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Help! Are My Symptoms Related To Lyme Disease?

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Old 03-14-2006, 06:54 PM   #1
Burnt Bees
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Join Date: Feb 2006
Location: east rutherford, nj, USA
Posts: 100
Burnt Bees HB User
Help! Are My Symptoms Related To Lyme Disease?

Hello Everyone,

I have recently been experiencing strange symptoms that started with blurred vision with a lot of floaters, dull, neck pain, tingling in extremities, tight achy cracking joints (fingers, jaw, toes, wrists, neck), intense needle stab pains throughout body, headaches, abdominal/chest pains, heart palpatations, oversensitivity to light and sound, fatigue, general feeling of unwellness. I remember when this all started (end of january) I had a sore throat, aches and pains, fever and felt very weak and flu like. I stayed home from work for a few days and just laid on the couch. I am not immobile anymore but have all the above symptoms which seem to come and go and switch very easily, from day to day. Even though we are not in tick season, I was up in the NY catskill mountains for christmas holiday in a very wooded cabin area. Perhaps a tick could have been in the house, as i slept in an unkept dusty open couch that we folded in every night (could have been hiding in there). There was also an outdoor jacuzzi that i was in a lot. My rheumatologist did a blood test for lyme yesterday and I am awaiting results. Even though the season doesn't match, these symptoms started just two weeks after the vacation. I was fine and then BOOM, they hit me like a ton of bricks, one after another. I was first posting on the MS board but have had 2 mris and they are normal. Has anyone contracted this disease during off season?

Any feedback would be appreciated!

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Old 03-15-2006, 06:39 AM   #2
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Re: Help! Are My Symptoms Related To Lyme Disease?

Dear Michelle,

Welcome to the boards.

I really don't know when the ticks "come out" but you have to agree that the weather has been so crazy the last few years the ticks may be like the flowers and not know what season it is. I feel I contracted lyme in Bar Harbor, Maine over 5 years ago but we stayed at a cabin (clean but rustic) in Virginia on the way there and have often wondered if there was one in the bed there too. We were also tromping around weeds here in Texas looking for retirement property right after the trip too so who knows maybe I was bitten in Texas. I never had a rash and didn't get flu like symptoms either but did have a sinus infection after the trip and a lot of people on here have had the sinus infection not the flu. Must be related somehow.

I fee my immune system was handling it because other than the sinus infection I had no symptoms for a few months after the trip. That was in October and I got sick in December (2000). I had a close friend die in December and my husband's job was going south. I think some of us can handle the bacteria if our immune systems are in good shape but the stress I was going through set it off. This is very common. Have you been going thru any stressful periods before getting sick? I hate to say it but you also could have been bitten in the past and something triggered the onset of symptoms now.

My advice is to be tested thru Igenex labs in California because Quest and Labcorp do not use the best antigen for testing lyme and that is why they have so many negative tests. Even if the tests come back negative you could still have lyme because as the CDC states the tests are not very good. But then they talk out of the other side of their mouth and say you aren't counted as positive unless your test is positive according to their standards.

Lyme is the fastest growing disease in this country and will soon if it hasn't already hasn't surpass the AIDS virus. All you have to do is go for a walk in the woods or have a pet to contract it. The jury is still out on sexual transmission but it is known to be passed from mother to child during pregnancy.

You need to seek out an LMD (lyme literate medical doctor) and if you want someone here can point you in the right direction. I can guarantee you that you will get nowhere with the general physician community because they follow CDC standards and will tell you that you don't have lyme most likely. Believe me time is of the essence. I was told for 2 years I had MS although no tests proved it. After huge doses of IV steroids prescribed by my neuro I now can only walk with a walker and am basically housebound. My first symptoms pre-steroids were nothing compared to my life now.

I don't say this to scare you but to impress upon you that time is crucial especially if this is a new infection. The sooner it is caught the easier it is to cure. I wish my doctors had thought of lyme instead of being so single minded. I now travel from Texas to Missouri to see an LLMD. Please visit often with any questions you have, somebody on here will answer. They will become the best friends you ever had if you have lyme.


Old 03-15-2006, 06:53 AM   #3
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Location: Lancashire, England
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janetclarkson HB User
Re: Help! Are My Symptoms Related To Lyme Disease?

Hi Michelle,

Can I welcome you also.

If it is any help to you, when i was first diagnosed with lyme, I was told that it could have been lying dormant in my blood for years, and that it would have sprung into action when my body was stressed out - either mentally or as the result of a virus. It's as though the lyme bacteria see the mischief going on, think "that's a good idea" and join the party. But once they start partying they don't know when to stop.

Hope you manage to start a counter attack as soon as possible. That seems to be the key.


Old 03-15-2006, 07:32 AM   #4
Burnt Bees
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Join Date: Feb 2006
Location: east rutherford, nj, USA
Posts: 100
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Re: Help! Are My Symptoms Related To Lyme Disease?


I went away December 23rd to the 26th. Around January 7th blurred vision started but other than that i was fine, then my Grandmother died on January 14th (we are not close but my family had gone to FL to visit her for the last time and i stayed home alone in NJ) This could have triggered the array of symptoms.
it is so ironic how you have to send out te test to California, yet the northeastern states (nj where I reside) have the most prominent rate of infection!! Thanks all for the warm welcomes and help/Michelle

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