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20 weeks pregnant with RARE form of conjoined twins. HELP!!

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Old 09-03-2012, 07:03 AM   #1
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12345abcde HB User
20 weeks pregnant with RARE form of conjoined twins. HELP!!

Hello Ladies, I am brand new on here and I hope I am posting this in the right area. If not, I am very sorry.
The reason I am on here is because I just received horrible news 4 days ago regarding my baby boy. I went in for my 20 week US/exam, and that US showed something very different. After two sets of US Techs looking at our baby (at 2 different locations), I was told that my baby boy is actually a set of identical twins... Conjoined twins. The specialist we were sent to 4 days ago, confirmed we have the RAREST case of conjoined twins.
It is called "Cephalothoracopagus" Conjoined Twins. Only 2% of ALL conjoined twins are of this rare type. Our precious twin boys share 1 head, share 1 face, share 1 thorax, and share all organs. Our twins have 2 spines and 2 hearts. There are a total of 4 arms and 4 legs. This very rare form of conjoined twins are in NO way separable and will NOT survive outside the womb. The specialist I saw yesterday does not believe they will live inside of me for much longer. The brain and the two hearts are abnormal in their structure and form, making them incompatable with life.
Now, this is my very 1st pregnancy. I am 33 yrs old. I ended up seeing not one, but 2 specialists this week to confirm the diagnosis and get a different opinion. BOTH specialists I saw, told me the same thing. They suggest I end the pregnancy as soon as possible to avoid certain risks in delivering them down the road. I understand that conjoined twins pose different issues in the labor and delivery dept., but what I am struggling with is how do I decide what is best for the twins and my health. Both specialists told me that if I wait and deliver them later in the term, they would most likely have to do a C Section, which is not the route they want to go with me... because I REALLY want to try for another baby down the road and having a C Section now could result in complications with any future pregnancies. They want to preserve my uterus as much as possible. I understand that.

What I am struggling with is, if I should have my conjoined twins, via inducing, earlier than the normal 40 weeks. This is so hard on me, as I feel their limbs move about me, day and night. It's a CONSTANT reminder that they are still living inside of me, but I know they won't, the moment they come out into the world. It's playing with my mind as well. I have seen images of what my baby looks like and it pains me. While I believe my precious twin boys are still so beautiful, I know the truth on what they really look like. And it's so so so so sad!! That is also playing with my mind. Knowing that I helped create a set of twins that look so different than any other baby... or for that matter, any other form of conjoined twins! I am taking this very hard. I want to start healing from this but I feel I can't, until I deliver them and give them a proper funeral. I went to Target today, and a lady came up to me, and asked my when I was due... as I am showing. She asked me with excitement. And I just started bawling in the store. It was aweful! Knowing they will not live, yet still feeling them move about my belly is KILLING ME!!! I don't know what to do! I am thinking of having them induce me at 22 weeks. Any advice on this is greatly appreciatd.

Last edited by Mod-S4; 10-13-2012 at 01:12 AM. Reason: Disallowed topic removed.

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Old 10-12-2012, 05:41 PM   #2
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Re: 20 weeks pregnant with RARE form of conjoined twins. HELP!!

How are you doing? This is heartbreaking to read, and I really feel empathy for you. I am so very sorry you are going through this. I do not believe God will punish you for early delivery. He sees your heart to do the right thing. Your babies may be best suited to be in heaven rather than struggling over the same body. There is a purpose for their short life, and God knows what that is. I am so very sorry for your pain!

Old 10-12-2012, 06:31 PM   #3
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Re: 20 weeks pregnant with RARE form of conjoined twins. HELP!!

My heart goes out to you and your family, I can't begin to imagine what you are going thru. you need to pray about this God will help you through this time . I know that only you can make this decision but you must think of yourself and your health also. I am so sorry that you or anyone would have to be in this situation I will keep you in my prayers
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Old 10-13-2012, 03:19 PM   #4
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Re: 20 weeks pregnant with RARE form of conjoined twins. HELP!!

In my opinion, it was mean that this thread was moved to the Miscarriage board. The mother had not delivered. She was pregnant and seeking advice for her pregancy! The babies are living.

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