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    Old 11-27-2002, 10:03 AM   #1
    smallvillenut
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    Post Hodgkin's Survivor

    Wow, this site is sooo cool! I feel I can talk about anything!! I'm 23, and have been in remission from Hodgkin's Disease for 6 years now (in fact exactly 6 years this month). If anyone has any questions about it, I'd love to answer them for you. I have a fascination with medicine, and at one point wanted to be a doctor. I found a lump under my arm when I was 16, and actually went to my medical encyclopedias and self-diagnosed myself before I went in for my biopsy. Then when I found out I had it, I spent every moment that I was going through treatments studying what was going on with my body.

     
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    Old 12-05-2002, 07:54 AM   #2
    tmm35
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    hi guys ive had health problems off and on for about 3 years and here lately ive been getting swollen lymph nodes under my arms and neck the one under my neck has been swollen for over 2 weeks now ive had so many bad news from drs since aug im scared to go get checked out .did you all get swollen nodes in your neck and arms .please help.
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    Old 12-05-2002, 09:51 AM   #3
    smallvillenut
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    Go get it checked immediately! This is not to scare you but to help you, because if it is something serious, you need to check it out before it spreads... and cancer spreads fast! I found my node under my arm, and was told the thing that saved me was that I had it checked out as soon as I found out it could be serious. It had only been there for 4 weeks, and it had already spread into my lungs.... I had to have combination chemo and radiation because of that. Had I gone to see a doctor when I first noticed it, it could have been taken care of with a minor localized surgery, and I would have saved myself 11 months of pain. Lymphomas are the most treatable types of cancer you can have, but only if you treat them. I know its scary going to doctors about stuff like that, but it is well worth it... and you never know.... it may be nothing. The way you are describing it, it seems as though your body is just reponding to some kind of infection. Your lymph nodes are there to detect that kind of stuff, and when something isn't right, they naturally swell.... keep an eye on them. If they get any bigger or if you start to find more, go see a doctor! And don't wait 4 weeks like I did!

     
    Old 12-13-2002, 11:22 PM   #4
    Jaytor
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    Hey guys - would you mind responding to that post asking about swollen lymph nodes located in the groin area? [I'm more familiar with leukemias than lymphomas, and the poster 'sounded' somewhat worried.]

    Thanks,
    Jay

     
    Old 07-10-2003, 09:00 PM   #5
    helpimscared
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    Hello everyone!
    I am a 23 yr old female who recently felt about 5 bumps down the right side of my neck, they are very painful, dont think they are hard and they are making my neck feel stiff on the right side, i have no other symptoms, expect for a random headache. I am very worried n scared and I dont know what to think. I hear this could be a sign of NH disease. Im not sure if the bumps feel movable or not. The bumps seem to stem from the bottom of my ear lobe to the base of my neck, but i have not found any bumps around my collar bone. Please give me any advice, it will be very helpful. Thank you so much in advance i wish u all the best of luck and God Bless!

     
    Old 07-14-2003, 10:19 AM   #6
    helpimscared
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    Hello!
    Just wanted to leave a reply to myself lol incase anyone was reading this with the same problem..I visited my doctor on friday he tested me for strep throat and mononeucleosis. He said swollen lymph nodes are a sign of both. Both test were negative, so he did a CBC (complete blood count) I got the results today he said that was normal as well. I still had a fever last night of 102.5 and chills and woke up sweating and still random headaches, he said if the fever is still there by Wednesday to call and they can re-do the mononeucleosis test, because sometimes it can come up negative and then in a few days show positive. I will keep you all posted, God Bless!

     
    Old 11-01-2004, 10:56 PM   #7
    Lyonscampbell
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    Re: Hodgkin's Survivor

    I too am a 3 year survivor of Hodgkins Lymphoma diagnosed at 20. I noticed a two knots in my neck that seemed to come up overnight. It wasnt painfull. However, they didnt go away and they didnt grow one on each side of my thyroid gland. I went to the doctor who sent me to an ear nose and throat specialist. He stated it was most likely multi nodular goiter. ( Not a seriouse problem). I was concerned about cancer. He stated " Your to young to be worrying about cancer". Besides thyriod cancer only accounts for 1% of all cancers thus , being very rare and doesnt usually effect both sides. That was it. He didnt reccomend any test. He had concluded just by feeling the knots it was goiter. 2 months later i developed major weight loss approx 30 lbs at this time. Back to doc. He sent me to another specialist who called the one I had seen before again they concluded goiter. No Test were ordered. 4 Months later pain in right kidney ( Horrific) DOc orders ct scan of Neck. Radiologist reports says multi nodular goiter. My white count was up doc says pain in kidney due to infection prescribed antibiotics. 5 months weight loss up to 60 lbs, Pain in kidney. Night Sweats, shortness of breath Rapid heart beat, and so physically drained. Back to doc. He asks if I had been depressed or under stress and stated stress can do alot of strange things to your body. He wanted to refer me to a psychologist. I refused insisting that this was not a mental issue. I called a surgeon who was willing to see me out of pocket due to no refferrel from doc of course. Upon an exam he agreed to do a biopsy of the nodes under my arm. 6 months into this I was finally diagnosed with HODGKINS LYMPHOMA. Wide spread and in the last stage 4b concluded by bone marrow testing. I have managed to survive all this with Chemo ( ABVD) and GOD. The lesson here Cancer holds no prejudice to age from infant to elderly. Physicians are quick to dismiss the notion of cancer in otherwise seemingly healthy individuals. Dont take NO for an anwser. YOu know your body . Demand TESTS. CT, PET, BLOOD or BIOPSY. Insist on certanity not probably. Be leary of doctors who are hasty and quick to diagnose without proper test. Good Luck To You All.

     
    Old 11-02-2004, 04:39 AM   #8
    smallvillenut
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    Re: Hodgkin's Survivor


    How Horrible!!! I mean, Congratulations on your remission, but there is no excuse for that kind of malpractice! Where are you living and what was the name of your doctor, so that anyone who might be around you will read this, and no to not recommend that doctor? I was blessed to be living nearby one of the best cancer facilities in our country (The Dana Farber Cancer Institue) in Boston, MA. Just in case anyone is reading this, who lives nearby that area, if you ever find anything suspicious about your body, I highly recommend that you check out this cancer Institute. They have great people there... doctors who really care about their patients, and who find their job to be more than just a paycheck at the end of the day. I am sorry that you had to go through with that.

     
    Old 11-06-2004, 06:41 PM   #9
    lily_t25
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    Re: Hodgkin's Survivor

    Hello smallvillenut,

    I posted a new thread about a week ago and no one answered. You said you wouldn't mind answering any questions, so I hope you take a look at this and tell me what you think:

    I am 17 and for the past three years I've noticed a hard, painless lump on the back of my neck. It is about an inch from my right ear, and a centimeter below my head, and it is about 2 centimeters big (shaped much like almond) and it's immovable. I asked my father about it (my father was in pre-med for four years and then transfered to dentistry) and he told me it was nothing. So for the next two years, I disregarded the annoying mass. This year, after reading a novel about a dying patient with lymphoma, the unwanted lump re-entered my train of thoughts...to an intesifed degree I might add. So I went to my doctor and asked her about it. She too, told me not to worry. I was fine for a while after, but then I began to search my neck and I found another hard lump less than a centimeter big. I also noticed smaller lumps all about the size of this: O, except they are movoble and not hard. Now I am thinking back to what my physician told me, and am wondering whether or not I understood her correctly. During the same visit I had told the physician about an ear infection I had had three months prior to the date (more like a year on and off). I'm afraid she thought the lumps were associated with that infection (they could not have been since I noticed them there three years ago).

    Thank you, and congratulations on your remission.

    P.S. Did you have any symptoms when you visited your doc? And how long did you have the enlarged knot before getting it diagnosed? Thanks again!

    P.P.S
    My father keeps telling me I am silly for thinking of lymphoma. I've had these knots for so long and they never bothered me until I read about the symptoms of lymphoma. Besides, says he, no one in our family ever had cancer...why would I? When I tell him about it, he also points to an enlarged nodes on his neck (his is much deeper than mine). Is it possible that he is right? Wouldn't I have felt some signs of cancer in these three years?

    Last edited by lily_t25; 11-06-2004 at 06:54 PM.

     
    Old 11-08-2004, 05:13 AM   #10
    smallvillenut
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    Re: Hodgkin's Survivor

    Lily,

    Sorry for not responding to you sooner. I sensed your frustration in your last thread... I have not had much opportunity to visit these boards lately.
    Everyone has lymph nodes in their bodies, whether they are healthy or sick. Since the lump you found 3 years ago is immovable, I would not worry about it. However, continue to keep an eye on it. Every time a person gets sick, the lymph nodes that you have all over your body will swell. I can't tell you how many times I have gone in to see my doctor worried that my cancer has come back, and as it turns out, all it is, is the common cold. It is your bodies natural way of alerting you to the fact that there is an infection. When in doubt, always go and have it checked out. Definately keep an eye on those smaller nodes.

    When I was diagnosed, I only had one. It was under my left arm, and it changed drastically over the course of just a few weeks. It changed size and shape. Chances are since yours have not really changed, you probably have nothing to worry about. It is when the nodes change that you need to worry. Cancer is when a healthy cell goes bad (That is the simplest way to explain it). You know what your body feels like. When things start to feel abnormal, go see a doctor. Hope that helps!

     
    Old 11-08-2004, 02:38 PM   #11
    lily_t25
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    Re: Hodgkin's Survivor

    Thank you so much smallvillenut!

    You don't know how much your answer has helped me. I've been freaking myself out about these knots. I've probably been to my GP four times this year for one small thing after another, always convincing myself that I had something seriously wrong with me. In fact I did (that ear infection I wrote about in one of my threads), but after that was over, I felt the need to find something else to worry about. Reading about lymphoma online made me think something was DEFINITELY wrong (I tried hard to remember if I had ever had night sweats, or chills. Even the smallest of weight loss, like a pound or two, scared me). Even when I didn't have a symptom, I convinced myself that I was the kind of person who wouldn't feel any of the symptoms. I know I sound pathethic (sigh), but this year has been very stressful for me...

    I became a hypochondriac last year as I watched my uncle take his last painful breaths of air (he died of colon cancer). I thought I was old and mature enough to watch this without having nightmares, but it wasn't pretty (nothing like the glorified version you see on tv). Since then, I've been scared to death...of death.

    Now I know not to panic everytime I touch the knots on my neck. I'll definitely keep an eye on them (I don't see as how I could help it), and I'll ask my doc for a blood test, and even a CT scan if necessary, next time I see her.

    Thanks again...and congratulations on being a survivor of such a horrible disease (I can't imagine anyone braver than someone who has gone through all that you have).

    -Lily

    P.S.

    One last question: From what I understand, you say that it's a good thing for the node to be immovable. How did your node feel to the touch? I'm asking because my smaller ones feel soft, and they have felt this way ever since my last ear infection. Thanks!

    Last edited by lily_t25; 11-08-2004 at 02:45 PM.

     
    Old 11-09-2004, 04:53 AM   #12
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    Re: Hodgkin's Survivor

    If it is cancerous, it will be soft and painless, and you will be able to move it. Another thing.... don't stress yourself out over trying to remember if you have had night sweats. If you have had them, then you will know. The kind of night sweats that is being talked about, is the kind, where you literally wake up covered in sweat from head to toe, so badly that you soak your sheets. Not the same thing as going to bed and waking up a little sweaty, because you had too many blankets on, or the temperature in your room was too warm.... This is different, and you will know it, if you actually experience them.

     
    Old 11-09-2004, 06:20 AM   #13
    sugarpye
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    Re: Hodgkin's Survivor

    Ive been told by 3 doctors that if a node is cancerous or forconcern they are firm and attached to the skin or muscle and do not more...thats how cancers grows it attaches itself...maybe im wrong...thats what ive been told by a few doctors and books

     
    Old 11-13-2004, 03:43 PM   #14
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    Re: Hodgkin's Survivor

    I have also heard the same thing. I've had a swollen lymph node on my neck for a little over a week. I've had blood tests and everything was normal. I also had a chest Xray and am told I will have the results on Monday. I was told that by my Dr. and my mother-in-law (who is a nurse) that I most likely have nothing to worry about since mine is soft and moveable. Everywhere I read on the Internet says the same thing. This is the first that I have heard that soft and mobile is bad. Now I'm getting worried again.

     
    Old 11-29-2004, 10:18 AM   #15
    leather green
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    Re: Hodgkin's Survivor

    Hi- I am new here so bare with me, My brother has Non-Hodgkins Lymphoma. very sad, he is 57 and was in geat health and a great outdoors person as he owns and does some farming and loves to deer hunt.
    He has swoolen spleen and just had emergency surgery for his hernia.
    The day he ws suppose to have his second treatment he had to have surgery. He has (mantel cell). I am just starting my reaearch. he is 4th stage. he is on Rutaxin/ Chop. He is getting treatment at local hospital in Bloomington Indiana. My Question Is will that be enough or will he need to go to a clinical trial? Also does anyone know about stem cell donor? I am sorry i have a lot of Questions, but Cancer is very scary, and My brother lives alone ,So i am only one to help him.
    He will have to put off his chemo for one month I am hoping that will be ok.
    Thank you all
    leather green

     
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