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  • untreated Lyme for 36 years?

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    Old 03-24-2008, 06:55 AM   #1
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    untreated Lyme for 36 years?

    I started becoming ill when I was 4 years old. Spent every summer in Minnesota with grandparents fishing in the woods and lakes, etc. Once I started getting ill with unexplained fevers, weakness, body aches,swollen lymphs, etc. it continued about once a week every month for 15 years. Kind of had a remission till last few years, then got a case of mono last year and have never recovered. Neurological problems and a diagnosis of small fiber neuropathy and fibromyalgia last month. When I was little, my father was in the military , traveled a lot, so was taken to many different doctors. My mother never got any answers as to what was wrong with me. Keep in mind, this was in the 70's. Would Lyme show up now in any tests? No doctor of mine, to include rheumy, neuro, and general have ever even mentioned Lyme, but it keeps popping up and it just makes me wonder. Has anyone else ever had a diagnosis 35 years after a possible infection?

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    Old 03-24-2008, 06:19 PM   #2
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    Re: untreated Lyme for 36 years?

    Oh yeah. It can definitely happen. My LLMD thinks I was first infected 30 years ago (we've traced this back to a case of the "flu" when I was 14). Either my immune system was able to fight off the infection until recently or I kept getting infected and it finally overwhelmed my system.

    It's possible that, if it is Lyme, it might not show on testing. A lot of people who have had lyme for a long time test seronegative. It just means their immune system has stopped producing antibodies to the lyme. After a couple of rounds of antibiotics they're tested again and this time show antibodies.

    Good luck and please keep us posted.

    Old 03-27-2008, 06:07 AM   #3
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    Re: untreated Lyme for 36 years?

    Ticker, how can I find a llmd in Georgia?

    Old 03-27-2008, 02:20 PM   #4
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    Re: untreated Lyme for 36 years?

    Hi baserockermom. I also responded to your other post.

    I do not know of any Lyme doctors in GA. I believe there may be a couple of people here who see one there. Maybe start a new post with "Need Lyme Doctor in GA" and see if they respond.

    The closest doctor to GA that I know of is in Temple Terrace, FL (near Tampa). If you would like his name, let me know.

    Old 03-27-2008, 02:58 PM   #5
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    Re: untreated Lyme for 36 years?

    Thanks, Ticker .

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