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    Old 02-24-2006, 11:22 PM   #1
    Frejya
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    Unhappy inner rumbling a symptom?

    Hi, i'm usually on the Addison's board...but for some time i've had symptoms & illness that cant be explained by my Addison's. They have been many, & have progressed over time, but one of the main things i've had is at first an inner vibrating, first starting in my legs, & now sometimes, in my chest. it has gotten more severe, too...almost a rumbling or shuddering, now. i basically have coldness/tingling in left foot, and somewhat numb left hand, pains all over, now gravitating to shoulder and neck. i have tender spots, oh and ankle pain. i had low-grade fever and chills, on and off....when i feel fluish, i cough lightly (dry) but when fluish goes away, the cough stops. Now, my head gets heavy, almost 'knock-out' episodes, and i shudder inside at the same time....before that, i had shortness of breath with the vibrations. i could go on....but i wont for now! My Dr. had me take 200 mg Doxy per day, and i may have herxed, got sooooo sick, and had trouble breathing, almost an anaphalactic thing. Then i was so much better for two days, and it all came back after that. i still dont know, it could be either vascular or neurological...but i'm thinking Lymes....i'm in CT and we have deer that come in the yard. Thank you so much, anyone who has an idea, because i'm feeling so hopeless at this point. Judi

     
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    Old 02-25-2006, 05:28 AM   #2
    Smyle
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    Re: inner rumbling a symptom?

    Hi Frejya:

    First off, welcome to the lyme board and I am sorry you are not feeling well.

    Your symptoms sound very familiar to me. The rubbling that you describe is something that I describe as feeling like I'm plugged in to an electrical socket. I also have days that I feel like I am going to start seizing or convulsing. Get tested for lyme by Igenex lab in california. They have a website-which we can not give out here. You order and pay for the tests yourself (you're Dr. has to sign off on it) but it's well worth it.

    Frango

     
    Old 02-25-2006, 05:46 AM   #3
    dianneom
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    Re: inner rumbling a symptom?

    Freyja :

    Your post caught my attention as I have a rumbling sensation that seems to coincide with my heartbeat , feeling it in my chest , arms , back and head , whenever I try to rest or lie down to sleep . Many times I have to take a relaxant to get to sleep . The sensation makes me feel like I am moving or spinning . Been ill since 1999 , this sensation starting a year later as a feeling of movement with my heartbeat , getting stronger gradually( over years) up to this increased sensation of feeling rumbling .

    Been on Lyme treatment non stop since Nov 2000 and this is one sensation that gets stronger as time passes . Wondering if this is something other than Lyme .

    Keep your situation posted for those still seeking much needed information . If I learn anything definative I will post it !!

    Dianne

     
    Old 02-25-2006, 09:05 AM   #4
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    Re: inner rumbling a symptom?

    Hi Judi and welcome.

    I don't have the jittery, rumbly feeling that you describe. Sounds just awful.

    I do have other symptoms though. Right now I am dealing with day 4 of severe nausea / tummy ache with fever, headache, aches and pains. Stinks to be sick doesn't it?

    I am on Doxy. I take 600 mg per day. Sounds as if the small dosage of Doxy you took before helped you. I know for Lyme disease, 200mg is the lowest dose prescribed. I don't think you were on it long enough. The Lyme bacteria have a long lofe-cycle so it takes more than 30 days of antibiotics to kill them all, depending on how long you were sick.

    I got my Lyme diagnosis by having my blood tested at a lab called Igenex.

    You may want to check out the sticky thread "Lyme Disease Information Thread". It contains a lot of good info.

    Peace and health to you.

     
    Old 02-25-2006, 08:52 PM   #5
    Frejya
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    Re: inner rumbling a symptom?

    Hi to everyone! i wont reply individually tonight, since i'm having a bad night, lots of pain. Yeah, it does stink being sick, but then made much worse when we dont know what's going on inside. Feeling hooked up to electrical sounds right, except that it has been getting worse. A couple of you guys have it, and i've read other posts on the web, where people have it, but no one seems to know what it is. Thanks for your advice about the tests, and it means a lot to know i'm not alone. i hope you all feel better!!

     
    Old 02-25-2006, 09:50 PM   #6
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    Re: inner rumbling a symptom?

    I have been seeing a LLMD since January this year, however I have been ill since August 2000. My illnes started with Bilateral Bells Palsy, which I was told was not Lyme. About 6 to months later I started to develop a tremor. Since then, many more symptoms have been showing up, but since I had seen a "specialist" for Lyme and deemed not infected based on initial serologies, I wasted years seeing other specialists for another possible diagnosis. I basically had to do all the leg work, research and insisting that perhaps the Lyme diagnosis should be revisited.

    I have had this feeling you are talking about, jittery...electrical, however you may describe it. I have also had a problem with myoclonus. This started at night when I laid down togo to sleep...my body, maily my abdomen/trunk would tighten up to the point where it was more comfortable to be in a fetal position, but it sometimes scared me because it was almost as if I was having a seizure (except I didn't feel like I was out of it mentally, I knew what was going on). I would also shake inside like I were shivering, but I wasn't cold. Has anyone else had this happen? Now I have times where walking is unstable because my feet will "stick" to the floor momentarily or move in a jerky fashion.

     
    Old 02-25-2006, 10:08 PM   #7
    elr1227
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    Re: inner rumbling a symptom?

    I have been seeing a LLMD since January this year, however I have been ill since August 2000. My illnes started with Bilateral Bells Palsy, which I was told was not Lyme. About 6 to months later I started to develop a tremor. Since then, many more symptoms have been showing up, but since I had seen a "specialist" for Lyme and deemed not infected based on initial serologies, I wasted years seeing other specialists for another possible diagnosis. I basically had to do all the leg work, research and insisting that perhaps the Lyme diagnosis should be revisited.

    I have had this feeling you are talking about, jittery...electrical, however you may describe it. I have also had a problem with myoclonus. This started at night when I laid down togo to sleep...my body, maily my abdomen/trunk would tighten up to the point where it was more comfortable to be in a fetal position, but it sometimes scared me because it was almost as if I was having a seizure (except I didn't feel like I was out of it mentally, I knew what was going on). I would also shake inside like I were shivering, but I wasn't cold. Has anyone else had this happen? Now I have times where walking is unstable because my feet will "stick" to the floor momentarily or move in a jerky fashion.

    Last edited by elr1227; 02-26-2006 at 02:54 AM.

     
    Old 02-26-2006, 06:04 AM   #8
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    Re: inner rumbling a symptom?

    elr1227

    I have experienced some of the same sensations you described , like the shivering inside without being cold . My current doctor says that he hears this complaint from other Lyme patients . I can also appreciate your having to see a number of doctors before being treated .

     
    Old 02-26-2006, 06:12 AM   #9
    Smyle
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    Re: inner rumbling a symptom?

    Hi elr1227:

    I get the shaking also. I always described them as tremors, but my husband says that when it happens at night the feeling that he gets through the bed is like I have uncontrollabe chills. For me it is in my legs and I can stop it if I flex my muscles and try to hold them still, but the last time this happened and I held it the shaking started in my arms, then when I would hold my arms rigid it would go back to my legs again. Weird, huh? The first time I experienced this I was really scared-I thought it was a seizure. Now it happens like every 4 1/2 weeks so I think it is a herx and I just ride it out-it usually last from 40 minutes to and hour and I usually have it for 4 -5 days in a row and then it goes away until next time...

    Frango

     
    Old 02-26-2006, 06:56 AM   #10
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    Re: inner rumbling a symptom?

    hi everybody!! i have that! started in my legs now is an all my body, is the symtom that bothers me the most!!! so anoying and nothing , not even xanax takes it away!! have anybody experience an improvement of thet symptom with any medicine?? is cause by an especific co infection?? thank you and have a good day all of you
    brid

     
    Old 02-26-2006, 05:48 PM   #11
    elr1227
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    Re: inner rumbling a symptom?

    Frango,

    It's funny that you described the manner in which you deal with this problem. I too, find myself flexing the affected muscles. Often times, when I am trying to fall asleep I find myself flexing my muscles to make this stop. I often find myself crossing my feet and interlocking them while pointing my toes. I have read a little bit about this and read somewhere that pointing the toes, especially fanning the big toe away from the others is called "Hitch-hikers toe" signifying a neurologic problem. I am going to have to go back and research this more. It happens with such frequency, it is an automatic response to this and I don't even realize I am doing it until my muscles become so tight it becomes uncomfortable. I also notice I do this while driving. Lately I have been clenching my jaw too, and at times my teeth hurt. It seems I do this more one the side where my Bells Palsy still has residual deficits. I had Bilateral Bells Palsy, fortunately it resolved completely on one side of my face.

    Has anyone else here had Bilateral Bells Palsy or experienced grinding/cleching your teeth?

     
    Old 02-26-2006, 05:59 PM   #12
    brid
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    Re: inner rumbling a symptom?

    hi! i have that 24 ours a day, dont go away never!! and yes i clech my teeth while asleep, i even thought i might have parkinson disease...i want to get a spect brain, i dont know if that helps to diagnose what it is, this started in my legs and now i feel it in my whole body! i also have the heart beats fast and the tilazen i take for that doesnt help, if someone how to diagnose or if is worth the spect, let me know!! have a good night to everybody!

     
    Old 02-26-2006, 06:06 PM   #13
    elr1227
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    Re: inner rumbling a symptom?

    dianneom,

    Yes, the shivering is a real nuisance. I had told the neurologist treating me about many problems, including this shivering. I also told her of a strange tingling/itching/burning sensation that I had from between my shoulder blades to the base of my neck. I would scratch this spot raw at times, as this would occur everyday...all day. These issues were never addressed. Funny how doctors pass off these symptoms in which they can not explain. If any of you have read the book The Widening Circle by Polly Murray, she described this phenomenon quite eloquently.

    “That one should be so alone in seeking the restoration of one's health is wrong; that many of those who have been trained to heal draw such neat and tidy boundaries around their territory of duty is unfortunate. But this wasn't the time to lament the shortcomings of the medical profession. It was time to persist”.

    When doctors perform their duties under such rigid and tight boundaries, this is a disservice to the patient. Although illnesses can follow a generalized path, often times, those that present with atypical manifestations are lumped into the diagnosis of "idiopathic" disease.

     
    Old 02-26-2006, 06:09 PM   #14
    elr1227
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    Re: inner rumbling a symptom?

    Frango,

    It's funny that you described the manner in which you deal with this problem. I too, find myself flexing the affected muscles. Often times, when I am trying to fall asleep I find myself flexing my muscles to make this stop. I often find myself crossing my feet and interlocking them while pointing my toes. I have read a little bit about this and read somewhere that pointing the toes, especially fanning the big toe away from the others is called "Hitch-hikers toe" signifying a neurologic problem. I am going to have to go back and research this more. It happens with such frequency, it is an automatic response to this and I don't even realize I am doing it until my muscles become so tight it becomes uncomfortable. I also notice I do this while driving. Lately I have been clenching my jaw too, and at times my teeth hurt. It seems I do this more one the side where my Bells Palsy still has residual deficits. I had Bilateral Bells Palsy, fortunately it resolved completely on one side of my face.

    Has anyone else here had Bilateral Bells Palsy or experienced grinding/cleching your teeth?

     
    Old 02-27-2006, 09:12 AM   #15
    Smyle
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    Re: inner rumbling a symptom?

    Hi elr1227:

    Wow- my gosh, our symptoms sound so similar. I also have that tingling between my shoulder blades-that has been going on for probably 1-2 years and I have never heard anyone else mention that. I had a slight Bells Palsy on the right side of my face that pretty much went away as soon as I started doxycycline. From what I have read bilateral Bell's Palsy is very much an indicator of lyme disease. I also grind my teeth at night and I find myself clenching during the day. I never did this until around 9 years ago maybe? Shortly after my husband and the dog came home covered in deer ticks.

    Frango

    PS- have you been tested for lyme or any of the co-infections. We would all recommend Igenex lab in California. You can look up their number and they will send you the kit to be tested which you have to pay for, but it is worth it.

    Last edited by Smyle; 02-27-2006 at 09:15 AM.

     
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