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JEliz2 01-14-2013 03:18 PM

Spinal tap to diagnose lyme disease

Does anyone know how reliable a spinal tap is in diagnosing lyme disease? (The doctor I was recommended to said its reliable but this seems different than what a lot of people have been saying. She's sending the results to Quest Diagnostics which I've also heard was very unreliable (but which she said was great). Not sure what other tests to do though - I've already had an Elisa and Western Blot test done at Quest which came back negative (except for one band on the Western Blot).

The Dr. said that Lyme disease is unlikely even though I have the symptoms (swollen painful knees, neck stiffness, blurry vision, neuropathy, lower back pain, and forgetfulness/memory issues) because it is rare to have both tests come back negative. I thought lyme disease was diagnosed mainly through the symptoms through. Does anyone know whether being on antibiotics of any kind around the time of having lyme blood tests done could affect their outcome? Thanks, I'm really hoping to avoid a spinal tap since I've already had to have a Blood Patch surgery to repair a lumbar puncture from an epidural.

- Jocelyn

JEliz2 01-16-2013 03:07 PM

Re: Spinal tap to diagnose lyme disease
What's so frustrating is that she is an LLMD. Haven't been able to find another.

lala52 01-16-2013 08:36 PM

Re: Spinal tap to diagnose lyme disease

You must get your blood tested at Igenix.

Your symptoms sound like lyme.

Hope this helps.


JEliz2 01-21-2013 08:39 AM

Re: Spinal tap to diagnose lyme disease
- Thanks LaLa. That is very helpful.

metalrocker 04-24-2013 11:53 PM

Re: Spinal tap to diagnose lyme disease
Spinal Tap is only %20 chance of finding lyme, but when it's found it's %100.

jojo 04-25-2013 07:23 AM

Re: Spinal tap to diagnose lyme disease
[COLOR="Teal"]Any doc that claims they are a LLMD and recommends a spinal tap to detect lyme. You had better RUN the other way. That is the worse thing to do for those of us with lyme.

Before I knew better I had one done. and was laid up for a very long time with a worse headache!

Search out someone else to go to. Any doctor that signs off lab slips from Igenex will do. But seeing a "true" LLMD they will go on symptoms. Testing for lyme is inaccurate. No matter what lab. Igenex is suppose to be the best. But even then can have negative results.

Spend the money and see a doc that deals with lyme and co-infections. It could save your life, and health.


guido15241 05-23-2013 08:22 PM

Re: Spinal tap to diagnose lyme disease
Don't do the spinal tap and speaking from personal experience, . they are unreliable. There is risk involved as well.

Go with Igenex.

Springshower 06-03-2013 10:41 PM

Re: Spinal tap to diagnose lyme disease
my daughter also just refused a second spinal tap based on the low percentage of positive results. She does have a positive test from Igenex (many bands), the conventional medical practitioners are trying to "prove" it's a false positive with a spinal tap despite the symptom history. They unduly place a lot of weight on the CDC negative neglecting to acknowledge CDC's outdated conservative testing or allowing the opportunity to explore patient questions regarding this. Symptom history and clinical expertise should inform the dx ...

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