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The Internet ?????????????

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Old 08-25-2007, 07:02 PM   #1
Junior Member
Join Date: Aug 2007
Location: RESACA,GA. U.S.A
Posts: 37
TEARS1998 HB User
Angry The Internet ?????????????

Everyone I talk to (in the medical field) says I shouldn't believe anything I'm reading or being told on the internet!!!(lol)!!! U-all have helped me more than I can tell u & if it wasn't for u-all I'd still be banging my head against the wall! And u-all don't even charge me imagine that!!!!! They (the medical professionals??????????)say u-all are corupting me and putting things in my head At least u-all are trying to help me thats more than I can say for them,their just taking my money while I'm slowly but surely getting worse(by something that's all in my head) hmmmmmmmmmmm!!!!!!!!! Just needed to vent & thought u-all could use a laugh!

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Old 08-26-2007, 06:15 PM   #2
Join Date: Mar 2007
Location: MA,USA
Posts: 420
zandvoort HB User
Re: The Internet ?????????????

Tears- thanks for the feedback. Excuse me if I repeat myself but my last Neuro looking for MS told me it was in my head and I should see a neuro Psych. when I said- ok, who do I go to? he said- I do not know a good one. How is that helping me??????? The guy is from the best hospital in Boston and he leaves me at a dead end? When I told him I was going to an LLMD the only thing he said was, "don't spend too much money". Heck, if the person is helping me get better, it is worth quite a bit! that is more than I got from anyone else! what does he think I should do just hide under my bed?

The thing is, we are listening to people who have BEEN THROUGH it! why would we want to listen to medical professionals that are in denial about the illness we have? The only help we CAN get is from patients who have been through it. Every 'new' disease goes through this in the beginning. But for some reason, this one is going on longer than most. I find it very interesting reading LLMD bio's that say they got interested in Lyme when their spouse contracted it. Y'gotta be thankful they did! Not that we would wish it on anyone!

Last edited by zandvoort; 08-26-2007 at 06:19 PM.

Old 08-26-2007, 06:17 PM   #3
Senior Veteran
Join Date: Jan 2005
Location: NJ
Posts: 1,944
6Blues HB User6Blues HB User6Blues HB User
Re: The Internet ?????????????

howdy tears.

i once heard a very wise person say "take what you like and leave the rest".

i agree that a lot of the medical community is not lyme knowledgable. i saw 9 doctors who did not test me and/or dismissed my symptoms.

i try to educate folks that i meet day to day. for some reason, my illness may come up in conversation and i will try to keep it short and simple but accurate.

i'm always surprised that most (80-90%) of the folks I chat with know someone, somewhere who has had or currently has lyme.

i take a lot of knowledge from here and apply it to my treatment and my life. heaven knows i have much to work on - especially my attitude!!

i am finding that i am growing big chips on both shoulders with the way my supposed friends and family have distanced themselves from me once i became sick. i was so generous, caring, compassionate, a 'giver' more than a 'taker' ... and now i have 3 people who stay in touch with me. that is such a sin it isn't funny.

i am trying to work on my attitude, but that's another topic. if i get started on that one tears, i will never stop!

i present tidbits or suggestions or advice from these boards to my LLMD. sometimes she agrees, sometimes she doesn't.

sometimes i may take the info from here and instist that she prescribe a particular drug or supplement or refer me to a naturopath or herbalist, etc.

it works differently for eveyone. i take what i like and leave the rest. i do try really hard to keep an open mind.

who knows? maybe my LLMD will try something that works for me? maybe i'll read something here that will help me?

knowledge is power. some physicians may offer good information, others may not. it's true that lyme may have a stigma where our symptoms are dismissed away or laughed at (i experienced both).

lucky for us there are medical doctors and naturopaths and herbalists and alternative medicine professionals who believe us and help us.

someday, maybe this year, maybe next year, maybe in three years, you may hear a news story of a crazy blonde woman who handcuffed herself to the doors of the CDC in protest of the poor test quality and unresearched treatment recommendations and lack of funds for research.

well, that lunatic will be me.

peace and health to you,

Last edited by 6Blues; 08-26-2007 at 06:20 PM.

Old 08-27-2007, 06:12 PM   #4
Join Date: Jul 2007
Location: IL
Posts: 86
IL_gal HB User
Re: The Internet ?????????????

You won't be handcuffed alone Mickie! I'm sure there will be many of us crazy lyme peeps right beside you!

Last edited by IL_gal; 08-27-2007 at 06:13 PM.

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