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I may well have Lymes!

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Old 12-07-2007, 11:46 AM   #1
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Join Date: May 2006
Location: england uk
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topsy123 HB User
Smile I may well have Lymes!

Hi everyone, had to share this news!...I live in the UK and yesterday I travelled to Cardiff to see Dr David Owen, the Lymes specialist. We had a good long chat and for once I actually felt that someone was listening. He asked me many questions regarding my symptoms, (wich are many), did a full physical work up and so on. I said the symptoms come and then they go and I often feel like a fraud. I said my neuro has discharged me because he just doesnt know whats wrong. I explained that my GP was more than prepared to investigate the possibility of Lymes but the labs refused to do it because I had never been to America, therefore how could I have it. He was truly amazed and appauled at this ignorance and total disregard for a patient who is so obviously ill and has been for over 6 years. He went on to explain that he could do blood tests but they may not be conclusive, but never the less it could still be done. After nearly two hours of talking he tells me he that he thinks its highly possible that I do have Lymes disease, based on my medical history and on going symptoms. He said he would now write to my GP and recommend a course of treatment. He also said that he is not saying a 100 percent it is Lymes disease but if the treatment works then it is a good indication that Lymes is the problem, if it doesnt then I have lost nothing, but tried. Any comments on this would be really helpfull, in regards to, is this the normal way things are done?.....Im kind of used to the conventional way of get the blood tests done and then say if it is or not!...Any response here would be most welcome....Thanks..

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Old 12-07-2007, 02:36 PM   #2
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Join Date: Jul 2007
Location: Boston, ma
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Aimiloo HB User
Re: I may well have Lymes!

Hi Topsy

My LLMD here didn't even run the Lyme scan on me as I was infected 8 years ago. He's just been treating it based on my history and current lab work.

So it's not uncommon to do that.

Sounds like a good start!

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