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29 y/o, been sick for over a year, hormone labs just in, need help interpreting

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Old 12-12-2012, 12:28 PM   #1
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Join Date: Jan 2011
Location: Boston, MA USA
Posts: 13
pg600rr HB User
29 y/o, been sick for over a year, hormone labs just in, need help interpreting

So I have a very long story (which I wont go into right now) but starting last August 2011 I started having days where I'd feel general malaise, from there things went really downhill Feb. 12'. Prior to this I have always been healthy, good shape (6' 174lbs., very active), down to 154 lbs. now.

Since Feb. 12', I have prob seen about 30 specialists at boston area hospitals trng to diagnose me, tons of tests from every specialty, labs, biopsies, imaging, scopes, ATCH stim test, etc. etc.

Just recently I saw a urologist at mens health Boston and my lab results are posted below, I have yet to have a follow up.

Here are my symptoms (either currently or at some time during this ordeal):

-GI symptoms (nausea 24/7, gas, bloating, distention)
-mid/low back pain (dull)
-chest tightness
-finger tips get prune/wrinkle sporadically
-orthostatic tachycardia [diagnosed with POTS by Dr. Freeman @ Beth Israel]
-lost 18 lbs. 2/25-3/15, unable to gain any back
-body temp has been running very low, 96.5-97.2 (was never like this)
-not sleeping well (getting up sometimes 3x night to urinate 4/6/8am, waking early unable to fall back asleep)
-constant varying levels of dizzyness/lightheadedness
-feel very cold alot, especially hands and feet
-whole body feels very sick
-sporadic dull headaches (usually just above/behind eyes but varies)
-muscles in legs, arms upper back feel tight/achey from minute I wake (horrible feeling)
-usually have feeling of adrenline rush through body upon waking in the a.m.
-restricted breathing through nose (often have to sleep breathing only through mouth)
-sexual: trouble finishing, lowered libido, not getting nearly as erect as prior

Labs/Tests That Have Been Off:
-chest CT revealed nodule in left lung
-cyst on pole of kidney
-homocycteine has been elevated
-CK levels always very low
-folate low level of normal
-D has been low
-8% atypical lymphocytes
-mild postural orthostatic tachycardia (noted on several AFT's)
-sinus cyst shown in sinus CT
-various non-sepcific metabolic markers off on mito workup
-various lyme labs have shown bands

LABS FROM VISIT W/ Urologist (they dont have units or range w/ them yet):

Estradiol 20
FSH 4.8
LH 2.1
Progesterone <0.5
Prolactin 7.6
Testosterone Total 295
PSA 0.3

From what research I have done, these #'s do not look good for someone of my age and the fact that I am not overweight and have never had any other medical problems...

Any input is greatly appreciated, really hoping I may have found an answer to some, if not all, the horrible symptoms I have been experiencing the last year!!

Last edited by pg600rr; 12-12-2012 at 12:30 PM.

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