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my lyme story

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Old 06-05-2012, 09:43 PM   #1
Junior Member
Join Date: Jun 2012
Location: ne georgia
Posts: 42
katnben HB User
Talking my lyme story

Hi all, I am new to the board and wanted to introduce myself. I'm a 46 yr old wife and mother. I have a wonderful husband, beautiful daughter and 2 great step children. I also have Lyme Disease.

I started having trouble in 1999. My vision got totally screwed up and I started seeing double. About the same time I started experiencing the most odd sensations...felt like fleas on me all of the time. Well we had an inside dog, but no one else was bothered. I went for an eye exam which showed optic neuritis. After more attacks and multiple test and expense I was told two things.....1. I tested positive for lyme disease (we had been camping in New England about a year and a half before) and 2. I had possible/probable relapsing remitting MS.

At the time the MS diagnosis scared me worse than the Lyme. I had 28 days of IV rocephin and told that's it. Lyme is gone. Well long story short...nope! It is now 12 years later and I still experience symptoms! Still have the probable diagnosis of MS, because they have not found lesions on my brain, and am told by most doctors the Lyme Disease is cured. I beg to differ on that one. What I'm finding out is that if caught early on, yes...but after it gets into your nervous system (optic neuritis) not so.

So here I am, sitting up at 12:30, exhausted but unable to sleep, being sick of being sick and feeling like a hypochondriac. Like I'm crazy. I hate it for anybody else out there but I do hope I've found someplace where I can be among friends and people who understand.

Nice to meet ya!

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Old 08-14-2012, 12:40 AM   #2
Lyme Girl
Join Date: Aug 2012
Location: Kitchener-Waterloo, Ontario
Posts: 2
Lyme Girl HB User
Re: my lyme story


I am new to the board as well and thought I would say hello. I cannot believe that you have been battling with Lyme as well as possibly MS for 12 years. One thing is true, you must be a strong, strong women. I am 24 and have been on treatment for lyme for 3 months now. I know the feeling like you are going crazy. I just wanted you to know that there are people here who you can talk to about it and can hopefully relate to what you are going through. I find that to be the hardest part about lyme, no one you know can relate, no one really knows what we are going through. It is alright to go a little stir crazy sometimes, just remember that there are people who care.

Last edited by Lyme Girl; 08-14-2012 at 01:02 AM.

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