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  • have i got lymes ? please help !

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    Old 10-29-2007, 04:48 PM   #1
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    have i got lymes ? please help !

    Hi i have had all the symptoms mentioned below .. do i have lymes?
    it all started about 2 1/2 yrs ago i was out walking in the hill s and dales of yorkshire , it was very hot we walked for a few miles up a hill when i decided we ( me and the wife and 3 kids) should have a rest so we decided to have a sit down , unfortunately for me i was sat in this very course heather stuff
    the following day i had these bites all over my ankles, big red itchy spots !
    no one else had them , just me .
    about a month later i started getting this slight hissing noise in my ear , on the left side , this has gotten much worse lately and now it s in both ears .
    i also have had al the other symptoms listed at one stage or another .
    if this is lymes is there any uk based specialists that i can see ?
    thanks , and sorry for the big post!

    Unexplained fevers, sweats, chills, or flushing
    Unexplained weight change--loss or gain
    Fatigue, tiredness, poor stamina
    Unexplained hair loss
    Swollen glands
    Sore throat
    Testicular pain/pelvic pain
    Irritable bladder or bladder dysfunction
    Sexual dysfunction or loss of libido
    Upset stomach
    Change in bowel function-constipation, diarrhea
    Chest pain or rib soreness
    Shortness of breath, cough
    Heart palpitations, pulse skips, heart block
    Joint pain or swelling
    Stiffness of the joints, neck, or back
    Muscle pain or cramps
    Twitching of the face or other muscles
    Neck creeks and cracks, neck stiffness, neck pain
    Tingling, numbness, burning or stabbing sensations, shooting pains
    Facial paralysis (Bell's Palsy)
    Eyes/Vision: double, blurry, increased floaters, light sensitivity
    Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
    lncreased motion sickness, vertigo, poor balance
    Lightheadedness, wooziness
    Confusion, difficulty in thinking
    Difficulty with concentration, reading
    Forgetfulness, poor short term memory
    Disorientation: getting lost, going to wrong pla

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    Old 10-29-2007, 06:55 PM   #2
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    Re: have i got lymes ? please help !

    Hi jockywilson, welcome to the board!

    I am sorry you have been so sick. I think it is very possible you have Lyme disease since you have so many symptoms and since they started after your trek in the woods.

    It is very important to see a kowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. No test is completely reliable, and results can vary by lab. It is my understanding that the ELISA or titer is the least reliable test and the one most doctors run first.

    Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.

    I have heard of two doctors in the UK who are supposed to be knowledgeable, but I do not know if they are: Dr. Andrew Wright, Complete
    Fatigue Clinic in Bolton and Dr. David Owen in Cardiff. I suggest looking to see if there are support groups that you could contact for a doctor recommendation or for information about these doctors.

    It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses (on-line). He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know about Lyme Disease
    (2nd edition)" by Karen Vanderhoof-Forschner.

    Good luck! Keep us posted okay?

    Old 10-30-2007, 01:37 PM   #3
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    Re: have i got lymes ? please help !

    Thank you for your reply,
    got an appointment today to see the doc , armed with my list of symptoms
    told the doc what i thought, and as expected he was leaning towards anxiety/depression , however to humour me, he asked if i would like to be screened for lymes to which i replied yes, so maybe this could be a step forward? so they took my blood samples now i wait for a week or 2 to get the results , however from what i have read on this site the tests they do on the nhs in the uk are not conclusive, and can show negative, is this so?
    would i be better cutting out the middle man and going straight to the specialist??
    any further usefull info would be greatly appreciated

    Last edited by jockywilson; 10-30-2007 at 02:11 PM.

    Old 10-30-2007, 03:59 PM   #4
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    Re: have i got lymes ? please help !

    Hi jockywilson. Do you know which test is being done? It is likely the titer. From what I understand, this is the least reliable test.

    In my opinion, you would be better off seeing the Lyme doctor.

    Old 10-31-2007, 03:21 AM   #5
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    Re: have i got lymes ? please help !

    Hi jockywilson....

    I'm also considering seeing a LLMD in the uk.... i need to wait for results of mri before i do....can u let me no which one u go to see in uk if u do....cheers

    Old 12-20-2007, 10:44 AM   #6
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    Re: have i got lymes ? please help !

    Hi all , thank you for your posts, and info... bit of an update
    got tested for lymes by the family doc ...came back clear, as i suspected.
    so ive decided to make an appointment to see this lyme specialist from bolton, england. dr andrew wright, not cheap but what the hell, health is more important than money!
    just a couple more questions for anyone out there who has lymes , i have had this tinnitus for 2.5 yrs, it is a lot worse now , is there anyone out there who also has had tinnitus through lyme? i know from the symptom list you can get it through lyme, but is it common to have it continually? also when i go to bed at night , as soon as the tv goes off, i get these flashing lights lights in front of my eyes for a while when the room i in blackness, could this be lyme related?

    Old 12-21-2007, 09:03 AM   #7
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    Re: have i got lymes ? please help !

    Hi There, I have had lymes for 10 years and it seems my symptoms chane all the time. Lately, I have had the ringing in my ears. When I getreally run down it gets worse. I do take a homeopathic remedy called carbo vegetabilis which is supposed to help. I think it does. I have been treated for Lymes and other conditions, but I still have all of your symptoms, I think it 's here to stay.. I have learned to Live within "my box" and just don't over exert. Good luck to you!!

    Old 12-21-2007, 02:48 PM   #8
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    Re: have i got lymes ? please help !

    I've had really bad tinnitus for 5 years. And this is kind of strange, but I can sometimes "control" the type and intensity of the noise by changing the position of my eyes. Some days I hear a rushing, "whooshing" sound all day long. Not fun, but it's amazing how your body adjusts to things. I haven't been diagnosed with Lyme yet, but my doctor suspects it since my symptoms started soon after a bite that gave me a rash. Waiting to see a Lyme specialist now.

    Old 12-25-2007, 05:25 PM   #9
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    Re: have i got lymes ? please help !

    hi j,

    im in the uk my list of symptons huge. mylyme was negative i would be interested to know which specialist you choose.

    there are two/but i also believe there is a doc nhs tooting hospital london

    Old 12-25-2007, 07:03 PM   #10
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    Re: have i got lymes ? please help !

    Hi zorm. I gave you a couple of doctor names in your post at [url][/url]

    Old 12-26-2007, 03:07 AM   #11
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    Re: have i got lymes ? please help !

    Hi J
    I wish you luck with your appointment Bring a list of questions with you and make sure to get a cd-57 test done as well as the western blot test done from a reputable company .You can find out about the testing labs on line Igenex in ca is one There is not a true test for lyme as of yet just different markers and Lyme literate doctors will treat by symptoms and the markers.
    I also had the tindinitis and was really sensitive to light and noise . Even now I have a hrd time going out to loud places or getting wind in my ears makes them hurt more .
    I have beeen treated for lyme for over 1 1/2 years Had it for at least a year and a half before that . Looking back I believe I probably had it for most of my adult life with a really bad bout of it in my early teens .I also grew up the next town over from Lyme Ct where it was originally discovered . In my teens I was told I had juevenile arthritis . Mine was in the chronic stage before I recieved treatment so it has been a long road back I took IV Rocephin for 11 months which help clear up the head stuff buzzing in my ears total confusion and a stroke to boot . Now on IV zithromax and oral Mepron. The only really unpleasant effect I have had is serious acid reflux which I deal with because I know it is worth getting rid of this stuff . Also had my gall bladder removed since the rochephin contributed to shutting it down. I believe it wasn't real great to begin with . Also milk thistle will help protect your liver and magnesium for your joints a good multi vitamin and b complete for your immune system to help boost it I am seeing progress and now the lyme specialist in NY City is focusing on the co-infections Make sure if you go on long term antibiotic you definately need a good probiotic to protect your intestinal tract Very Important
    I wish you all the luck be persistant on your care I had to really struggle to get treated as so many others have
    Good luck

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