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-   -   Is there a conspiracy to prevent proper treatment? (https://www.healthboards.com/boards/lyme-disease/512032-there-conspiracy-prevent-proper-treatment.html)

DavinoPA 06-28-2007 04:44 PM

Is there a conspiracy to prevent proper treatment?
 
Very disheartening...

sleeperwoken 06-28-2007 06:22 PM

Re: Is there a conspiracy to prevent proper treatment?
 
Sometimes it seems that way, doesn't it? Money really drives this world, and when the drug companies, insurance companies, healthcare system, and the government all have their own motivations stemming from money, political pressure and the potential this disease has to be very expensive and/or very profitable depending on which side you stand on, it really puts some strange twists on what takes place.

For example, long term antibiotics can be outrageously expensive for insurance companies, especially if they actually acknowledge the number of people who truly have lyme. They are going to fight that to the very end. On the other hand, drug companies love to make new medications that cost tons of money, but they make so much more if we just keep treating the myriad symptoms rather than address the root of the problem. Why deal with lyme when you can tell people they actually need to treat restless leg syndrome, depression, raynaud's, hashimotos, addisons, erectile disfunction, insomnia, etc. and take a separate medication for each one for the rest of your life. Of course, we actually do have all those things, but they are not diseases, they are symptoms.

And then there's the government. I'm not anti-government by any means, so don't get me wrong. But money, lobbyists, and the small but powerful minority are what moves them, and they are not going to pour their time and research into a disease that is "limited to a few towns in Northeast Connecticut." And as long as they keep believing that, we are not going to get very far.

Look at all the lies the doctors still believe. Some say the tick has to be imbedded for at least twenty four hours, even though that has been proven time and again not to be true. Some say that you cannot pass lyme to your unborn child, but Dr. Jones (the leading pediatric lyme doctor in the country) has seen over four hundred cases just in his own office of children who were born with it. Some doctors still say that if you don't get the rash, you don't have lyme. Or they believe that you can get better with a week of doxy, and if you're not better you must have something else.

Then you go home with this sickness and you say the doctors must be wrong, and everyone else says but he's the doctor, so now you must be the crazy one. And the prozac, paxil, zoloft prescriptions start.

Conspiracy? Probably not. Problems? Absolutely. After so many decades living with lyme I know one thing, it's very hard to get well if you don't keep you brain on, pay attention, and be your own advocate.

Bill S 06-28-2007 06:50 PM

Re: Is there a conspiracy to prevent proper treatment?
 
The situation is very reminescent of the early days of HIV/AIDS, where there was ignorance, greed, and apathy aplenty. The insurance companies just want us to go away (but please continue to send in your premium checks), the drug companies want us to be on maintenance meds for the rest of our probably shortened lives, the docs only believe what they read in the Major publications (which are controlled by the very docs who have vested interests with the insurance companies and control what information goes mainstream).

Plus you have a very few docs who give a damn and risk being persecuted in a Salem witch-hunt by the State medical boards (suitably goaded by the insurance company lackeys).

Frankly I wish some MAJOR Hollywood types would get the disease so we can get some really good publicity. We otherwise have about zero chance against the insurance companies and their lackeys dictating "standard and proper" treatment.

itsmylife 07-17-2007 06:35 PM

Re: Is there a conspiracy to prevent proper treatment?
 
[QUOTE=Bill S;3070789]The situation is very reminescent of the early days of HIV/AIDS, where there was ignorance, greed, and apathy aplenty. The insurance companies just want us to go away (but please continue to send in your premium checks), the drug companies want us to be on maintenance meds for the rest of our probably shortened lives, the docs only believe what they read in the Major publications (which are controlled by the very docs who have vested interests with the insurance companies and control what information goes mainstream).

Plus you have a very few docs who give a damn and risk being persecuted in a Salem witch-hunt by the State medical boards (suitably goaded by the insurance company lackeys).

Frankly I wish some MAJOR Hollywood types would get the disease so we can get some really good publicity. We otherwise have about zero chance against the insurance companies and their lackeys dictating "standard and proper" treatment.[/QUOTE]

Dead on, I totally agree. I don't wish this disease on anyone, but like many of the other diseases, this one needs some hollywood publicity. I know that Michael J Fox claimed he was bitten by a tick and infected with Lyme before he released he had Parkinsons, but to be totally honest, I think he could very well have Lyme Disease and Coinfections and even he could have been steered in the wrong direction.

TropicalTrace 07-18-2007 11:11 AM

Re: Is there a conspiracy to prevent proper treatment?
 
nppuzzeled,

While ideally medical tourism is a good idea, I think that it fails when it comes to some diseases. I live in an area in Asia that is pushing medical tourism and after 7 months of doctors over there not knowing what I had, I got on plan back to Canada (same healthcare systems as in the UK) and found a llmd that would treat me. If it is hard to find lyme knowledgeable doctors in north america or europe, I would think it is near impossible to find someone in more tropical climate where lyme is almost of unheard of to treat you properly.

Tracy

KeyLyme 07-19-2007 12:23 PM

Re: Is there a conspiracy to prevent proper treatment?
 
Well, until Paris Hilton gets bit by a tick, there probably won't be much publicity for our cause. Shame how the world is...

stasis4 07-20-2007 02:11 AM

Re: Is there a conspiracy to prevent proper treatment?
 
Hey Tracy, ur point is a very good one...if lyme is unknown in Asia , how could they treat it ? But it still might be a good option for someone running out of options, if done this way :

You can ******** the treatment protocols being followed by ILADS ( the org that has been founded by llmds in the US), and u can take along with u books on lyme treatment to countries such as in Asia (of which I have experience) ...There, neurologists and other specialists can administer the prescribed meds and keep u under their supervision, with the monthly blood work for liver function etc being done .......Also, the docs can prescribe natural anti- bacteria supplements available locally to go along with the antibiotics....Atleast one will get access to docs willing to treat, meds and i.v would be very affordable and any other types of tests too. .......even in places like the U. S, incase one's doc was willing to treat lyme properly but was not familiar with the disease.......he would have to update his knowledge in the same way.....but with the difference that he would stand the risk of being hassled by the insurance company and he would have to fight for the
treatment all along the way.......atleast in these other countries these hassles won't be there and the treatment would be alot more affordable. One could go the extra step and have a monthly phone consult with an llmd in the US or wherever, payable thru credit card so that u could get advice on what antibiotics to take each month while being treated abroad. I did something like that and that is why I recommended the experience.


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