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    Old 05-17-2009, 11:54 AM   #1
    floridalyme's Avatar
    Join Date: May 2009
    Location: Milton, FL, USA
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    floridalyme HB User
    Need Aggressive Lyme Doctor & other questions

    I was diagnosed with Lyme disease in early April of this year. Actually pulled tick off me and then developed the E.R. rash as well as other symptoms. After researching Lyme disease, I'm beginning to believe that I've had chronic Lyme disease from an earlier infection. Prior to this recent infection, doctors have told me that I have Chronic Fatigue Syndrome, Fibromyalgia, migraines and chronic sinus infections.

    Just before I this recent incident, I had finally been able to feel better by cutting out sugar from my diet. A week and a half before I saw the tick, I had been on a 7 mile hike in Torreya near Tallahassee.

    Now, even though I've been seeing a Lyme disease specialist in Mobile, I'm worse than before. I went to urgent care the day after I got the rash, started doxycycline at that time, then three days later was able to see the specialist and he stopped doxycline and started me on Diflucan 200 mg twice a week, Metronidazole 250 mg. twice a day and Zithromax 250 mg. twice a day. He also said I had a yeast infection which could have been causing my sinus infection problems.

    The Diflucan wasn't working that great, so after two weeks he switched me to Ketoconazole 200 mg. once a day.

    After a month of this, the prescriptions ran out, but I felt good for two mornings in a row, then started going downhill again.

    After a week with no prescriptions, I had another appointment with the specialist.

    I went over the following research I had found with him:

    From research performed by Dr. Sam Donta, could it be possible I had chronic Lyme disease?

    Research from Donta and Dr. Joseph Burranscano, Jr., both indicate that although azithromycin (Zithromax) worked well against Lyme in a test tube, it did had overall poor results when administered orally unless hyroxychloroquine was added.

    Telithromycin was also stated by Dr. Burranscano to be "so far, the most effective drug of this class, and possibly the best oral agent if tolerated". But liver enzymes would need to be monitored.

    My doctor said that basically, all this may indeed be true, but he had his protocol, it has helped many people, and he would stick to his protocol, and it may be years before I am well. He said that at this stage he did not want to add the hydroxychlorquine. He said the next step would be for me to take Zithromax once a day, and the Ketoconazole three times a week for two months and then see where I was at.

    I do understand that it can take years to get over Lyme, and I know for a fact of one person he cured from Lyme (a young military officer), but that person's treatment was completed different from mine.

    I'm just concerned that I'm going to have to get sicker to the point I may not be able to work (and I simply can't afford this; have already missed almost two weeks from work in the last month), before more aggressive treatment is given.

    I just want to start with the best therapy and that's going to get me the best results as soon as possible.

    Has anyone had good results on Zithromax alone?

    Is my doctor right and the research I've found just wrong?

    Or do I need another doctor and if so, can you PLEASE send me your recommendations?

    I live in the panhandle of Florida. I don't have enough funds to travel to see a great doctor up North on a regular basis, but if there are great doctors who will let you visit in person the first time, and then do follow-ups over the phone or by e-mail, that would be a definite option.

    Or if you just have to see the doctor every few months, that might work as well.

    Thank you so much for any help you can provide!

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