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lyme literate doctors in kentucky

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Old 10-11-2007, 02:56 PM   #1
Join Date: Oct 2007
Location: Ashland, ky
Posts: 2
huffy HB User
lyme literate doctors in kentucky

lyme literate doctors in kentucky

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Old 10-11-2007, 03:40 PM   #2
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Re: lyme literate doctors in kentucky

Hi huffy, welcome to the board!

Do you have Lyme? How long have you been sick?

Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a kowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. No test is completely reliable, and results can vary by lab.

Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.

I do not know of any Lyme doctors in KY. The closest I know of are in PA or MO. If you would like the names, let me know. You may want to see if there are any support groups in your state. They may be able to recommend a doctor.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses (on-line). He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know about Lyme Disease
(2nd edition)" by Karen Vanderhoof-Forschner.

Old 10-11-2007, 05:09 PM   #3
Join Date: Oct 2007
Location: Ashland, ky
Posts: 2
huffy HB User
Re: lyme literate doctors in kentucky

Thanks for the 'git-back'. For the past couple of years I have had EVERYONE (believe it or not) of the symptoms you have listed (of course not including the female ones) and have had every kind of tests from eeg, mri, mra, blood tests covering many possibilities along with 2 Lyme blood tests all coming back negative . I have done a whole lot of research and know that most blood tests , at least the the most common ones for Lyme's usually do show negative results. Not to go into a whole recap of your list of synptoms I have the following :
severe muscles cramps in almost every muscle of my body at one time or another and had 3 EMG test all negative, muscle twitches in my lips , eye muscles and eye lids, many new 'floaters' and frequent flashes of lights and what I call silver white shooting stars in my vision, headaches , all joint aches, occasional skin uticura allergy type welts and 'bumps', hair loss most frequent past year, insomnia, both frequent episodes of constipation/diarrhea, tingling and numbness in extremities,ringing in ears, heart pulse skips and murmurs, dizzyness, occ. mental 'fog', etc.etc just to start with! I do have hypertension which doesn't respond very good at all to medicines of many types, and slight high glucose levels which is pretty well controlled with only an oral pill.
These symptoms , ie a few of them ,started approx 5 years ago and new ones constantly added ongoing up 'till now. I have done lots of research over these years and it seems , at least to my findings , that I stand a very high chance of having Lymes Disease. I live on the edge of a highly deer populated wooded area and have spent much time in the woods.
I have tried to find a possible nearby LLMD but I know they are few and far between. We had a regular family medicine MD in town here several years ago who suspected his daughter had Lymes Disease but all local tests showed negative. He wouldn't give up and finally found a LLMD somewhere else who did find and treated her with the antibiotic method which did help her. He is no longer here and his daughter has moved somewhere across country. I came across this web site and thought I would try to search for a possible LLMD . I do see there seems to be a lot of helpful info and support here so I thank you all for that . I may be lucky and find an MD sometime I hope, It's well worth it even if I have to travel long distance.
Thanks again for your concern , help and info !!!
HUffy ,

Old 10-12-2007, 05:11 AM   #4
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Re: lyme literate doctors in kentucky

Hi huffy. This is a great place for support.

It sounds like you should have this checked out as a possibility.

Check to see if there are Lyme support groups in KY. They may be able to recommened a doctor. Many people have to travel to see one. The closest I know of to KY are in PA and MO. If you would like their names, let me know.

Good luck!

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