It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lyme Disease Message Board

Lyme again?

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 07-27-2006, 03:45 PM   #1
Join Date: Jul 2006
Posts: 2
andreacw04 HB User
Lyme again?

I was diagnosed with lyme disease about 5 years ago. I lost a lot of weight then that i have since been unable to gain back (5'6 and 105lbs) For the last 8 months or so i have been having sever pain in my hip whenever i walk distances to the point its unbearable (a few city blocks or between classes at college), in addition to my elbow and knee hurting at times (nothing compares to my hip though). I am so tiered i have trouble getting out of bed to write this although i can make myself go through the day. And im so depressed all the time i could cry (not sure if this is related to the disease). Ive had bloodwork done tues am waiting for the results. I am worried my doctor will prescribe me the same medicine (doxycycline) as last time. Last time i was only on the treatment for 10 days and didnt finish the cycle because i felt so sick (the doctor said this was ok). They say that it still shows up in your blood for a while,even after the antibiotics. Is this true? Unfortantly i have to go back to school with a busy schedule, i cant afford to feel as sick as i did with antibiotics last time. Is there treatment options? How do they figure out what stage the disease is? Im worried that the disease was never properly cured the first as im reading here the life cycle is about a month to 6 weeks. What do i do if they reccommend another 10day dose, is there any way to verify that the disease is gone? Just to throw this in there, i didnt get the rash the first time i was diagnosed, and havent ever seen one.

I was reading some more posts when a symptom someone mention rang a bell. When i speak i tend to, not stutter, but rearrange words, and knowing what i want to say, but something else comes out, and just sounding akward. Its difficult to explain, and now that i think of it i dont remember doing before i had lyme. Is this also possibly attributed to lyme?

Last edited by andreacw04; 07-27-2006 at 04:12 PM.

Sponsors Lightbulb
Old 07-27-2006, 04:04 PM   #2
Senior Veteran
Join Date: Nov 2005
Posts: 634
brid HB User
Re: Lyme again?

Hi Andrea, Sorry Ou Are Not Feeling Well... You Took Doxy For 10 Days??i Guess 10 Days Of Doxy Doesnt Kill Lyme Baceria.. Llmd Says 6 Weeks Within One Month Of The Bite..i Suggest You Go To A Lyme Literate If It Was 5 Years Ago, You Probably Need Different Treatment Now... I Take Doxy, Sometimes Gives Me Stomach Upset And I Take Atural 300 At Night And It Works, But I Sugest You See A Lyme Literate Doctor, Good Luck!

Old 07-27-2006, 04:16 PM   #3
Senior Veteran
Join Date: Aug 2005
Location: North Carolina
Posts: 1,247
Pearlscale HB User
Re: Lyme again?

Welcome to the lyme boards. I'm so sorry you're having such a hard time.

How were you diagnosed with Lyme before. Blood Test, Clincal?

I was diagnosed 19 yrs ago, had all the symptoms (had blood test done which later came back positive) started on doxy. I was on it a few days and ended up at ER. All my symptoms had gotten worse and I had broken out in a rash. The ER DR said I was having a reaction to doxy. He took me off. A week later was back to see my PCP and was back on meds for 10 days. Most drs just don't understand lyme and use outdated protocols.

I know now that was not long enough and I was also infected with Babesia, Mycoplasma, Bartonella (the ones we know about)

My advice to you is find a LLMD. It is good that you have already sent blood work. But most labs are not accurate. Igenex is the best. Lyme is a clincal diagnose. Let us know what you find out. Were you also tested for the Co-infections? Your thinking and speaking problems can definitely be lyme related.

Are you familiar with Herxs. Detoxing.

I have been in treatment since last fall and can say I'm beginning to see improvement.

You are a strong person. Going to school with all the pain has to be difficult. But that strength will see you though.

I will keep you in my prayers.

Last edited by Pearlscale; 07-27-2006 at 04:20 PM.

Old 07-27-2006, 04:31 PM   #4
Join Date: Jul 2006
Posts: 2
andreacw04 HB User
Re: Lyme again?

I really know nothing about the tests. I was 14 at the time. I just went to my peditrican, as ive done this time. I have no idea what half the words you are saying are, but they dont sound pretty....heh. Are they other bacteria? Is there anyway to be sure of lyme so i dont have to feel like a hypochondriac? I just wish there was a definitive sign besides the rash (which i never had).

Last edited by andreacw04; 07-27-2006 at 04:34 PM.

Old 07-27-2006, 05:12 PM   #5
Senior Veteran
Join Date: Jan 2002
Posts: 5,799
ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
Re: Lyme again?

Hi Andrea, welcome to the board!

I am sorry you have been so sick. As was stated, ten days of treatment is never long enough for Lyme disease, and it sounds like you did not even take it for ten days. You were not treated long enough initially. Although a bullseye rash is a definite sign of Lyme, only about 50% of people who have Lyme ever get a rash.

Below is a Lyme disease symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

Are you aware of the Jarisch-Herxheimer Reaction (herx)? Often, when people who have Lyme take antibiotics, their symptoms become worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel sicker. It can be very scary when it happens, but it is a good sign the antibiotics are working. This may have been why you felt bad on the Doxy.

It is very important to see a knowledgeable doctor. No test is completely reliable, and results can vary by lab. Many doctors do not understand Lyme and treat with outdated protocols. Besides Lyme, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected, and it may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. If you post where you are located, we can tell you of the closest doctors we know of.

Hang in there okay? With proper treatment you can get better.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Undiagnosed Lyme & took a 5 day ZPAK wdiguy Brain Tumors 6 03-22-2009 09:22 AM
Neuro Dx with demylinating disease of cns from lyme disease. Pearlscale Multiple Sclerosis 3 03-09-2007 06:35 PM
Lyme relapse questions CrazyTom Lyme Disease 6 01-13-2007 06:39 AM
upset- saw primary care dr- he's not sure lyme- thinks I have power to heal myself!! sickandconfused Lyme Disease 20 10-03-2005 04:58 AM
Me and my Lyme Looking for some Help! dealer1111 Lyme Disease 18 11-14-2004 11:56 AM
Missed Lyme diagnosis? Could use your input, please ~ Thanks! Peeps Lyme Disease 7 09-07-2004 11:51 AM
Does a Lyme Disease infection ever go away by itself? JamesII1984 Lyme Disease 10 08-24-2004 04:51 PM
Do I have Lyme-Confused rockland Lyme Disease 3 10-18-2003 07:50 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 12:25 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!