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  • Vision problems with lymes

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    Old 02-18-2007, 09:20 PM   #1
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    kyle1 HB User
    Vision problems with lymes

    Hello Everyone,

    I have had Lymes related symptoms for three and half years now. I was wondering if anybody on here has had vision problems like, light sensitivity, double vision, and just a sense of your vision getting worse and prescription glasses dont work. My eyes are getting worse by the day and I can't convince a Doctor to treat me for lymes because my blood work isn't showing a positive. I have been through more test in the last 3 years than I care to remember but I'm convinced I have lymes just because of my symptoms. The doctors are leaning towards MS but I just don't think that it is. I have a list of things going on with me right now and these stubborn doctors just won't listen. Also my vision is really bad when I look at a computer screen, or stop lights on the road are all doubles to me. I have loss of horizontal gaze and nostigmus,dizziness, memory loss, achey bones, and the list goes on. So if anybody on here has vision problems because of lymes please righ me back and let me know because I would like to know if this is because of lymes.


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    Old 02-19-2007, 12:13 AM   #2
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    ShanghaiSD HB User
    Re: Vision problems with lymes

    All kinds of vision related symptoms are common and normal for Lyme disease.
    Change docs, get tested by IgeneX.

    Old 02-19-2007, 06:49 AM   #3
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    yesmetoo HB User
    Re: Vision problems with lymes

    Hi kyle1,
    Oh my, YES!
    When I had Lyme disease I went for 14 months without treatment because I couldn't get a doc to Dx me. I was in the Late stage of Lyme disease when I was finally diagnosed. I lost the vison in my right eye. They thought I had MS at first because of other symptoms like loss of muscle control, then later they thought I had a brain tumor. No, it was all related to Lyme disease. Igenex Labs is a good place to start.
    You know your body better than anyone. Be persistent.
    I hope you find a good doctor ASAP.


    Old 02-19-2007, 07:04 AM   #4
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    Re: Vision problems with lymes

    Yes my perfect vision was totally affected!!! Those bacterias don't care where they go...eyes, brain, bones, muscels...ect...ect...

    Might be a Great idea for you to post a new thread where you live and ask for a LYME LITERATE MEDICAL DOCTOR IN YOUR AREA! And get yourself there as soon as you can!

    When I was extermely ill and knew I had been bitten ...the vet I went to said sounds like Lyme to I started looking into it...and couldn't get ANY MEDICAL DOCTOR TO HELP ME, cause by then all my test would come out negative...I had no idea about these boards and didn't know anything about a LLMD...if I had of it would of saved me from so many days of frustration...and saved me 20 years of a life time trying to get well...

    Good Luck to You!!!

    Old 02-19-2007, 01:34 PM   #5
    Join Date: Feb 2007
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    Greenguy HB User
    Re: Vision problems with lymes

    I am at a loss for words right now. I have the same exact problem with my eyes, among other things. Anything that emits light, a computer monitor, a street lamp, etc, has beams of light run down it vertically, or a ghosting/double of itself. It is hard to even use my computer, or watch T.V. most of the time.

    I also get the double vision. It is like a ghosting of what ever I am looking at hovering right above it. I have been to 4 eye doctors, each of them giving me a different excuse. I have tried to get used to it, but it is very annoying and hard to live with. I really hope you can find a good doctor. I came to these boards very recently, and listed this same problem in my post as well. It is no coincidence.

    Old 02-19-2007, 11:45 PM   #6
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    kyle1 HB User
    Re: Vision problems with lymes

    Hello again everyone,

    I first want to thank everyone who has posted here with good valuable info. I wish I could get a doctor to treat me but I have hit dead ends everywhere I g have been and believe me I have been to every doctor inmaginable. The sad thing is I know I have lymes and I can't get them to treat me and my life is falling apart everyday. My visoin problem is just one of the many things that are going on with this illness but it's the most annoying. I wonder even if i get treatment will my eye problems get better so i can start getting on with my life.

    Old 02-20-2007, 06:10 AM   #7
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    ShanghaiSD HB User
    Re: Vision problems with lymes

    Go out of state, go to see a LLMD! Expensive but will be the best thing you have done or can do for your life. LLMD = Lyme Literate Medical Doctor.
    I know how hard is to travel, I have to travel across Continents to see a doctor!

    Old 02-21-2007, 07:44 PM   #8
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    Re: Vision problems with lymes


    Yes, Lyme can cause a myriad of vision disturbances. I am assuming you've been to an opthamologist, did you discuss the possibilty of Lyme with them? Lyme produces many other symptoms, check some of Ticker's posts to view a list of symptoms.

    There has been a great deal of controversy over the diagnosis and treatment of Lyme disease, with patients and a group of Lyme literate doctors on one side, and certain elements of the medical establishment and insurance companies on the other. If you do a bit of reading, you'll see what I mean.

    Your best bet is to be evaluated by a Lyme literate doctor. Be aware that just because a doctor is an infectious disease doctor or claims to be a "Lyme specialist" does NOT mean that they are Lyme literate. The best way to find a competent Lyme doctor is through other patients who have had positive experiences and have received successful treatment.

    Find a Lyme support group in your area, you do NOT have to have a diagnosis to go, they are a wonderful source of support and information and may well be able to steer you in the right direction. Many people, myself included, have had to travel out of state to find competent care for Lyme disease. This is well worth the time, money, and hassle, and you will save in the long run both your finances and your health to go to a competent doctor from the beginning. Good luck.

    Last edited by TINUVIEL; 02-21-2007 at 07:45 PM.

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