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  • Lyme Disease Symptoms

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    Old 09-16-2014, 09:42 AM   #1
    cpatter99
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    Lyme Disease Symptoms

    Hi, I am new to this message board, and I'm desperately looking for some help. I am a 46 year old female. I was bitten by a tick when I lived in Florida about 3 years ago. The tick had bitten into my arm, and I have no clue how long it was there. At the time, I didn't know a lot about Lyme and how serious it was. A doctor friend removed the tick (which had a red ring around it) and threw the tick on the ground. I didn't think much of keeping the tick and having it tested. I Since that time, I have had many strange things start to happen to me. I started experiencing upper back and neck pain. The orthopedic doctor I saw really couldn't say what was causing it. He sent me for a steroidal injection. The injection didn't really help, and it made me severely ill for a few days after. I decided just to deal with the back pain and not go back again. I then began to experience hair loss. My PCP referred me to an endocrinologist to have my thyroid checked. My thyroid blood work was normal, but the endocrinologist put me on a low dose of thyroid medication just in case. After that, I was generally healthy for about a year. We moved to South Carolina about a year ago. Since that time, more weird things have begun happening to me. I developed a sore on one of my legs. I have seen multiple dermatologists and infectious disease doctors who still haven't quite figured out what the sore is. I have been on so many oral and topical medications for the sore, I have lost count. The infectious disease doctor put me on a combo of doxy and cipro about four months ago. Since that time, I feel like I am falling apart. I am having severe joint pain all over, weird twitching in my face and toes, slurred speech, eyes not focusing correctly, severe TMJ, night sweats, and muscle weakness all over. I have been tested for Lyme twice, and both times, the tests have come back negative. I am now being referred to a neurologist. I keep researching my symptoms, and each time I research, I keep coming back to Lyme. I have seen where the results can be negative and I can still have Lyme disease. My question is this, is anyone familiar with a good LLMD in the upstate South Carolina/North Carolina area? I am willing to drive as long as the doctor is a good one! Thanks in advance for your help!

     
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    Old 09-16-2014, 09:43 PM   #2
    prairiemom
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    Re: Lyme Disease Symptoms

    So sorry to hear about all you are dealing with right now. It sounds like many of your symptoms could indeed be lyme. You need to find a good lyme literate doctor (LLMD), because the majority of doctors are NOT familiar with lyme or know how to properly diagnose lyme, much less properly treat it. The disease which causes lyme (borrelia) is just one of the many little "bugs" that you may be dealing with, b/c lyme rarely travels alone....usually co-infections (like Bartonella, Babesia, etc) travel along with it, which further complicates matters. Even if your past tests for lyme were negative, it is still important for you to be seen my a LLMD. Locally run tests are often not very accurate, and often people most sick with lyme are so run down their immune system is shot and there aren't enough antibodies available to indicate a positive result on the tests (false negatives!)! An LLMD will properly assess all the history of your illness, your physical symptoms currently, run the appropriate labs (Igenex lab is the gold standard lab for lyme Western blots....), and then start to narrow down what is making you ill! It can be a long road, and not an easy one, but worth it to restore your health! Can't mention docs names on this forum. I'm no where near SC anyhow, but do know that there are good LLMDs on the east coast! I would avoid the neurologist if he/she is not an LLMD.....I have seen so many regular docs and "specialists" that were so clueless.....many will tell you you're nuts, tell you there is no such thing as chronic lyme, and make you feel like a complete idiot, and then offer you Prozac.....sigh. I'm all for Prozac when it is warranted, but not as a bandaid for a serious chronic illness that is going to progressively get worse without proper treatment! So, enough said....hope that this helps a bit! :-) Find a good LLMD, that is the best place to start. The most important thing is knowing what you're up against, knowledge is power, and then having a good doc to help you get on a good treatment plan to health! Blessings to you!

     
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