It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lyme Disease Message Board

cotton wool-eyes

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 08-21-2006, 12:12 PM   #1
Senior Member
Join Date: Oct 2004
Posts: 167
cotton wool-eyes

Hi everyone,
Just returned from eye specialist because I have been having increased floaters and eye pain times 1 week. He said that he sees cotton wool exudates and did a 1 hour stain test and angiogram. I will get the results next week. States this is called Retinal vasculitis or retinal vascular disease with nerve involvement. I will hear next week what to do about it.
I have Lupus and am in the works to get tested for Lyme with IGenex (waiting for ins to approve). The lyme may be the infectious source causing Lupus! The interesting thing is that this specialist is the first doc in US to diagnose "Lyme eye". He said that my eyes look like either Lupus or Lyme.
Anyone with Lyme have the same eye problem?

Last edited by LMHART; 08-24-2006 at 05:52 AM.

Sponsors Lightbulb
Old 08-21-2006, 01:16 PM   #2
Senior Veteran
Join Date: Jun 2005
Location: MN
Posts: 686
Roman77 HB User
Re: cotton wool-eyes

hi leslie. first let me say i'm glad to hear that your doc is really on top of things, that is such a nice feeling to have i'm sure. i'm very surprised to hear that he was the first to diagnose lyme eye, i'm impressed. wish the first docs i'd seen were that with it.

anyway i just wanted to say that yeah, i have all of the eye stuff. that's how most of my lyme stuff started. i lost vision in both eyes one morning about 2 years ago, prior to that i'd had pink eye month after month for 5 months (never had had it in my life till then!)...and docs said it was a bought of optic neuritis which led them to think ms. but it was lymes. and now i have tons of clear and also black/dark floaters, specks. they are always dry and crusty like and very itchy. plus looking out of my eyes is like looking through a staticy tv screen and it jiggles all around on me. very unreliable and filled with double images sometimes and flashes of light. not to mention the photophobia. yet for any of my docs that i have seen for my eyes, they cannot "see" anything physically wrong. at this point my llmd believes that much of this is from the severely high levels of toxins in my body and also from the current lyme as well, plus due to the lesion in my brain from the lyme.

so yeah you're not alone. i hope if you have lyme too that after treatment you will see dramatic improvements in your health and with your lupus. keep us posted on your test results.

"Be joyful in hope, patient in affliction, and faithful in prayer." - Romans 12:12

Old 08-21-2006, 01:33 PM   #3
Senior Member
Join Date: Jan 2006
Location: AR
Posts: 141
cind68 HB User
Re: cotton wool-eyes

You might want to read my other post on dry eyes. Yes, I have always had lots of eye pain and the floaters? I honestly thought my entire life EVERYONE had them. I used them as entertainment in school finding one and following it around....just trying to focus on one. Simple amusements.

For what it's worth I was also diagnosed with Lupus prior to LD and fit all the tests, etc. I suppose I could say I have Lupus (and numerous other diseases I fit as well) but I personally believe the root of these to be Borrelia in one form or another.


Old 08-23-2006, 01:52 PM   #4
Senior Member
Join Date: Oct 2004
Posts: 167
Re: cotton wool-eyes

Hi there,
So sorry to hear that you guys have eye involvement. That's pretty tough to deal with. I was lucky to get a good doc right away.
I went to an infectious disease doctor who was really nice and I think she thinks I am crazy and pulling at strings. She is going to research things and give me her opinion. She seemed really smart, but I don't think that she has too much faith in LD with a negative Elisa test. She said it should be reliable (and the lab should be OK). So, I will see what happens.
I will read other posts from you guys and absorb as much info as possible. Thanks so much, it's nice to hear I am not alone with this scary eye stuff.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Wear Wool Socks Pens'nChalk Multiple Sclerosis 3 03-10-2008 05:38 AM
How can I remove cat allergens from a wool rug Mindy 34 Allergies 2 10-18-2007 08:44 PM
cotton gloves or silk gloves satine Beauty & Cosmetics 4 04-29-2007 08:14 PM
Cotton wool brains!!!!!!! joblix Depression 2 04-05-2007 08:39 AM
I stupidly stuck cotton bud in ear - bit worried now... Katkin Inner Ear Disorders 3 04-06-2005 12:13 PM
Add this to my list of problems.. joebloggs2 Restless Leg Syndrome 6 11-28-2004 09:09 PM
Organic, 100% cotton sheets cause heart arrhythmia. Machaon Environmental Disorders 11 12-30-2003 08:46 AM
Allergies to Wool Rugs and Dust Mites CONCERNED20 Allergies 5 12-05-2003 06:38 AM
Help! Wet cotton ball feeling in throat... Paksenarian Open to All Other Health Topics 3 03-13-2003 06:58 PM
Wool UnderQuilts like "CuddleEwe" scbagrrrl Fibromyalgia 7 08-03-2002 11:02 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 07:25 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!