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  • Is it Possible I have Lyme?? Help!

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    Old 03-04-2014, 08:51 AM   #1
    Ginny0303
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    Is it Possible I have Lyme?? Help!

    Hi All!

    I don't want to bore you with my whole life story because my health has definitely become a lifelong battle so here is the short of it... I was bit by a tick almost 10 years ago now, I found it buried in my leg. I was diagnosed with lyme's based on severe clinical symptoms immediately following the bite (severe joint pain, fatigue, weakness, etc.). I was given 2 weeks of doxy. I have never felt right since that day. I have literally every symptom in the books, which I'll list below, although I have never tested positive for lyme. Until my bloodwork came back 3 days ago. I tested "present-abnormal" for IgM p23 but no IgG. I have been to EVERY specialist that exists in the world for a slew of symptoms (cardiac, rheumy, neuro, Lyme Lit, ID, etc.) only for many of them to patronize me and tell me all my symptoms are due to anxiety (which I'm sure many of you know can be the most upsetting and frustrating part of all of this), or to diagnose me with vague diseases such as autoimmune arthritis and chronic fatigue. Any idea what significance this positive IgM p23 has without another band present? Is this finally a break in the mystery that has become my body?? Any insight would be not only helpful but words can't describe how desperate I am to figure out what's wrong with me! It's a daily struggle of morphing systems that seem to migrate all around my body as if I'm an airport for ailments! As soon as I get a specialist appointment, others symptoms pop up while others go into what seems a remission... Thanks in advance!

    Dx:
    Psoriatic Arthritis
    Psoriasis
    Chronic Fatigue
    Carpal Tunnel
    Mitral Valve Prolapse
    Heart Palpitations

    Symptoms:

    Joint pain
    sensitivity to light
    sweats/chills (intolerance to temp)
    headache
    reactive hypoglycemia
    memory loss
    dizziness
    muscle spasms and jerking
    shooting nerve pains
    blurred vision
    raynauds
    head zaps
    confusion/ brain fog
    extreme fatigue
    sudden muscle weakness
    numbness in extremities
    occasional numbness and drooping on left side of face
    ear ringing
    TMJ
    Emotional lability (literally extreme laughing turning into crying and back inappropriately out of nowhere)

    Recent Bloodwork:
    Iron Serum and Saturation- extremely high while UIBC extremely low
    IgM p23 “present-abnormal”
    EBV- very high
    Strep antibodies- very high
    Vitamin d deficient

     
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    Old 03-05-2014, 01:10 PM   #2
    J0J0
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    Re: Is it Possible I have Lyme?? Help!

    Hi Ginny, Welcome to the board. I am so sorry you didn't have the proper treatment when you started displaying symptoms.

    Two weeks of doxy is not enough.

    There is great information in the Thread above "Lyme Disease Information" that will help guide you.

    You have to many symptoms and labels being put on you. Regular doctors will give you medications to cover symptoms. And as your seeing, not diagnosing properly.

    It would be best to get to a Lyme Specialist.

    Any other questions be sure to ask

    Jodie

     
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    Old 03-20-2014, 10:59 AM   #3
    dganz
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    Re: Is it Possible I have Lyme?? Help!

    Ginny, I am sorry to hear what you going through. Lyme is one of the worst things one can have. I've been through cancer treatment and the lyme disease I suffered was worse.

    I too saw many doctors who told me I didn't have lyme. My lyme test only showed one positive which was band 23. This band is specific to lyme. However, since I did not fit the CDC's narrow number of bands, I was told I didn't have lyme. After reading much on the disease, I knew in my heart I had it. I had been bitten by something which produced the rash (which not everyone gets) and from then on the symptoms came and eventually within 3 months, I had neurological stuff that was unbearable and I was unable to function.

    I had been gravely ill when I was 18 (I'm 56 now) and diagnosed with mono (which was the catchall disease back them). I grew up in Connecticut and lyme was just being discovered when I was ill.

    I eventually found an LLMD who diagnosed lyme. She also believes that when I as 18 I had lyme because when I was bitten a few years ago, it came back with a vengance. To say the least, I went into treatment with high dose of abx and plenty of supplements. It was not an easy road, but 2 years later I have to say I'm nearly 85% better. I still do have days when I am not well (you just get this feeling that something is not right), but have to say there is light at the end of the tunnel. I realize I will not remove all of the lyme and I have some symptoms that will not go away, but my qualify of life is so much better due to the wisdom and knowledge of my LLMD. She saved my life. As lymes know, when you have lyme that has affected you severely, you do not want to live.

    Seek help from an LLMD. They know what they are doing. Most do not take insurance, but in the end spending the $$ I did was money I had to spend to stay alive. I hope the best for you as you continue to seek treatment.

     
    Old 03-20-2014, 07:21 PM   #4
    lala52
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    Re: Is it Possible I have Lyme?? Help!

    DG:
    I live on long island. Is your lyme dr. far from me? Where is she located?

     
    Old 03-21-2014, 11:15 AM   #5
    dganz
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    Re: Is it Possible I have Lyme?? Help!

    Lala, I live in western NY, so not hear LI.

     
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