It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lyme Disease Message Board

Levaquin reaction and alternatives

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 07-23-2006, 05:34 PM   #1
Junior Member
Join Date: Dec 2004
Posts: 15
mwilki HB User
Levaquin reaction and alternatives

I had a horrible reaction to Levaquin - horrible joint and muscle pain - much worse than when I have Lyme flares...We are working on Bart now - just did 2 mos of IV Zith, IV Clinda and Oral Mepron, Flagyl and Artemesian for Babesia? I read Zith kills Bart too but J clinic recommend this next in their protocol? Any ideas why and any alternatives that are effective for Bartonella?

I only had only one dose of IV Levaquin and a week later I am still in pain from it...hoping that sunsides sometime b/c it makes reading my body/symptoms from Lyme etc more dificult...Anyon else go thru this?

Sponsors Lightbulb
Old 07-23-2006, 05:46 PM   #2
Senior Veteran
Join Date: Nov 2004
Location: New England
Posts: 1,218
sleeperwoken HB User
Re: Levaquin reaction and alternatives

That pain is the worst ever! I just got off cipro yesterday for the exact same reason. My doc gave me cipro for bartonella, cipro is in the same family as levaquin and has the same side effects listed, namely "tendon pain." I had no idea what that meant and didn't really even know where my tendons were in my body. Well for anyone who doesn't understand what it means when it says "tendon pain," it means that it feels like someone is tearing your muscles off your bones. The pain is much different from lyme pain, it's not a dull ache and its not a stabbing joint pain, it's an electric jolt type pain that makes you scream and try to run away from yourself. I was grabbing my thighs and hoping it would stop because it's scary and extremely painful.

I have been on artimisinin for bartonella and plan to increase my dose soon. I take zithromax too, I don't have any side effects from it and have been taking it for over a year. Also, FYI, for the short time that I took cipro (one week) it had no effect on my bartonella symptoms at all, so I don't feel bad about stopping it.

I won't take cipro, levaquin, tequin, or anything in that line of quinolonone type antibiotics anymore. If you find something else that works, let me know.

Old 07-24-2006, 02:47 AM   #3
Junior Member
Join Date: Jan 2006
Posts: 36
Floxed HB User
Re: Levaquin reaction and alternatives

Hi, sorry to hear of your adverse reaction to Levaquin. I posted my experience with Levaquin in another thread a few weeks or so ago...terrible, terrible drug. Thought I'd share my experiences with you (and anyone else who happens to read this thread), and warn you that the side effects you are experiencing can be very long lasting (over a year and a half and counting for me; many many years for some of the other victims); also, new side effects can appear for months after you stop the drug. I'd strongly suggest researching fluoroquinolone antibiotics to gain knowledge of what's been done to you (and hundreds of thousands of other unsuspecting people).

Here's a link to a very short version of my story, although I'm not sure how to get it to work on this site (I guess it's copy/paste only):

Please take care.

Last edited by Floxed; 07-24-2006 at 02:54 AM. Reason: Typo and trying to fix link.

Old 07-24-2006, 08:32 PM   #4
Senior Veteran
Join Date: Jan 2005
Location: NJ
Posts: 1,944
6Blues HB User6Blues HB User6Blues HB User
Re: Levaquin reaction and alternatives

Hi mwilki.

I am currently taking Levaquin, 750mg per day, orally.

I have to admit that I love it. I have severe pain but its muscluar - not tendon. I began taking it about a month and a half ago to see if I had Bartonella and boy do I have it!

I've broken out twice in rashes since then and I have pain like the dickens. My feet and legs mostly. Prior to this I was fighting the Lyme with Doxy only. I feel the Levaquin in helping me tremendously.

My mind is much more clear now than before the Levaquin.

I am always on the lookout for a change in the pain. If it becomes tendon pain - I will stop immediately.

I am so sorry to hear about your bad experience! It stinks bad enough to have to fight this stupid disease without having the complication of a medicine messing your poor body.

Thats too bad you had to find out the hard way that Levaquin is not for you.

Hang in there and I hope it subsides quickly.

I think I heard that Doxy can be effective against Bartonella, not sure. Maybe someone else can chime in on that.

There are other classes of antibiotics out there and a whole bunch of natural stuff to try --- so don't give up hope!

Peace and health to you.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Allergic to Levaquin, Amoxicillin and possibly Cipro Galaxy_Sug Allergies 6 06-01-2007 08:48 AM
Levaquin for Sinus Infection MountainReader Sinus Problems 11 03-06-2007 01:12 PM
Levaquin and Anxiety osmonxp Anxiety 10 05-04-2006 05:46 PM
Tequin and Levaquin are POISON!!! Emak Allergies 17 04-26-2006 09:00 AM
Levaquin concern? fotomom Lyme Disease 3 01-17-2006 01:57 PM
Levaquin takers? stacey01 Colds & Flu 10 10-04-2004 12:35 PM
Levaquin Chrislynn Allergies 6 02-14-2004 04:57 PM
cortef and levaquin allergy pjw1 Addison's Disease 3 02-09-2003 08:37 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 11:28 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!