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How did your Family doctor respond to you seeing an LLMD??

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Old 07-24-2006, 04:40 PM   #1
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Location: Dayton, Ohio, USA
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cindyx4 HB User
Question How did your Family doctor respond to you seeing an LLMD??

Hello All~

I saw my family doctor today and brought all my blood work and Bowen Lab report. I think my family doc was shocked that I had seen an LLMD. He said he agrees that I have Lyme Disease and he agrees with treating with doxy. He said the longest he would have me on it though would be 3 months. He also said he doesn't understand why I am on Biaxin and Valtrex. I thought I was on those two for a re-activation of Mono but I could be wrong. Do you guys know?

He almost seemed a little ticked that I went to a specialist when I had my initial positive test. He said he can't explain my 2nd negative result but I told him that once I was on doxy I would test negative. He said he didn't know if that was true or not. I don't really know what to think about his reaction. I guess I expected to have some resistance but I was really hoping I wouldn't.

What about you guys?



PS. I got my first "real" doxy sunburn yesterday. I am totally fried. I was up all night with my arms aching from the burn. I even had 45 spf and still burned badly. My hubby pressured me to go to a bike race even though I clearly told him I would burn. He said just put sunscreen on. I exlplained about how I would still burn but he really didn't beleive me. He does now!

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Old 07-24-2006, 07:14 PM   #2
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Location: North Carolina
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Pearlscale HB User
Re: How did your Family doctor respond to you seeing an LLMD??

When I informed my Dr of my LLMD appt he argued with me that I did not need to see a specialist. I did not have lyme. Repeated himself three times. I told him I had the appoint and had previously had lyme and felt I had not gotten rid of it. (From 19 yrs ago) He didn't know I had had lyme and was surprised. Didn't say anything else, except let him know what I found out.

When I took my results back to him, he told me lyme was out of his field. He would leave me in the hands of the lyme specialist. I know he was not please that I went wihout asking his "permission". But you know, I don't care. He had the same attitude I had seen from other drs for years.

Right now, I'm just about fed up with drs and insurance companies. I think the insurance companies are affecting the drs decisions. Sure wish they would walk a day in our shoes.


Old 07-24-2006, 07:31 PM   #3
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mesmall HB User
Re: How did your Family doctor respond to you seeing an LLMD??

Hi Cindy,
My Dr. called the LLMD a quack,and said 3 weeks of Doxy was all that was needed to kill lyme,and that there was no proof otherwise that more antibiotics were effective.His secretary gave me a refferral behind his back.When I started on my antibiotics and felt like I was in good hands,I switched to a co-operative primary who was supportive.I only asked that he not stand in my way of treatment like my previous primary who fought me going on a picc line,and had me chasing symptoms for 2 years.


Old 07-24-2006, 07:39 PM   #4
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KCLyme HB User
Re: How did your Family doctor respond to you seeing an LLMD??

Hi Cindy,

I got really, really lucky in that my doctor decided to become an LLMD in time to diagnose me. He is still learning, but he follows the protocol of and consults with a well-known LLMD.

Maybe you can work with your doctor to help them become an LLMD? At least he/she didn't think your diagnosis was off-base, and depending upon your insurance situation, it might save you a bunch of money.

My doctor hasn't changed his fee structure; so all I have to pay are my co-pays.

I hope your sunburn gets better soon, but you better stay out of the sun! I tan really easily especially on tetracycline, but doxy makes even me burn like crazy. Be careful! Please.

Last edited by KCLyme; 07-24-2006 at 07:44 PM.

Old 07-24-2006, 08:01 PM   #5
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dallasmommy HB User
Re: How did your Family doctor respond to you seeing an LLMD??

My family dr. thought she could cure me with vitamins. I got my referral for the infectious disease dr. through my neurologist, b/c I was afraid my primary would not send me once we figured out that it was Lyme. She told me that if she asked her waiting room if they had my symptoms then she would have a waiting room full of patients with Lyme disease. Regardless, I do not see her anymore and have a very compassionate primary.

As for the doxy, I was on it for more than a year and decided to go to Sea World(Texas) and got a second degree sunburn on parts of my body. Someone here said that wearing sunscreen was like putting water on your skin, because the mechanism that causes doxy to make you suseptible to burning is not affected by the sunscreen. I convinced my dr. to switch me to Amoxicilin and have not felt this good in years. Good luck and be careful.

Old 07-25-2006, 06:37 AM   #6
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cindyx4 HB User
Re: How did your Family doctor respond to you seeing an LLMD??

Thanks everyone.

I've just decided that my family doctor can either accept my decision or not. It's my body and I am the one who has to live with the problems associated with this disease. He will be supportive as long as he is kept informed. He wasn't real willing to read any of the paperwork I had with me explaining dosages and such. I have a feeling he will read up on Lyme and probably the doctor I see too.

I knew it wasn't going to be great which is why I took my husband with me for support. My hubby never goes with me so I am sure my doc knew something was up. Plus I can't seem to remember things so I needed him to help me. I probably look real stupid not know why I am on the other 2 meds. Oh well! I was having a really bad day the day I saw my LLMD and just can't remember.

Thanks again.


Old 07-26-2006, 06:31 PM   #7
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Location: Dayton, Ohio, USA
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cindyx4 HB User
Re: How did your Family doctor respond to you seeing an LLMD??

I have to share something funny going on in my neck of the woods. I just had surgery on my foot and leg a couple of weeks ago. I told my surgeon about the Lyme diagnoses and during my surgery he discussed my Lyme case with the operating room staff. One nurse knew nothing about Lyme disease! My surgeon could not beleive she hadn't learned about Lyme disease in nursing school. Everytime I go in for a follow up this surgeon is so curious as to the protocol I am following. I saw him yesterday and he told me he was talking to an infectious disease doctor in my area about me and the medications I am on. This doctor is interested in following my case as well. They both find me "interesting". I then get a call today from a good friend of mine. Her husband is a PA at the local air force base. He wants to know my protocol, who I am seeing etc. He has a patient who he beleives has Lyme Disease. He said he wouldn't know to look for this if it wasn't for me. He has requested all of my blood work results so he can follow me and learn about Lyme Disease. My best friend tells me that God is using me to educate the people/doctors in my area. I think it's kind of neat!

Oh yeah, I called my dermatologist' office yesterday to inquire about the best sunscreen to use while on the doxy. I have a history of melanoma and I have a very bad burn so I am a little freaked out. Anyway, when the nurse found out I was on such a high dose of doxy she left a message for the doctor to call me. When he spoke with me today I expected to just have him tell me the sunscree to use and get off the phone....I should have known better! He kept me on the phone inquiring about the Lyme, how I found out, asking about my stroke, how I found the doctor I am seeing, about my dosages etc, etc. He told me he is just facinated to learn about this disease. I almost feel like a freak show.

If I can make one doctor aware of Lyme disease then this all will have been worth the struggles I and many others face on a daily basis. Anyone want to come to Ohio and be on display??!!


Old 07-27-2006, 05:47 AM   #8
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janetclarkson HB User
Re: How did your Family doctor respond to you seeing an LLMD??

Thank God for the doctors who still want to learn!

I would love to come to Ohio (if only I could) but I don't think that I would fit into the test tube!

Keep up the excellent work. You are a star.

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