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shining_star 11-28-2005 02:20 PM

after 9 miscarriages HELP!!
Hi there

I am feeling very sad and looking for posiable answers. I m/c'd for the 9th time last week and I was just in my 9th week. I wish I knew why my body did this, it hurts so much and I can't really trust pg signs anymore.

After letting my doctor know exactly how distressed I am he agreed to investigate for my DH&I.

One thing I came across in light of recurrent m/c's is APA, does anyone have any advice on do I get screened? etc

DH is have a SA and I'm having a sleep test for sleep apnoea.

~~please anyone with any advice or suggestions I'd be really grateful~~

tglenn 11-28-2005 07:25 PM

Re: after 9 miscarriages HELP!!
Do you what blood type you are? I know that the blood type A negative often will reject the fetus so women with this blood type have to get a special treatment from their doctor when they get pg. I'm not sure about your other questions but this maybe something you want to look into.

ASDGRMama 11-28-2005 11:25 PM

Re: after 9 miscarriages HELP!!
I'm so sorry for your's so extremely difficult. One miscarriage is hard to bear...nine is incomprehensible!!

I would suggest that you request a full clotting panel be done. My lab sheet lists the test as a: Phospholipid syndrome/ lupus anticoagulant comprehensive panel. It's three pages worth of tests. It's very thorough and will determine if you have a clotting disorder, such as APS, or not.

Other tests to consider are:

thyroid antibodies (TPO and Tg)
progesterone levels

There is also a variety of infertility testing that can be done but the treatments are experimental and/or controversial. It's considered immune testing. You may want to do some research on it.

It's frustrating to not have answers. I was able to have children but developed autoimmune disease and haven't been able to carry a baby since. We know that I have a thyroid condition but technically it shouldn't be causing my miscarriages. I've opted out of the testing for conditions that have experimental/unproven treatments. Mostly because I have children already and the treatments aren't without risks. My family needs me to be able to care for them...I can't risk it. My OB isn't very optimistic that I'll be able to carry any more babies to term so we're on hold for now...maybe indefinitely...we'll see.

Again, my heart goes out to you! I pray you'll get some answers soon!

Love and Prayers, Kelly

befer70 11-29-2005 12:07 AM

Re: after 9 miscarriages HELP!!
Hi there, I'm so sorry to hear what's been happening to you! If you don't mind me asking, are you the one that was in the July mommies board? If you are, I followed your story when you announced you weren't pregnant after all and then had good news nontheless! And now this! I went in there to read because I would have been a July mommy too, but miscarried after six weeks... it would have been my 2nd pregnancy (having aborted the first one when I was in my 20's, you might understand that i'm blaming myself now for not being able to keep that baby we were sooo happy to have conceived after only trying for a month). I couldn't imagine having 9 m/c's though! Surely there must be some tests they can do to find out why this keeps happening to you!! Unfortunately, I don't know enough about it, and sometimes it feels like doctors or nurses for that matter, don't really give you the support you really need... I sure hope that you will be able to find out, so that you can start anew and have a healthy pregnancy and a baby to take home in the end! My thoughts and prayers are with you and please do keep posting your thoughts, seems like it's good for all of us! B.

shining_star 11-29-2005 12:15 AM

Re: after 9 miscarriages HELP!!
thankyou Kelly
You know you miscarry once or twice and put it down to bad luck, but now 9 times later I can't go through miscarry a baby again, and again...the sad thing that hurt is my doctor didn't even want to regard me as pregnant then insult to injury didn't want to regard it as a miscarriage. Why do they want to assume women as ignorant and unable to assertain for themselves that they are pregnant and have miscarried. Two weeks ago he said I was pregnant yesterday didn't want to even admit that anything happened. I can't take that attitude anylonger.

It hurts physically and emotionally to miscarry and the only thing that keeps me going is that one day I'll be able to hold our baby in my arms.

So your help is so appreciated and I can't begin to tell you how much it means to me. Now I'll be able to say that I would like to be tested for this, and this.

your an angel kelly~god bless you~

shining_star 11-29-2005 12:30 AM

Re: after 9 miscarriages HELP!!
befer70 yes that was me, I felt pregnant even when I had a test that said I retried and yes it confirmed how I was feeling - over the moon!!

I really thought that this was going to be it that I would be able to go to term and hold our baby.

Your right the medical staff are reluctant to do anything because your less than 12 weeks pregnant. It's like a legal out-clause for the doctors. I am really wanting answers though I can't go through this a tenth time.
thanks B

weepyone 11-29-2005 02:44 AM

Re: after 9 miscarriages HELP!!
shining star
i am so sorry for your losses :angel: . i would ask for recurrent m/c to be investigated as it may well be something that can be treated with something like meds which may then lead to sucess for you. I read some really good books on m/c but i can't post the titles to you, have a look around i am sure good book stroes will have them in. i think not having answers leads to feeling more confused. i hope this m/c risk is sorted for you soon. again sorry for your losses wishing you every bit of luck for the future in treating the causes of your recurrent m/c, take care

befer70 11-29-2005 10:05 AM

Re: after 9 miscarriages HELP!!
shining star
I just cannot believe that no medical staff thinks this is strange, to have nine m/c's!! Even my doctor, with whom I had some disagreements on how they treated me when the m/c happened to me, said that after the second m/c they will start to investigate. Is it different from state to state maybe?

I know now how devastated it feels after only just one m/c! And I hear you when you say that you can't go through this a tenth time. If it's not a too personal question to ask: how long in between m/c's did you wait to get pregnant again? Could it be that you need to wait longer? An aquaintance of mine had two m/c's in a row after having only waited one cycle. Both times there was a sac but no baby. The third time they waited, I think, at least five months and then it worked, and she now has two healthy children!

No matter how you will decide to go about this, it sounds like you have a wonderful b/f on your side, who is very supportive, and you have us! Kelly and Weepyone have some good ideas for you and even though I can't really help that way, I'll be here to listen. Looks like I will be staying for awhile, since it is good therapy for me as well. Who knows, maybe someday soon we'll all be announcing the good news and finally carry to term! And when that happens, we should all meet and have a Margarita together or something!! ;)

Important is that you keep a positive perspective, as stupid and insensitive that sounds. My mom keeps saying: what doesn't kill you, only makes you stronger! Anyhow, this is getting long so I will stop here, but let's all keep in touch, yes?

Big (((hugs))), B.

ASDGRMama 11-29-2005 11:02 AM

Re: after 9 miscarriages HELP!!
It really is strange that no one has at the very least suggested genetic counselling (forgot to mention to have that one done...can be very expensive). With my last miscarriage they sent a part of the placenta in to be tested for genetic defects...I'm still waiting on the results though (it can take a long's been 3 months tomorrow).

I had 6 miscarriages (four in a row with two second trimester losses) before they started investigating but it was because I have had healthy children in the past. It's inexcusable even in my yours it's inhumane.

To let a woman go on miscarrying without investigating the cause is medical irresponsibility and neglect. Repeat m/c regardless if they were prior to 12 weeks or not is not "normal". It demands investigation. I'm sorry you've been treated so's cruel. Your dr is evidentally ignorant and uninformed. If at all possible seek out a different dr as soon as you can.

Please know I'm thinking of you and like befer said it's good to keep in touch!

Love and Prayers, Kelly

Nutshell 11-29-2005 09:01 PM

Re: after 9 miscarriages HELP!!
Oh Honey. I am so sorry for your losses. I couldn't imagine nine miscarriages. I have had a stillborn and one miscarriage and losing a child is so devestating no matter how far along you are. I think you should see another doctor. If they are not concerned with this there is something wrong there. My doc started testing after my stillborn baby. We didn't find anything wrong but at least he started it. You should definately see someone else and I wish you the best.

justins mommy 11-30-2005 05:52 PM

Re: after 9 miscarriages HELP!!
I have had the same problems. I have had 5 miscarriages and my fertility doctor tested me for APA (which was positive) and ANA (which was negative meaning I have it). He started me on Heparin injections and prednisone and I am happy to say I am finally 14 weeks pregnant. Push for testing, it's expensive, but worth it. I am still really nervous, but finally have some answers

Hope2Heal 11-30-2005 07:48 PM

Re: after 9 miscarriages HELP!!

I did loose my baby at 36 weeks gestation but never had a miscarriage before that. However, I did have a friend years ago who I believe also had 9 miscarriages and then did get pregant finally and have a healthy boy.

On another note, I hope you are going to get this checked out. A friend of mine found out she was pregnant the same week as me in june of 2004. We were thrilled. She had a miscarriage in the past so was bracing herself. She spotted and cramped a lot then lost the baby at 12 weeks. Then I lost mine. We remain good friends. She recently went to a specialist for answers as she was getting the run around from her OB/GYN. They found out through ultrasound that she has only half her uterus is functioning because of a peice of tissue or something that is blocking the other half. So the baby was only making it to 9 weeks growth then stopped growing. They said she could have a fairly simple surgery to correct it and then they think she should have no problems having a baby after that. She is so excited to finally have an answer.

I hope you find some answers to your problems. It is not fun getting tested and poked and prodded but sometimes the answer is easily detectable. The unknown is so unsettling.

Good luck and keep doing research. Don't give up!


shining_star 12-01-2005 03:22 AM

Re: after 9 miscarriages HELP!!
Thankyou all so very much for your kind words and helpful advice and concern for what has happened to us.

I tried to write something yesterday but the words just weren't there, I realise that I'm grieving. It's also hard when you realise that you've had ingnorant/arrogant Doctor's in the past that truly haven't wanted to know about it and then when it happens again you don't go to the Doctor's for the way they treated the previous one and you don't even trust your own instincts when it comes to your body anymore because the way they treat you as well....I've had enough of this kind of treatment. Maybe it's Australian Medical Systom?? But you are all right - it's inexcuseable or even inhumane - I feel very special for the way the Doctor's have looked after me {not}it's wrong.

I am really trying to hold on not wanting to get too down or depressed because it takes too long to get better and does nothing to help conception for next time... so I cry, get angry and let it out and think of all the new information regarding the testing that will bring about answer's and then I don't feel down anymore - - there is hope and I am by crikey going to make sure that my Doctor gives me the relevant tests and then I will change to a female doctor.
One that will see me now, and see me when I confirm the next pregnancy, and will see me from confirmation to book-in. After having so many losses it's too long for me to go without medical attention to wait until 12 weeks.

Thankyou for being here, thankyou for your encouragement, help and advice and your hearts for listening and caring. I appreciate it so much

~love and prayers~ shining star :angel:

weepyone 12-01-2005 06:10 AM

Re: after 9 miscarriages HELP!!
i know what you mean about waiting for medical attention in pregnancy. after my previous m/c i wanted support and monitoring in the beginnng but had to wait till i was 10 weeks to see the midwife i was a mess in this time. you would think it had been realised by now that women need support in the beginning when risk of m/c is at its highest especially for those women with a history of m/c rant over. take care shining

LostMyself 12-01-2005 10:04 AM

Re: after 9 miscarriages HELP!!
I am so very sorry for you losses. I myself hit M/C #10 last month. Devastating and frustrating. I do not know why this keeps happening and YES some dr's are completely useless in this situation. I have had no luck in finding one good, HUMAN doctor in all of this and I have been TTC for 3years now. It's tough but wanting a child is such a strong desire.. it's so hard to give up. I don't really have any advice. But I just wanted to say I am there with you trying everything I possibly can to make it happen. Goodluck! I truly hope it happens for you very very soon.

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