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    Old 06-19-2014, 09:35 PM   #1
    Renee13
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    two different test

    One was done with my neurologist and the other with my reg. Doctor's office (got this one today)

    My first one was .94

    The second one is negative(so they say)

    Component: B. BURGDORFERI AB (IGM), WB Result: POSITIVE

    Component: 41 KD (IGM) BAND Result: REACTIVE

    component: 23 KD (IGM) BAND Result: REACTIVE

    Component: 39 KD (IGM) BAND Result: NON-REACTIVE



    Component: B. BURGDORFERI AB (IGG), WB Result: NEGATIVE

    The rest of the Bands 41, 18, 23, 28, 30, 41, 45, 58,66,93 were NON-REACTIVE

    Confused! It says a lot in the notes tho. about CDC criteria and so on. Makes no sense to me tho.

    But the nurse did tell me that if i didn’t feel comfortable with my results that they could do more testing. So I’m going to call tomorrow and ask what kind of testing?

    Can anybody make sense of the second test. I'm so confused. It would seem to me that I have it.

    Last edited by Renee13; 06-19-2014 at 10:08 PM.

     
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    Old 06-20-2014, 09:18 AM   #2
    Katherine777
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    Re: two different test

    Quote:
    Originally Posted by Renee13 View Post
    One was done with my neurologist and the other with my reg. Doctor's office (got this one today)

    My first one was .94

    The second one is negative(so they say)

    Component: B. BURGDORFERI AB (IGM), WB Result: POSITIVE

    Component: 41 KD (IGM) BAND Result: REACTIVE

    component: 23 KD (IGM) BAND Result: REACTIVE

    Component: 39 KD (IGM) BAND Result: NON-REACTIVE



    Component: B. BURGDORFERI AB (IGG), WB Result: NEGATIVE

    The rest of the Bands 41, 18, 23, 28, 30, 41, 45, 58,66,93 were NON-REACTIVE

    Confused! It says a lot in the notes tho. about CDC criteria and so on. Makes no sense to me tho.

    But the nurse did tell me that if i didn’t feel comfortable with my results that they could do more testing. So I’m going to call tomorrow and ask what kind of testing?

    Can anybody make sense of the second test. I'm so confused. It would seem to me that I have it.
    Your IgM shows positive since you are "reactive on the 23 and the 41 band.
    ----TWO WAYS to test Positive for Lyme
    1) If TWO bands are reactive on the IgM = positive
    or
    2j) If FIVE band are reactive on the IgG = Positive

    You don't have to be positive on BOTH the IgG and IgM.
    Just as long as (1) of those two scenarios are showing positive.

    IgM would indicate an EARLY infection
    (beginning of disease process)

    IgG would indicate that the disease has been in progress longer and the body has started to produce the IgG antibodies --meaning that the infection has been going on for a longer period of time.


    You are "early infected" since the IgM is the first part of the immune system to start making antibodies.

    After a longer time of infection, the IgG starts making antibodies.

    Your western blot test does say "POSITIVE" for IgM
    because you are "reactive" on two bands. THat mean POSITIVE for Lyme and your symptoms are from lyme disease.

    The 94 was your lyme titer test that is "screening only".
    When the screeing is suspicious for lyme disease, it is
    protocol to do the Western Blot to confirm.

    Your western blot test appears to me to have been confirmed positive.

    You now need treatment so that you don't end up with a chronic lyme and possible permenant neurological disabilities if you get treated immediately. If they won't treat you, then get a hold of Stephen Buhner's book: "HEALING LYME" with herbal remedies.

    Most non-LLMD doctors simply are not schooled in Lyme Disease and do not understand the Lyme test.
    They take orders from the CDC and very sadly the CDC standards are becoming more and more difficult to get a positive reading. Too many doctors are throwing out MS diagnoses to people who are infected with Lyme because of the poorly understood testing methods.

    Ask for testing to co infections. IF you are positive on a co-infection, that should help cement your already positve Lyme test.

    Last edited by Katherine777; 06-20-2014 at 12:25 PM.

     
    Old 06-23-2014, 08:48 PM   #3
    Renee13
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    Re: two different test

    I don't think I have an early infection. My symptoms have been going on for awhile. A lot longer than 4 weeks. But i will go to the LLMD and talk to he/her about my test. So confusing Katherine. Thank you. I try and see if i can get one of those books.

    Last edited by mod85; 06-23-2014 at 08:55 PM.

     
    Old 06-23-2014, 11:06 PM   #4
    Katherine777
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    Re: two different test

    Quote:
    Originally Posted by Renee13 View Post
    I don't think I have an early infection. My symptoms have been going on for awhile. A lot longer than 4 weeks. But i will go to the LLMD and talk to he/her about my test. So confusing Katherine. Thank you. I try and see if i can get one of those books.
    I say Early because you are positive on the IgM western blot being "reactive" on two bands.and still negative on the IgG western blot.

    Later/older infections will develop the IgG antibodies much later than the IgM, --- and since your immune system is showing the IgM positive and NOT the IgG, then that is what I mean by "early" infection. Lyme disese is like no other disease. It is a "cousin" disease to syphillis..... a spirochete. (a very insidious disease which needs proper treatment so that it does not progress). I say insidious because of how it attacks either the nervous system or in some people the brain, while others it will attack joints.

    It is called the "Great Imitator". Some people suffer from arthritis, others suffer more neurological symptoms, and others get various sypmtoms.

    That is why it is so important to treat the infection before permanment damage is done. I refused "symptom drugs" because of the side effects. I am not in a wheelchair nor using a cane to walk like many other people I know who took drugs for symptom treatment only and they got worse because they didn't treat the initial "Infection".

    Maybe it would have been better said that you have not yet developed a long term chronic lyme infectiion since you were negative on the IgG test.

    FIRST in the infection process is the IgM to show up.

    MUCH later on, the infection will have made the IgG immunoglobins in your immune system.

    I hope that makes more sense.

    Last edited by Katherine777; 06-23-2014 at 11:14 PM.

     
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    Old 06-24-2014, 07:23 AM   #5
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    Re: two different test

    Hi, my doctor whom is a specialist. Says it does not matter whether it is Igg Igm. If you have it, you have it. So just meaning don't worry so much what the test says. If it is positive your a winner! And if your not positive still seek out treatment!

    After 13 years of proper treatment. And eons of years mis-diagnosed before that. I finally got a positive that showed a "current" infection. Nope, I haven't been recently infected. I have it chronically.
    Soooo the test was off on current or past.

    Get treated no matter what stage your at, if your displaying symptoms.

    Hope you feel better soon!

    Jodie

    Last edited by J0J0; 06-24-2014 at 07:28 AM.

     
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    Old 06-24-2014, 11:40 AM   #6
    dganz
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    Re: two different test

    I agree with Jojo. I only had band 23, nothing more on the tests yet I was severely ill with about 46 symptoms on the lyme list. I didn't even test postive on IGG even though it was highly likely I had lyme at 18 (I'm 56 now). I've been chronically ill since I as 18, although functional. When I was bitten in 2010, it sent me and my body into total chaos. Seek advice from a lyme literate doctor, they are the only ones who are going to really understand how to help you. My LLMD treated me for lyme along bartonella. I am significantly better and in remission nearly 2 years now. Hope you find some answers to help you

    Last edited by dganz; 06-24-2014 at 11:45 AM.

     
    Old 06-24-2014, 06:43 PM   #7
    Renee13
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    Re: two different test

    why do the IGG not show? I guess I should ask is why these test are not showing the truth? Oh boy I hope I make sense.

    I still don't understand why the overall test was negative for my last test. I wonder what lab it was done. So i could ask the dumb dumb that did the test.

    But I will find my LLMD. I already have leads!

    It really seems like my doctor doesn't wont anything to do with me and my lyme issue.

    Last edited by Administrator; 07-04-2014 at 02:54 PM.

     
    Old 06-24-2014, 06:59 PM   #8
    Renee13
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    Re: two different test

    I have to be honest. Coming to the terms that I might have Lyme Disease is hard. Like today I feel pretty good. Not a 100% though, but better. I hurt some and I'm tired. Memory is off and eyes feel cloudy. The shooting pains have stop and the tingling has gotten better. I do have low Vitamin D. My number is 18. Thats pretty low. So I tell myself it is all the Vitamin D. Even though I remember pulling a tick off of me in 2006 and I was sickest I've ever been in my life right after that.I couldn't even get out of bed to fix my own food. It was horrible!!! But I didn't know anything about lyme at the time. Sad thing is I think my dog had it. We just recently had to put him down. He started to have seizures back to back. It really messed him up.

    But i value my health so I must keep marching on.

    Thanks you all,
    Renee

     
    Old 06-25-2014, 07:16 AM   #9
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    Re: two different test

    Hi Renee, I feel your frustration. The thing about testing is, there are over 300 strains of "lyme". And the labs don't test for all of them. Another reason is the bacteria does not like oxygen so hides out side of the blood stream.
    The numbers of the "bands" were originally used as tracking down the stains of bacteria, by the CDC.

    There are other reasons on the whys these test don't come out accurate. It is the same for any co-infection also. Too many strains and labs that don't test for them all, or aren't set up to test for them.

    I am finding along my journey that there really isn't any full proof test out there. I mean, I can remember doing pregnancy test, it said I was pregnant, then few weeks later...nope it was wrong.
    I have had family member die of cancer, it never showed in the blood. We cann not rely on test for many things!

    One of my dogs I know she had/has lyme. She was bitten when she was younger, threw up a lot. Had her tested, nothing showed. But after a leg surgery with high doses of antibiotics. She doesn't throw up anymore.

    The more you learn about Borrelia (Lyme) and many of the other bacterias and viruses we have. You'll learn that we are being infected many ways.
    You might want to read up on Gulf War Syndrome and Lab 257.
    Doctors don't want to get involved with us because these diseases are very political. Bio germ warfare......

    There are over 300,000 a year of newly infected people. Many ways of spreading it, sex, blood transfusions, mother to baby, some say it is in our food supply, insects that bite and go host to host ect.
    It isn't just ticks.

    Remember, what one does for treatment may not work for another. But there is hope and you can get better!

    I hope you find a good llmd soon and get on the road to better health!

    Jodie

     
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    Old 06-25-2014, 10:58 AM   #10
    Katherine777
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    Re: two different test

    Jodie is so right. I've read that book Lab 257 and since I became ill with neuro symptoms I learned very quickly that a regular MD has no clue on how to cure any disease anymore except to do what pharmaceutical companies tell them what medication to "prescribe" to only "possibly help" symptoms but not cure.

    They only "manage" drugs. Thus why I suggested vitamins are better. Instead, it's better to help your own immune system

    I have learned that with Lyme Disease, usually some sort of "event" will trigger it. Any stress on the body. Whatevever your body went thru in the the last year (a stress of any sort) can throw off the immunes system.

    Renee, what IS important here, is that you DID test positive for Lyme on the IgM band and you need to see a LLMD.

    Keep healthiy and please *keep careful* not to take drugs that treat symptoms only and are never meant to cure.

    Let your LLMD explain how to strengthen your immune system so you can fight this infection and very sadly ----other MD's simply do not understand Lyme disease which is why they are having a hard time reading your lab results which clearly are POSItIVE (reactive) for the borrelia spirochete on two bands.


    Blessings and health,
    Katherine

    Last edited by Administrator; 07-04-2014 at 02:56 PM.

     
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    Old 06-25-2014, 11:30 AM   #11
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    Re: two different test

    Totally agreed Katherine! Now days with computers it is so much easier to find supplements and herbs for helping to treat infections and raising the immune system.
    The doc I see is always open to new ideas on treatment. He is much more than a specialist. I share with him things I do on my own and he will listen and see if it is something he can share with other patients.

    He has his own practice. So no big pharma telling him what he should be doing!

    If one can go all natural in treatment then that's great! I did a combination of western med and alternative. Now I am at the point I don't need any more antibiotics. YAY! Yes I do believe they helped me.
    None of us are made the same and have different strains. So it is, what will work for you.

    I had one doc 25 or more years ago have me on 14 prescriptions at ONE time. Because I had Fibro/CFS...wouldn't even consider Lyme. He just about killed me on those meds. Well helped me get run down to nothing just about.

    If you truly feel as though you have Lyme, and you have symptoms and a positive. The run of the mill doctors will continue to run you in the ground. The 2 doctors that finally helped me have NEVER told me that it is in my head and to learn to live with it. I will never go to another main stream doctor! Neither of them are in the main stream medical monopoly.

    From where you are sitting Renee, look for a Lyme Support Group by your city, county or state. or what ever is closest to you. There should be a group leader that can help direct you to a LLMD.

    Take care!

    Jodie

     
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    Old 07-03-2014, 02:55 PM   #12
    Renee13
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    Re: two different test

    I did had a appt to talk to the doctor about abx and testing, but didn't go. I have felt terrible the last couple of days. My gastro doctor called and said I have C. diff (yesterday). An infection in my colon. Have you ever heard of it? Do you think that could have caused my results to be off. From my understanding it is a pretty bad bug.

    If I have lyme is there anywhere the lab from the grastro office could have gotten the two bugs confused? Just a thought.

    I just started metrodinazole today for 10 days. Can this be used to treat lyme as well?

    My EMG/NCS came back normal. Confused I thought for sure something would show. My feet hurt to walk on and both feet tingling. My lower back hurts too, but the nurse said that the c.diff wouldn't cause back pain. My joints hurt so bad. Right when i feel better. Bam I'm not. What the HECK!!

    I wash my hands more than anybody I know just about. Just don't understand how I have this crazy c. diff infection.

    I need to go do x-rays of my back, but i'm scared to enter a hospital anytime soon.
    Funny that you message me, bc I was going to message you too.

    Hope i make since, feel more out of it then normal. Thank you for the info on LYME.

    Last edited by Administrator; 07-04-2014 at 02:58 PM.

     
    Old 07-03-2014, 03:14 PM   #13
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    Re: two different test

    I'm getting scared.

    Thanks

    Last edited by Administrator; 07-04-2014 at 02:58 PM.

     
    Old 07-04-2014, 03:29 PM   #14
    Katherine777
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    Re: two different test

    Quote:
    Originally Posted by Renee13 View Post
    I'm getting scared.

    Thanks
    Don't be scared .....
    Just keep informed because medicine today is not very helpful unless the patient does their own research.

    Take this advice from: Albert Einstein
    "If you are not your own doctor, you are a fool."

    I have learned how right Albert Einstein was when he said that quote so many years ago -----
    ----I keep myself healthy by not taking any pharmaceutical drugs prescribed that are not going to "save my life" or fight an infection, or control the thyroid.

    I have recently been taking herbal remedies along with vital nutritients specific for my thyroid condition and it is already improving and my medication is being reduced for the 1st time in 20 years for my thyroid!

    We can get better by keeping informed and not remaining "medically blind".

    Last edited by mod85; 07-04-2014 at 03:50 PM.

     
    Old 12-21-2014, 03:01 AM   #15
    Jack84
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    Re: two different test

    39 and 41 would indicate Lyme to many LLMD's.

     
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