It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lyme Disease Message Board

Need some insight - desperate

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 06-08-2011, 10:01 AM   #1
Join Date: Jun 2011
Location: NY
Posts: 95
dganz HB Userdganz HB User
Need some insight - desperate

I had posted before but didn't get any replies... please, I need help.....

Rundown on history....I have been sick since mid August 2010. Come October, I started putting the pieces together on a time line. I was hiking in a heavily deer inhabited area in mid to late July. Within 4-5 weeks after than, I had a large oval looking rash on my lower back. It lasted about a month or so. By the end of August early September I started getting flu like symptoms that progressed to extreme fatigue, tremors, leg and facial twitching, burning in feet, excessive sweating, naseau, shortness of breath, muscle pain/cramping, tingling, numbness, brain fog, dizziness and poor balance, confusion. My Igm only tested postive for lyme band 23, all rest negative and IGG all negative. Infectious disease doctor quotes I do not fit CDC guidelines. I have read much on internet over last 6 months and find all testing for lyme is not always conclusive. Actually, a great % of people who have lyme never test positive on Igm/Igg tests. Also that, symptoms and a bite need to be taken seriously when symptoms are present. The ID doctor is not moved that I was bitten by something, got a rash and then terribly ill and getting worse. He said tests negative and could have been bitten my mosquito.

Please help me.......I read different opinions about reactive band 23. Some say it's specific to Bb and some say it's cross reactive. Also doctor's believe if you are exposed to lyme, you would produce antibody....thank you in advance.

Sponsors Lightbulb
Old 06-15-2011, 11:10 AM   #2
Join Date: Jun 2011
Location: NY
Posts: 95
dganz HB Userdganz HB User
Re: Need some insight - desperate

I am beginning to really realize ID doc's aren't going to help. When I last posted, I had already made appt with a 2nd opinion ID who was trained in NYC on Lyme. Thought I had a chance with him. But nothing...he states he does not believe I have Lyme, all tests negative per CDC, he didn't see the rash and sees no residual mark today, have no antibodies present and only IGM band 23 is cross reactive and doesn't mean anything. He does not think that even though the timing fits perfectly, bite, rash, flu like and then the whole neuro, and all the other items I've posted mean lyme, perhaps something else. My family doesn't know what to make of it and why I am so stuck on possibly having lyme. Discouraging Everyone says to check LLD even if I have to pay out of pocket.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
no such thing as lymes disease in michigan sherri277 Lyme Disease 7 12-27-2011 09:13 AM
Could it be Lyme dganz Lyme Disease 2 06-08-2011 09:13 AM
lyme disease shcasm Lyme Disease 2 02-11-2010 03:31 AM
Lyme story xxxKristinexxx Lyme Disease 11 01-29-2010 04:53 AM
Husband has Hep C and now diagnosed with Lyme ladybugjen3 Lyme Disease 2 09-02-2009 06:33 PM
Started treatment today joewy Share Your Lyme Disease Story 0 05-12-2009 06:03 PM
My story... Jenne Lyme Disease 1 04-15-2009 05:57 PM
trying to work it out Dusty55 Lyme Disease 1 02-10-2009 08:24 PM
My Lyme Story (gather 'round, kids) Lateralus112358 Lyme Disease 1 02-26-2008 09:25 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:20 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!