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Update from blood specialist and LLMD

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Old 03-23-2006, 03:51 PM   #1
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Update from blood specialist and LLMD

Visit with Dr Chai, Blood specialist at the Cancer Center. He reviewed the scan results and records sent from LLMD. Said my clot was serious. I would need to be on injections another 10 days and to start coumadin 6mg tonight. It will take time for the coumadin to get into my system so I have to overlap. I am to go to my MD weekly to have my blood tested. He said I have high homosystein and with family history he did a blood study to check for a marker that shows I am predisposed to blood clots even tough I don't show a blood deficency. If conditions are right, it could happen again. He said I will be on coumadin for 3 months and go back to him before I stop. His office had called but had already left the office when I called them back. I have to call them tomorrow morning for some reason. They may have run a clotting test and be calling to tell me how to adjust my med.

My LLMD said all treatment is on hold while they try to get my blood stable. Any antibotic I go on (or any over the counter med) will affect my clotting time. Hopefully this will also get my system "washed out" from all the meds. My dr said that I was one of the more unusual cases. They red flag the problem files to discuss on Wednesday before you are to be seen. She said my case was red flagged way to often. She also said they only scanned from my picc to the neck vein. She didn't rule out there could be another clot formed somewhere else. I go back to LLMD in 6 wks unless it gets so bad I cannot wait.

I do feel really crummy. My neck is swollen, down into my shoulder. Even my wrist is larger than my right one. Both Drs did agree the blood clot was the most serious matter and had to be put first.

Larry is not doing well. He had no one to help him today. My daughter took me so my 5 yr old granddaughter stayed here and helped him. He said she did great. Not a pest and answered at least 20 calls. No one except me got put through to Larry. With no one here to put the ice packs on his nose every 30 min and they stayed on 20. His nose, his whole face is very swollen. He told me he really missed me. I did this until midnight last night and then was up with him before 7 this morning. I know this stress is not what clots and lyme need but a person must do what he must do. This is my sweetheart. He has been there for me through all the years of this mess.

I hope you all have some good news. I really need some. But like I told the PA at LLMD office today, the Lord doesn't put more on us than we can handle. So WE can handle this.


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Old 03-23-2006, 04:22 PM   #2
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Re: Update from blood specialist and LLMD

Hi Marsha:

I am so sorry that you are going through all this. It sounds like the Dr's are monitoring you very closely. I hope that Larry feels better soon. You are in my prayers...


Old 03-23-2006, 04:45 PM   #3
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Re: Update from blood specialist and LLMD

Dearest Marsha,

I am also so sorry for what you and Larry are going through. My heart breaks when I think of both of you.

I believe things happen for a reason and I believe something better will come from all this.

I know I told you that I have a "special Angel". Well, my Angel sits on my nightstand on my lamp. She is beautiful with a large crystal for her heart and every night before I turn off my lamp, I pick her up and talk to her. Sometimes I even kiss her with "thanks".

Tonight I will say some special words to my Angel of Light for you and Larry. I know she listens and hears my words.

Hugs to you both!

Old 03-23-2006, 05:00 PM   #4
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Re: Update from blood specialist and LLMD

Dear Marsha,

These were not the words we all wanted to hear.

I hope you can get some rest tonight. Soon Larry will start to heal and feel right as rain. I hate that you have all the unknown stuff going on. The unknown is always the hardest to deal with.

I will pray that the doctors work their miracles on you and although it's a pretty awful way to do it maybe your body was telling you it's time for a med rest. Please don't push yourself with the water garden business. I know it broke my heart and some of my spirit to stop the crafts but as crummy as I feel it might be worse if I was still doing it.

Praying for a better tomorrow.


Old 03-23-2006, 05:14 PM   #5
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Re: Update from blood specialist and LLMD

hi marsha! so sorry about the time you are having.. i am praying for you to have better days very soon...i do belioeve that after the storm, come the sunny day i am sure tomorrw will be a brighter day and soo, god put us under so many tests..but like you, i do believe lord doesn't put more on us than we can handle, deep prayers for you and larry

Old 03-23-2006, 05:15 PM   #6
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Re: Update from blood specialist and LLMD

Thanks Frango, Denise and Maureen

I so much appreciate the prayers. Denise the prayer angel sounds beautiful. I know our faith gets us through.

Maureen my business is set to open Saturday. I held off all March. Sent out over 250 cards to my established customers before all this hit. Thankfully I have great kids and they will run it for me Saturday. I may go down a few times but they will handle most of it. My sister is also coming over to help, she is an old hand at water gardens. But you know from your crafts, people still come to you. So many of my customers knew about the lyme and haven't seen me since Fall. I will have to speak to some. Hey, they have been praying for me, sending me cards, calling. They are more than customers, they are my friends. But I do promise, I will take alot of breaks, sit alot.

I know I am not out of the woods, and will not take chances. Promise.

I haven't read all the threads, I know Dork mentioned Jeanne (they were still in Kansas) and said she would give us the news. Have I missed it?????


Last edited by Pearlscale; 03-23-2006 at 05:17 PM.

Old 03-24-2006, 03:31 AM   #7
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Re: Update from blood specialist and LLMD

Hi Marsha,

Prayers to you both from way over here too!

Despite everything else, you seem to be very well-blessed with your family and friends. Accept their kindness and be kind to yourselves. You need to be at the moment.

Lots of love


Old 03-24-2006, 05:37 AM   #8
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lymegirl HB User
Re: Update from blood specialist and LLMD


I am so sorry for all you are going through. You are a strong person and you will get through this. Another bump on the road to recovery. How many bumps can a person handle? Like you and others have said God doesn't give you more than you can handle. You will be OK.

I know it is not easy, hang in there and I am praying for you.


Old 03-24-2006, 05:44 AM   #9
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Re: Update from blood specialist and LLMD know what? you are such a strong person and you give me hope and strength through your posts. here you are balancing your health, a family, you rhusband recovering from surgery, and reopening your business for the season....and yet no matter how dark it may seem you see the light in your situation. i commend you for that, it's such a hard thing to do some have faith that you can make it through what is before you through the grace of god. so i just wanted to tell you two things : i am sorry for all you are going through, and pray that in the next few months the blood clots will resovle and treatment can restart. and thank you for beig so strong and passing it along to the rest of us. i wish i could giv eyou a hug and tell you thanks in the real world...mabye some day. anyway i hope today finds you having moments of feeling less swollen and pained, take care of yourself.

"Be joyful in hope, patient in affliction, and faithful in prayer." - Romans 12:12

Old 03-24-2006, 05:45 AM   #10
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Re: Update from blood specialist and LLMD

I always feel so heart broken when a post of troubles comes up, i like to think that everyone thinking together for each other, helps with healing and so i will be thinking of you and larry alllll day.

I hope that once you have had the blood clots sorted, it will give your body more strength to do in some Lyme bashing. Your due a break soon

hugs jules xx

Old 03-24-2006, 07:34 AM   #11
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Re: Update from blood specialist and LLMD

Thanks you guys. You mean so much to me. I wish we could all come together for a big group hug. "SOMEDAY". Prayers to each of you. I know I'm not the only one with a bump in the road. Marsha

Old 03-24-2006, 08:42 PM   #12
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Re: Update from blood specialist and LLMD

Marsha (((((HUGS)))))

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