HealthBoards

HealthBoards (https://www.healthboards.com/boards/)
-   Lymphomas (https://www.healthboards.com/boards/lymphomas/)
-   -   Hard supraclavicular lymph node for 2 years... have questions. please help! (https://www.healthboards.com/boards/lymphomas/974512-hard-supraclavicular-lymph-node-2-years-have-questions-please-help.html)

kmad 02-16-2014 09:41 PM

Hard supraclavicular lymph node for 2 years... have questions. please help!
 
2 years ago I became very ill with a case of pancreatitis from a malfunctioning gallbladder. While on cipro for 2 treatments I came down with a raging case of mastitis.Gallbladder came out. I am 49 now. Post menopausal due to a hysterectomy in 08. Never breast feed my children or had any breast issues til then. Had many tests to rule out breast cancer. Since then i have a hard lymph node in the rt. Supraclavicular area. The node itself seems to be painless. But I have alot of weird pain/discomfort in that area daily. Ibuprofen does not help. I have other node enlargements in my neck, The hard one is only .97cm the others that or less. I've had an mri which told me I had many enlarged nodes and the hard one just was documernted as inconclusive. They said statistically they are from post infection. But this is 2 years later and no change. I have lymphadema in my right arm. Neck lymphadenopathy. Hot spells but no fever. Overwhelming episodes of feeling "ill" . not pukey. Just weak and ill.
My doctor will not do a biopsie. Ordered an ultrasound recently. It came back as enlarged lymph nodes. Duh! I already knew that. Shouldnt a hard node show up as solid or filled with something? It is very hard. It feels like it is stuck in the collarbone area under something and close to my throat. My wbc is at the lowest of the range in aug and dec of 2013. Absolute lymphocyte counts are continuously below normal. MPV counts below normal. What could this be? Please offer any info you can. I'm scared it's been 2 years now and im feeling much worse.

kmad 02-20-2014 07:40 PM

Re: Hard supraclavicular lymph node for 2 years......have questions. please help!
 
Was hoping someone would have sent a reply. This is new to me to be on this forum. Since my first post above I have seen another doctor who is taking this seriously. Hematology/oncology denied me because I have no cancer dx. But they reviewed bloodwork I gave them and want to see me March 4. I have more nodes up the side of my neck and in the back of my neck causing a huge amount of pain.. Stinging pain actually. March 4 is too far away. Nothing helps relieve the pain. Any input would be very appreciated. Thank you.

Jen944 02-20-2014 08:25 PM

Re: Hard supraclavicular lymph node for 2 years......have questions. please help!
 
I am sorry you are having so many health troubles. I am glad you are able to get into a doctor who is willing to be a bit more proactive, however March 4th is quite a ways away! I can imagine that is frustrating.

For my husband, everything happened quite quickly. He has had the enlarged node in his leg for over a year, but it would subside and not bother him. Only recently (since November) had it really begun to cause discomfort. I got him into an appointment at the end of January with the primary doctor. They sent him for an ultrasound a week later. After the ultrasound, they told him that due to the large node (it was 3cm) and several other enlarged nodes (no measurements were given) that they suspect lymphoma and ordered a biopsy. The doctor they suggested he see wouldn't see him for another week. I found one through my insurance's website who I was able to get him into that same week. He had the consult Wednesday, the 12. Biopsy was Thursday, the 13th. We are still awaiting results.

I made a resolution when we heard that it could possibly be lymphoma. I will NOT ALLOW ANY ONE to shuffle him around and put him off. That is why I spent so much time finding another doctor, reading reviews and calling offices. I wanted him to be taken care of as soon as possible.

From what I've learned about lymph nodes is that they can rise for many reasons. They can even harden for many reasons. Furthermore, many of those reasons are non-cancerous. Some are auto-immune, some are scaring from inflammation. There are possibilities that nodes can become large and never go back down.

Ultrasounds do show some kind of imaging of the lymph nodes. They can tell if they are not fatty (which can indicate cancer, but not always). Ultrasounds are more of a first line of diagnostics, to get measurements and see if other non-palpable nodes are affected. From this, I have learned the only way to tell 100% about a lymph node's pathology is to have it biopsied. Preferably an excisional biopsy because apparently fine need aspiration biopsies are often inconclusive.

Lymphoma has such an array of symptoms that I've learned there is no point in trying to compare symptoms with others. Several lymphoma patients have also had their bloodwork come back completely normal, while a biopsy shows they have lymphoma. From my understanding, the only way to really get a 100% diagnosis of lymphoma is via excisional biopsy.

My only guess as to why they haven't biopsied is due to it's small size. That it's not something very indicative of cancer.

It sounds like your immune system could be very out of whack from your history of infections. Have you considered an infectious disease specialist? I often read about people going through diagnosis of lymph node inflammation seeing someone who deals with that to see if they in fact are just suffering from a persistent infection. That way, they can run their gamut of tests to see if there is something infectious causing the lymph nodes to go haywire.

Perhaps that can be your next step while awaiting the hematology visit. I truly hope you find out the cause of your health problems. It is such a stressful time to test and wait, test and wait, test and wait.

I wish you the best of luck!!

Jen

kmad 02-20-2014 08:45 PM

Re: Hard supraclavicular lymph node for 2 years......have questions. please help!
 
Thank you Jen for taking the time to reply to my post. I have read about all you have said and A friend had asked me about seeing an Infectious Disease Specialist as well. I have none anywhere near me in the upper peninsula of Michigan that I have found anyways. I am wondering how the inferctions 2 years ago could be causding this now. Ive had alot of bloodwork since then and My WBC counts are consistly decreasing. My lymphocyte counts are below normal. MPV leverls are consistently below normal. Was it just the leg node that made them feel it was possibly lymphoma or are there other symptoms? Do you have a favored site for more lymphnode info? Again, thank you for your help. Kelly

Jen944 02-20-2014 08:57 PM

Re: Hard supraclavicular lymph node for 2 years......have questions. please help!
 
I will PM you info for the other site I frequent for lymphoma information.

Only one node in his leg was palpable. It was hard and I couldn't tell if it was movable. I'd need to be more proficient in lymph node palpating to discern that. It was in his upper thigh near the groin. My husband is a thin man, so you could also see a slight raise in the skin where the node was. We didn't poke around feeling other things because he was actually convinced it was a femoral hernia until his doctor received the ultrasound results. During the ultrasound they did find other nodes on the right side (same side as the large node) and one on the left side that was considered swollen. They termed it lymphedenopathy.

I do not have blood work results for him yet, although we should also be receiving those any day now so I can't attest to much about that. I am not very schooled in all the different blood counts. So I don't know what those all mean and what they can indicate. You seem to definitely have something going wrong in your immune system, whether it be just a suppressed system or something more. It seems some infections can l linger and cause very long term issues, usually these tend to be categorized as auto-immune diseases. Maybe an endocrinologist is another good option for you since you aren't able to get to an infectious disease doctor. Endocrinologists deal with glandular issues and the auto-immune diseases coupled with that. Our insurance does not require a referral to see a specialist. If yours is like that, perhaps you can find an endocrinologist through your insurance's site and make an appointment.

kmad 02-24-2014 07:54 PM

Re: Hard supraclavicular lymph node for 2 years......have questions. please help!
 
Hi Jen, I was wondering if your husband got any results back? I've been praying you guys get good news. I found more hard nodes up the side of my neck now. .1 more week til I see the oncologist. Ugg! Take care,, Kelly

Jen944 02-24-2014 08:53 PM

Re: Hard supraclavicular lymph node for 2 years......have questions. please help!
 
[QUOTE=kmad;5269073]Hi Jen, I was wondering if your husband got any results back? I've been praying you guys get good news. I found more hard nodes up the side of my neck now. .1 more week til I see the oncologist. Ugg! Take care,, Kelly[/QUOTE]

Yes, I will update in the original thread, you can check there for the update. In short, the initial finding is that the large 3cm node is not lymphoma or another cancer.

I'm sorry about finding more nodes :( I know the waiting is SO VERY UNBELIEVABLY hard. We have gotten through it so far by just finding comfort in the fact that appointments are made and tests will be done, that with time we will find out what is going on.


All times are GMT -7. The time now is 11:57 PM.