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  • False positive for Lyme because of Epstein Bar Virus?

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    Old 09-26-2010, 04:49 PM   #1
    ajnyc
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    False positive for Lyme because of Epstein Bar Virus?

    I was tested for Lyme disease by a neurologist who soon after left my insurance group. So I saw my primary care physician to go over the results, and he told me everything looked normal. However, when I left the office, I saw my results were definitely not normal.

    Until I get an appointment with a Lyme literate MD, I need help with these results!

    On the Western Blot test, I tested "reactive" to the 41 KD (IGM) band, and also "reactive" to the 41 KD (IGG) band.

    I was "nonreactive" to all the other bands (93, 66, 58, 45), (39, 30, 28) and (23 18).

    I know that band 41 typically is the first band to show up, and that to be positive for Lyme, you need to have 2 of these 3 bands: 23, 39, 41..... or you need to have 5 of the following: 18, 21, 28, 30, 39, 41, 45, 58, 66, and 93. So my test doesn't show I actually have Lyme's disease, I guess.

    However, I am producing anibodies against SOMETHING unusual. What?

    I read that a person can have a false positive to Lyme due to the following: periodontal disease, syphyllis, HIV, Mononucleosis/EBV, rheumatoid arthritus, lupus, or diseases caused by spirochetes.

    Turns out my test showed I tested positive for Epstein Bar Virus, a surprise to me.

    So the Epstein Bar Virus caused me to produce antibodies that caused a false lyme positive on the 41 KD band???

    I've also read about people with Lyme disease having such a compromised immune system that it easily allowed for opportunistic EBV to take hold and invade as well. Ha ha, the chicken and egg dilemma, which came first?

    Anyone with experience with EBV and Lyme?

    Also, I must also add that I got severe adrenal fatigue in spring 09 (low cortisol, low DHEA, low blood pressure), and thought I was possibly bitten by a tick in the summer of 08. Severe adrenal fatigue has a plethora of overlapping Lyme symptoms, and I had to quit working because I was bed ridden, then couch ridden. Still not working, in too much pain.

    As I recently lost my insurance, don't drive, don't have a primary care dr. anymore, and am not sure when I can get to a lyme literate doctor, I would sincerely appreciate some insight.

     
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    Old 09-26-2010, 09:11 PM   #2
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    Re: False positive for Lyme because of Epstein Bar Virus?

    I have EBV and CMV...never did I get a positive from lyme testing. And I was tested plenty of times.

    Had some bands pull up but never had a "true" so called positive.

    I do hope you can get to a Lyme Literate Medical Doctor. They will go on symptoms and not solely on a test result.

    The doctor I see now treats with antivirals for the EBV and CMV ...Thank God for that.

    We are like a sponge for all kinds of bacterias and viruses when our immune systems break down...

    I do wish you luck in finding your answers!

    Jodie

     
    Old 09-27-2010, 04:12 AM   #3
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    Re: False positive for Lyme because of Epstein Bar Virus?

    95% of the population has tested positive for EBV so I wouldn't try to "hang your hat" on that lab result. Further, most Lymies tend to have very high EBV scores.

    Where exactly did you received your testing? If not at a Lyme specific Lab, testing (I think) is a waste of time.

    I've recently heard of some Lyme Labs that are now thought as good, or superior, to Igenex in Palo Alto California. Central Florida Lab is supposed to be excellent and they test for Borrelia, not just antibodies, so you're likely to get a more accurate result. For co-infections, Fry Lab in Arizona is supposed to be the best.

    But as Jodie said, a great many people who definitely have Lyme do not test positive. If it's important to you to have more definitive information, but you also realize that symptoms are more important than tests when it comes to Lyme, then I would suggest the Florida Lab.

    All the best,

    Jen

     
    Old 09-27-2010, 08:04 AM   #4
    ajnyc
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    Re: False positive for Lyme because of Epstein Bar Virus?

    Quote:
    Originally Posted by jojo View Post
    I have EBV and CMV...never did I get a positive from lyme testing. And I was tested plenty of times.

    Had some bands pull up but never had a "true" so called positive.

    I do hope you can get to a Lyme Literate Medical Doctor. They will go on symptoms and not solely on a test result.

    The doctor I see now treats with antivirals for the EBV and CMV ...Thank God for that.

    We are like a sponge for all kinds of bacterias and viruses when our immune systems break down...

    I do wish you luck in finding your answers!


    Jodie
    Jodie, Wow that is interesting that you have both EBV and CMV and never got a complete positive testing for lyme. And you were tested many times. OK, that makes me feel somewhat better!!! I don't want a lyme diagnosis!

    Do you remember what bands you were positive for?

    Antivirals... what are they exactly? I'm allergic to amoxcilin, penecillin, doxy, all meds in the anitbiotic family.

     
    Old 09-27-2010, 08:09 AM   #5
    ajnyc
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    Re: False positive for Lyme because of Epstein Bar Virus?

    Quote:
    Originally Posted by jenj770 View Post
    95% of the population has tested positive for EBV so I wouldn't try to "hang your hat" on that lab result. Further, most Lymies tend to have very high EBV scores.

    Where exactly did you received your testing? If not at a Lyme specific Lab, testing (I think) is a waste of time.

    I've recently heard of some Lyme Labs that are now thought as good, or superior, to Igenex in Palo Alto California. Central Florida Lab is supposed to be excellent and they test for Borrelia, not just antibodies, so you're likely to get a more accurate result. For co-infections, Fry Lab in Arizona is supposed to be the best.

    But as Jodie said, a great many people who definitely have Lyme do not test positive. If it's important to you to have more definitive information, but you also realize that symptoms are more important than tests when it comes to Lyme, then I would suggest the Florida Lab.

    All the best,

    Jen
    Jen, Thanks for your reply... I didn't know that many people tested positive for EBV, and I also didn't know that most Lymies have such high EBV scores.

    The lab I had my Western Blot test done was "Quest Diagnostics" in Teterboro NJ. I don't think it's lyme specific, as I've had blood work drawn for other health issues from this same lab.

     
    Old 09-27-2010, 08:31 AM   #6
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    Re: False positive for Lyme because of Epstein Bar Virus?

    Antivirals such as Valtrex, Valcyte and others. Helps keep the viruses in remission. Yes a big portion of the population test positive for these viruses. But this does not mean they don't harm the body/brain.
    There is a Doctor in Michigan that is a big wig on these herpe viruses.
    There is litature on herpe viruses. And I am not just speaking of the sexual type. There a tons of herpe viruses. Such as Epstein Barr and Cytomeglovirus. We can put them into remission with them becoming active on a off. I had doctors tell me that they were "nothing" to worry about 30 some years ago when I started displaying symptoms. What a bunch of crock.

    Viruses can and do cause heart problems, M.S., Chronic Fatigue, encephalitis, ect ect.

    It would do you good to sit and read up on the symptoms of these viruses.

    I have swelling between my scalp and skull. It has been there for about 11 years now. I haven't a clue what it is. It use to cause me to be way mentally off. The vessels in my head clogged up. So bad that I would have to go to the ER for shots to calm me down.
    (Long story)
    But I suggested to the Doctor/Specialise that I see now, what about antivirals. Within a year I started seeing some improvment. Now when I do too much it causes sore thoarts, weak mussels. brain doesn't work, my lungs get to where I have a hard time breathing... So what is it....

    Lyme, EBV,CMV, or any other of the critters I have accumilated over the years.

    Moral of the story....
    For any of these you need a specialist in bacterias/viruses. The run of the mill every day doctor will tell you that none of these cause your symptoms.

    Be smart and do research, from where you are sitting you can become your own advocate. Knowledge is power. And will help you to find the right doctor. That will not brush off your symptoms as being mental. OR if you are mental what is causing it...
    You should also be tested for Heavy Metal Poisoning. I learned a year ago that I have lead posioning....ahhhh what a little pandora's box our bodies are...

    Jodie

     
    Old 06-28-2011, 04:17 PM   #7
    kwbollinger
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    Re: False positive for Lyme because of Epstein Bar Virus?

    Quote:
    Originally Posted by jojo View Post
    Antivirals such as Valtrex, Valcyte and others. Helps keep the viruses in remission. Yes a big portion of the population test positive for these viruses. But this does not mean they don't harm the body/brain.
    There is a Doctor in Michigan that is a big wig on these herpe viruses.
    There is litature on herpe viruses. And I am not just speaking of the sexual type. There a tons of herpe viruses. Such as Epstein Barr and Cytomeglovirus. We can put them into remission with them becoming active on a off. I had doctors tell me that they were "nothing" to worry about 30 some years ago when I started displaying symptoms. What a bunch of crock.

    Viruses can and do cause heart problems, M.S., Chronic Fatigue, encephalitis, ect ect.

    It would do you good to sit and read up on the symptoms of these viruses.

    I have swelling between my scalp and skull. It has been there for about 11 years now. I haven't a clue what it is. It use to cause me to be way mentally off. The vessels in my head clogged up. So bad that I would have to go to the ER for shots to calm me down.
    (Long story)
    But I suggested to the Doctor/Specialise that I see now, what about antivirals. Within a year I started seeing some improvment. Now when I do too much it causes sore thoarts, weak mussels. brain doesn't work, my lungs get to where I have a hard time breathing... So what is it....

    Lyme, EBV,CMV, or any other of the critters I have accumilated over the years.

    Moral of the story....
    For any of these you need a specialist in bacterias/viruses. The run of the mill every day doctor will tell you that none of these cause your symptoms.

    Be smart and do research, from where you are sitting you can become your own advocate. Knowledge is power. And will help you to find the right doctor. That will not brush off your symptoms as being mental. OR if you are mental what is causing it...
    You should also be tested for Heavy Metal Poisoning. I learned a year ago that I have lead posioning....ahhhh what a little pandora's box our bodies are...

    Jodie
    Jodie,

    My wife is suffering from similar symptoms - enlarged veins along the side of her forehead; along with vein like blotching along the forehead. She also get these tremendous pains at the base of her head. Not sure exactly what is going on. Thought it might be Lyme, but there's nothing positive there.

    Getting back to the vein issue on the head - are you still suffering from this condition; or did the antivirals calm it down?

    Thxs - Ken B.

    BTW: Igenix testing came back with + on band 41 (IgG) and Indef on Bands 31 & 41 (IgM). Wife has been tested for EBV, CMV, MycoPlasma AB Basesia Ducani (WA1) which all showed up positive in the IgG; and Negitage in the IgM.

    Last edited by kwbollinger; 06-28-2011 at 04:21 PM.

     
    Old 06-30-2011, 10:13 AM   #8
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    Re: False positive for Lyme because of Epstein Bar Virus?

    Hi Kw, sorry it took a couple days to get back to you.

    YES I have seen some improvment. The arteries on the right side of my head were soooo hard. My doc has me on nitrocylcerin patches, antivirals, and I on my own am taking Serrapeptase. You can find that at a health food store. Anything that helps clean out the arteries. I do not feel like I have a giant hand on the right side of my head sqeezing anymore.

    My doc whom is a researcher/specialist in the conditions that your wife and I have. Says that bacteria LOVES the arteries. And so do viruses. These critters don't just stay in one place in the body. The do go all over.

    Also testing for lyme is NOT accurate. There are many reasons why. She "can" have lyme and still test negative. Some say even one band is a positive.

    Hope she can find some help soon!

    Jodie

    Last edited by moderator2; 06-30-2011 at 04:28 PM.

     
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