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-   -   Only band 23 positive...what does this mean (https://www.healthboards.com/boards/lyme-disease/822276-only-band-23-positive-what-does-mean.html)

Jamiest 11-08-2010 04:24 PM

Only band 23 positive...what does this mean
 
Hi I am new here to posting, but I read this board a lot. We have been suspecting that my husband has Lyme but aren't certain. After a trip to the RA today he was diagnosed with Psoriatic arthritis. In his blood work results we did see he had tested positive for band 23 on his lyme test. The RA said that he did not feel he had lyme. I just thought band 23 was specific to lyme. Am I missing something here or can something else cause band 23 to read positive or can he be positive with only band 23 showing. I don't want to beat a dead horse but I also don't want him to go misdiagnosed for years either some like I have seen on here, it has been 2 months of hell as it is. Thanks for any input and information in advance.

Jamie

jenj770 11-09-2010 07:12 AM

Re: Only band 23 positive...what does this mean
 
Jamie,

What are your husband's symptoms? Does he recall a tick or other insect bite?

Jen

Jamiest 11-09-2010 07:27 AM

Re: Only band 23 positive...what does this mean
 
Hi Jenn, thanks for responding. He is tell tale stage 2 lyme (at least to us), nuero issues, brain fog, fatigue, etc... we filled out the check list from the ILADS booklet you can get online and he has pretty much everything. We live on a wooded lot and 2 of our neighbors have had lyme. He is a hunter and forever in the woods so it is likely he has been bitten. Of course he never had the rash or if he did we didn't notice it. He has also a ton of blood work that is over all normal. His vitamin D is very low 11.2, and it shows that he has had EBV. I am ok with the psoriatic arthritis diagnosis we just want to know what caused it. Was it from the mono/ebv or is there lyme present since band 23 on the IgM was positive. I will say nothing else showed up on any of the other IgM or IgG tests. I just don't know if we should pursue lyme based on one band. I don't want to let it go any further if it is, but also don't want to drop a few hundred dollars on the test kit from lab in California if something else could cause that band to be positive. Also just to add he has been to neurologist, primary, and now RA who is good with lyme. He did not hide the positive band from Tim but said that he is 99% sure he does not have it. He was kind enough to offer us the name of the ID he works with in treating patients with lyme who will run the test from the lab in CA.

Oh and yet another thing, his primary thinks the neuro issues came from the ebv affecting his cns. He is overall better mentally minus the arthitis which has him walking like he is 100 instead of 30.

Thanks again Jamie

jenj770 11-09-2010 08:00 AM

Re: Only band 23 positive...what does this mean
 
Jamie,

I'm certainly not an expert on psoriatic arthritis, but your husband seems young for this condition. From all the symptoms you've listed, plus living in a wooded area, I certainly would not rule out LD. I had numerous tick bites and never once had a rash, yet I always test positive. Do all your husband's symptoms fit the arthritic diagnosis? If not, you need to look further. Right?

RA and other specialists are trying to be helpful, I'm sure, but so many of us have been down the route of seeing a truckload of specialists and I've yet to find one knowledgeable about Lyme.

Because his blood work was not sent to a Lyme lab I wouldn't rely on those findings. That said, even the premiere labs cannot be relied on for 100% accurate information. Any LLMD will concur with this. But regarding band 23, I've sometimes seen it listed as lyme specific and other times not. See what I mean? I would put the money you would have spent on the test into seeing an LLMD because symptomology is the key and also what LLMDs look at, not just blood tests.

The other issue, and it is an important one, is when did the symptoms first develop? If recently (within 4 or 5 weeks) it is [I]imperative[/I] that abx be started immediately in order to be free of long-term chronic illness. If it has been longer, lyme becomes much more difficult to treat because the "chetes" have now migrated into the tissues and every 4 or 5 weeks they replicate. They have an affinity for the tissues so soon they will have invaded all areas of the body. This is why you see people reporting symptoms with their eyes, ears, brain, kidneys, joints, and the list goes on.

I hope you can find clarity about this so that you can make the right decisions. I wish you all the best and please post again if you have further questions.

Jen

jenj770 11-09-2010 08:11 AM

Re: Only band 23 positive...what does this mean
 
Hi again Jamie,

I forgot to mention this. I wanted to tell you something that I found to boost vitamin D levels because being low in this can also produce some symptoms.

I take a product by Biotics Research called Bio D-Mulsion Forte. This is D3, not D2, which is synthetic and can be toxic in large amounts. 1 drop = 2000 IU. 2 drops = 4,000 IU. If you decide to get it just make sure it is the product with "Forte" on the end as there is another D-mulsion but without the forte. It takes a few months to bring D levels up but, I think, supplementation is imperative if levels are low.

Jen

Jamiest 11-09-2010 02:43 PM

Re: Only band 23 positive...what does this mean
 
Thanks for your info Jenn! I am going to see about those drops and also save up the money to get the test. Hopefully he will get back to work soon once the arthritis flare up is under control. He is mentally a lot better, after a 2 week round of amoxicillan for a sinus issue he had. I know it's not long enough to treat lyme, but am hoping he stays well enough in the mean time. We think whatever the cost is it will be worth the money even if negative for the peace of mind. I would rather nip it in the butt if results are positive now, then wait and him flare up 3 years from now and really have h*ll to pay.

BlaineC 06-02-2011 10:07 PM

Re: Only band 23 positive...what does this mean
 
Hi, I'm wondering the same thing. Just had the 2nd round of testing and got the same result: negative, but presence of p23, which I hear is very specific to Lyme. I don't live in a woodsey area. In fact, I live in Los Angeles, which makes an objective diagnosis even harder to get. But I had a bull's eye rash and, two weeks later, worrisome joint/muscle pain and tingling. My tests didn't SEEM to indicate EBV. But I did have a horrible case of Mono about 5 years ago and I've heard EBV can impact the results. Good luck to you and your husband.


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