venture outside right now hardly at all for fear of falling again. The farthest I go is about 4 feet outside the back door so I can get some sun sitting in a lawn chair for about 1/2 hour some days. I'm ready to party believe me. So is my husband.
    BDFM

     
    Old 07-23-2005, 11:48 AM   #9
    chocolatesprinkle
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    Re: Lyme and thyroid

    Hi BDFM,

    The light bulb that went on over my head about fluoride first started with a friend (who knows a lot about environmental issues) told me what a scam it is putting fluoride in our drinking water, and then I happened to pick up a magazine with an article about a woman who had hypothyroid and it was linked to fluoride in the water, and her favorite drink, tea. Yes, TEA! It seems that the tea leaves readily absorb fluoride from water and soil. If you do a Google search for tea and fluoride, you'll find some info. And how someone is urging the FDA to set a safety standard to the amount of fluoride (as well as pesticide residues and lead contaminants) in tea. Yikes again. We take so much for granted, about so much. I also read that a standard limit exists as to the amount of fluoride they can put in bottled water. I'd like my water toxin-free, please. It is up to everyone to make their own minds up about what they read. But our systems are limping along as it is, and I guess the point may be to reduce as much of this stuff as we can from our diet. It's just another lil experiment I'm going to work on.

    Chocolatesprinkle

    PS, I forgot to add that Synthroid is one of the top 3 prescribed drugs in the US. For hypothyroidism. It make you wonder why so many people have hypothyroidism.

    Last edited by chocolatesprinkle; 07-24-2005 at 06:39 AM.

     
    Old 07-23-2005, 02:05 PM   #10
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    Re: Lyme and thyroid

    Hi chocolatesprinkles,

    Thanks for the info. I guess even a filter on your tap won't help because I'm not sure fluoride is one of the things it is filtering out. Interesting.
    BDFM

     
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