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  • Is this lymphedema? Please help

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    Old 08-29-2013, 06:03 PM   #1
    spitshaw
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    Is this lymphedema? Please help

    Hi guys, I am looking for some help with my problem with water retention/body swelling. I am a 26 year old male, 5 ft 8 and weigh 11stone. I've been suffering from water retention/body swelling for the past 2 years in my chest region (front and under arms), abodmen, buttocks and upper thighs (groin).

    At first I thought that it was just weight gain, as I had gotten quite a bit chubby prior to this starting (weighing 13.5 stone) but I have recently lost all this weight, and the swelling has remained. The swelling feels like lots of water under my skin, which I can move around with my hand (very odd!) The swelling is non-pitting, and accumulates throughout the day, but once it is there, It does not go away until the next morning (most mornings
    there is some residual swelling still there however). I can feel it throughout the day and it is very uncomfortable, especially in my groin, belly and underarm areas. Clothes I wear in the morning become much more tighter throughout the day. There is
    no noticeable weight gain either when the swelling happens (just a few pounds throughout the day which I assume is normal).I also get swelling of my hands and feet, but this is only caused by exercise or hot weather, unlike the rest of the swelling
    which happens just by sitting still for example. By raising my hands and feet I can help the swelling go down in my hands and feet, but I cant do anything to help the torso swelling.

    Things that make it worse are:
    * Sitting in an upright chair (ie. office chair)
    * Exercises
    * Hot temperatures

    I've had chest xrays, all manner of bloodwork including looking at protein levels, infection and inflammation markers and everything has come back fine. I have suffered from chronic fatigue syndrome since the age of 15 and my energy levels are not so good but apart from that there is nothing of note (illnesses or surgeries) that I can think has caused this.

    My doctor is completely dumbfounded as the things that usually cause this kind of swelling is lymphoedema and heart failure. Dr says this seems a very unusual case, as in lymphoedema swelling almost always occurs in limbs only (only in the chest from treatment for breast cancer) and for heart failure/venous insuffiency, there is usually the case of ankle swelling and other
    cardiovascular symptoms presenting also - none of which I have.
    I am now currently waiting for a few weeks for my doctor to speak to some specialists on what to do, the last thing he mentioned was a possible body MRI (looking at my vascular system I think).

    Can anyone here help in any way at all? Please offer your opinions if you have any ideas, or if you can think of anyway I can pursue this. It is a huge pain to be dealing with this everyday If you have any questions or I missed anything out please ask.

    Thanks so much for your time!

    Kristian

    Last edited by Administrator; 08-29-2013 at 06:07 PM.

     
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    Old 10-19-2013, 12:28 PM   #2
    bigmamadeal
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    Re: Is this lymphedema? Please help

    Interesting. Cardiac problems come to mind first, but if you have had it checked out and all is negative...who knows? Something you might be able to do though is swim! It could actually help the edema. Maybe you have a stenosis somewhere in the upper body? Let me know how you are doing.

     
    Old 03-11-2014, 04:07 PM   #3
    trista63
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    Re: Is this lymphedema? Please help

    I have had the exact same thing go on. Does it come and go periodically? Mine can last for a few days to a few weeks at a time, and doesn't seem as bad during the winter months. Blood tests have been run to check everything under the sun that I can think of. I am going to see an internal medicine doctor on the 31st of this month, but this has been going on for over 2 years for me. And it is absolutely miserable. Mine affects my breathing at times, it gets so bad.

    Mine does come with weight gain, however. Once specific time, I gained 15 lbs of fluid in less than 48 hours. When I sat back in my office chair, it felt like I was leaning against a big water balloon.

    Diagnosis seemed hopeless, I even had a doctor tell me I was imagining it once, but others have seen it happen with me from one appt to the next, they can see the swelling, so it's not in my head. I am a 28 yo female with no other major health problems other than PCOS (polycystic ovarian syndrome). I'm 5'8, and no thanks to the build up of all this fluid over past two years (I retain some of the weight each time the swelling seems to go mostly go away), I'm up to 218 lbs. NOT normal for me until the past two years.

    Please keep me updated with your symptoms and doctor's suggestions, suspicions, and advice, and I will be happy to do the same!!!

     
    Old 06-22-2014, 05:10 PM   #4
    dan75
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    Re: Is this lymphedema? Please help

    Maybe kidney issues are causing the fluid retention? It doesn't really sound like typical lymphedema, but maybe there is something impinging on the thoracic duct (the largest lymph vessel in the body, which runs through the torso). You can help pump the lymph up the thoracic duct with deep, diaphragmatic breathing. You can also press on the belly button as you exhale to give the thoracic duct an extra squeeze, which will help pump fluid to the heart.

    They may need to do a lymphoscintigraphy to make sure the lymph system isn't impaired.

     
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