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    Old 06-20-2007, 09:41 AM   #1
    Laura B
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    Bulls Eye Rash

    A little over a year ago I started to lose 25 pounds within a month because I suffered from severe loss of appetite. Gastroentologist (sp?) did tests, found nothing wrong, my doctor did complete lab test, nothing wrong. I'm able to eat now but still have no appetite, but I'm holding my weight. I also suffer from daily fatigue. I also get short episodes of trembling hands now and then.

    I looked around at the healthboard and read about the Bulls Eye Rash. I don't exactly when, but about 1 or 2 years ago I had such a rash on my inner thigh, at the time I was wondering what that was, I thought maybe a spider bite, I was a little worried about it but it did go away so I completely forgot about it until I read this board. I told my doctor, he sent a blood sample to a special lab for Lyme disease.....******* in North Carolina....
    The test came back negativ.

    Now I'm wondering, is it possible NOT to have lyme disease even if you had the bulls eye rash? I don't have all the symptoms people list, just mostly daily fatigue and no appetite.
    I live in West Palm Beach, Florida and I'm sure we don't have a lyme specialist around here. By the way, the lab test was $253.oo and Medicare did not pay for it.
    Laura

    Last edited by Laura B; 06-20-2007 at 09:46 AM.

     
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    Old 06-20-2007, 01:25 PM   #2
    ticker
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    Re: Bulls Eye Rash

    Hi Laura. A bulls-eye rash is a definite sign of Lyme disease. The rash alone merits treatment.

    The rash is only one possible symptom. The sooner Lyme is treated the better. No Lyme test is completely reliable, and results can vary by lab. It is important to be tested for all the co-infections by a Lyme lab such as IgeneX in Palo Alto, CA. It is estimated that 60% of people who have Lyme are co-infected.

    Lyme affects people differently, and you can have any combination of symptoms. They will get worse if left untreated.

    There is a Lyme doctor in Temple Terrace (near Tampa) named Dr. Michael Cichon. I believe a couple of members here see him.

     
    Old 06-23-2007, 12:57 PM   #3
    Laura B
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    Re: Bulls Eye Rash

    Thank you, Ticker
    I doubt if my doctor will send out for another lab test. Where can I find the exact address of the Igenex Lab in Palo Alto? Just in case. You mentioned a lyme specialist near Tampa. That does not help me, I'm a senior on a fixed income and can't afford to travel around for doctors and treatments.

    So, if my doctor sends out a second blood test and if it comes back negative, I guess he would treat me with antibiotics, and I don't think that is a good idea, when he sent out my first blood test, he had to look in a book for a lyme lab, he said this is the first blood test he ever sent out for lyme, and he's been around for 30 years!

    Life has been miserable for me for over a year now, chronic fatigue and extreme loss of appetite, it's an ordeal to eat. And I'm sure I have Lyme, I definite had that red rash with that white bulls eye in the middle at least a year ago.
    Laura

     
    Old 06-23-2007, 01:19 PM   #4
    alortz45
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    Wink Re: Bulls Eye Rash

    Laura hi, ia wa reading this article and all i can say is try to see at least and
    infectious disease doctor i was just diagnosed last week by my regular doctor
    on a lymes titer test or elisa samething and i also live in westpalmbach and i am going to see a infectious disease doctor that nows somewhat about lyme

     
    Old 06-24-2007, 07:28 AM   #5
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    Re: Bulls Eye Rash

    Hi Laura....

    Not all of us are lucky to show positives when we have Lyme or other co-infections...

    Your doctor SHOULD go on your symptoms and the fact that you had a rash...You were one of the lucky ones that had a rash...IF it comes back take pictures of it ...IF your doctor will not treat you...then find one that will!

    You definately need to be treated! Your doc sounds as though he knows nothing about lyme. But this is your life and your body...LOOK SOMEWHERE ELSE!

    Stay strong....





     
    Old 06-24-2007, 11:17 AM   #6
    Laura B
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    Re: Bulls Eye Rash

    Alortz, I agree that I should also see an infections disease doctor. If you find one in the West Palm Beach area, please post his name on this thread, will you?
    Jojo, can a regular doctor treat you for lyme disease? I thought you have to see a specialist in Lyme disease, which I'm sure there is none around here in the West Palm Beach, FL area.
    Laura

    Last edited by Laura B; 06-24-2007 at 11:19 AM.

     
    Old 06-24-2007, 11:27 AM   #7
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    Re: Bulls Eye Rash

    Hi -

    My internist has been agreeable to use the aggressive protocol for treatment that Ticker has posted frequently and also to order the IGENEX lab tests for me. I provided her with the web addresses of these doctors and for the lab so she could read for herself. Dr. Joseph Burrascanno is the doctor whose protocol we are following.

    I've heard from folks here that many infectious disease doctors are woefully out of touch with Lyme. It is common for doctors to know of the CDC (Center for Disease Control) standard of treatment and that is regarded by Lyme Literate doctors as being inadequate and therefore ineffective.

    Wishing you well! Barbara
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    Old 06-26-2007, 08:20 AM   #8
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    Re: Bulls Eye Rash

    Hi Laura....

    IF you go to a regular doctor or and Infectious disease doctor I do wish you luck on getting the proper treatment...many doctors DO NOT want to put their necks and licenses out to help a pateint....

    I would do what Barbara has done to maybe help you along the way...

    You need help. Lyme can put you in a wheel chair or mental ward if not treated...don't mean to scare you...but I went mis-diagnoised for many many years...as ALOT of other people have on these boards...

    Please find a way to get to a LYme doctor...do you have any friends or family that can drive you there?

    Keep us posted on how your doing okay?

    Hugs to you...


     
    Old 01-11-2008, 02:53 PM   #9
    Laura B
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    Re: Bulls Eye Rash

    It's about two years ago that I had that bulls eye rash. I also had two blood tests for lyme, at different labs, both negative. As written by me above I suffered with severe fatigue, weight loss, trembling hands, no appetite and more, and I had no treatment for lyme. I did see a infectious disease doctor...who did the second western blot and another blood test.....which came back negative and he said having this bulls eye rash does not necessarily mean I have lyme disease.

    WELL, after suffering over a year with all these symptoms and did not get any treatment for lyme, I started to feel better around July 2007. It's now January 2008 and for the last five months I feel good, the daily extreme fatigue is gone, I have my appetite back, my hands don't tremble anymore and I'm gaining some weight back.
    My question is...is it possible I had lyme and my own antibiotics killed it off? I definately had that bulls eye rash, big and red with a round white spot in the middle. Is someone out there who had the rash and all the bad symptoms and got better without treatment?
    Thank you.

     
    Old 01-11-2008, 07:22 PM   #10
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    Re: Bulls Eye Rash

    Laura,

    When I read your post I thought how much it sounded like me. I live in Maryland now. Was living here and in March decided to move near Okeechobee to be near family. Do not know if it was from the stress or what but apparently my lyme had not been treated properly before and within 6 weeks I lost around 25 pounds. Started being tired all the time and had constant head shakes that made me look like I had parkinsons.

    A couple of years before I had a small rash on my arm and thought it wsa from a spider bite. never was tested until 2 years later when I woke up with numbness in my face. After numerous MRI and Cat scans they finally did blood test and I was shocked to see I had lyme. I went throught the normal 4 weeks of doxy and was told that was it. Then about 6 months later we made our move and my life started falling apart.

    I moved back to MD between my health issues and my daughters (she is diabetic and has rheumatory arthritis and the humidity made her worse). I see a specialist here & have been on oral abx since June from him. At the end of this month I am suppose to go on IV.

    Definately check things out. They only get much worse and harder. My husband tested negative with the western blot and then we paid to have the igenex test and one band came back psotive and one inconclusive so we are not sure yet what is going on.

    Good luck and I know how hard it is down there to find good doctors, especially with lyme. The one doctor I seen there literally laughed at me and told me once I was treated I never needed to be again. He did not want to do the test either but was shocked to see more bands were positive than before.

    Tammy

    Last edited by fernee; 01-11-2008 at 07:38 PM. Reason: change mistake typo

     
    Old 01-11-2008, 09:42 PM   #11
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    Re: Bulls Eye Rash

    Hi Laura. I am glad you are feeling better.

    From what I understand, a bulls-eye rash is a definite sign of Lyme. The rash alone merits treatment.

    No test for Lyme is completely reliable, and results can vary by lab. On the Western Blot, the CDC requries several bands to show for it to be positive; however, many people who have Lyme do not have this many bands. Lyme doctors often look at which bands show. Some are specific for Lyme.

    Lyme symptoms can wax and wane. Sometimes people can keep an infection at bay until their immune system becomes suppressed (illness, accident, divorce, etc.). Then symptoms come out. The sooner an infection is treated, the better. Not to scare you, but some people were infected for years before getting treated.

    You may want to consider getting evaluated by a knoweldgeable doctor who can run the proper tests. At least then you will know.

    I hope you continue to be symptom free!

     
    Old 01-12-2008, 01:44 PM   #12
    Laura B
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    Re: Bulls Eye Rash

    During the year I felt so sick, I seen many doctors, much blood was taken, twice sent to different lyme labs. Many other tests made. I really ran around trying to find out what was wrong with me. Now that i feel okay and normal again, I can't keep on going for tests! The infectious doctor who told me that that rash does not necessarily mean I had lyme, is a very well know doctor here. About 5 years ago we had an anthrax (sp) problem with an office building and he was the one they called to treat the patients. It was a big problem, much reported in the news. So I'm sure he knows what he is talking about.
    Like I said, I'm feeling fine now, even when I had the rash I felt okay for almost a year, only when I searched online to find out what could be wrong with me did I run across the bulls eye rash on this site, therefore I though maybe I have lyme. But maybe it was some other bite, maybe a spider? It was big and red and the middle was a round spot with regular skin color.
    Thank you for your replies. But maybe some people get better without treatment?

     
    Old 01-12-2008, 07:00 PM   #13
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    Re: Bulls Eye Rash

    Laura, I hope you continue to feel better.

     
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