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New to this: My Lyme Disease Story

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Old 03-11-2008, 09:45 AM   #1
Join Date: Mar 2008
Location: Philly
Posts: 1
guede19 HB User
New to this: My Lyme Disease Story

Hi. I'm new to this board and thought i should share my story.

I contracted lyme disease in 1972. I grew up across the river from lyme, ct.
I was one of those kids that got the terrible arthritis in the knees. For 6 months, every friday, i had blood taken in order to figure out what was going on. Lyme was not diagnosed or discovered until 1975, when i was finally diagnosed. I was never treated. In 1998 i had what i would call a "relapse" with my knees.

I had trouble walking but pushed on through and recovered after a month. Now, i have terrible fatigue, migrating joint pain, night sweats, trouble concentrating etc. After getting out of the bath about a month ago, i saw a round red spot about the size of a half dollar on the back of my arm. In the center was a tiny black speck. Unfortunately, by the time i got to the Doctor a few days later, the rash had disappeared. I requested doxy and he begrudgingly wrote me a script.

My blood tests came back with western blot IgG bands 39, 41, and 58 reactive along with IgM band 23. My doctor says i do not have lyme and i should come off the doxy. I'm very frustrated.

Last edited by Administrator; 03-12-2008 at 07:38 PM.

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Old 03-13-2008, 12:03 PM   #2
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Join Date: Feb 2008
Location: Upstate New York
Posts: 27
Lateralus112358 HB User
Re: New to this: My Lyme Disease Story

These people do not deserve medical degrees.
"You're showing all the symptoms, but the blood test is negative... that means that you have a myriad of other disorders that are causing each symptom seperately..."

I hate doctors.

Old 03-14-2008, 03:13 PM   #3
Join Date: Mar 2008
Posts: 3
DESI73 HB User
Re: New to this: My Lyme Disease Story

Ive had the same experience i finally found a llmd my cd 57 was 18 i was neg for lyme but pos for babesia i have the aca rash he said if you had it awhile it wont show the test arenot accurate but with the cd 57 the way it is its chronic my org doc tested me for lupos and over medicated my thyroid was goanna put me on predisone that wouldve been a disaster you have to find a good llmd doc get a second opinion youll b glad you did

Last edited by moderator2; 03-14-2008 at 03:29 PM. Reason: please do not type in all capital letters

Old 04-05-2008, 05:50 PM   #4
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Join Date: Mar 2008
Location: Fl
Posts: 29
isk8 HB User
Re: New to this: My Lyme Disease Story

Yikes, Find a new doctor! Don't give up!

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