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  • Lifetime EBV sufferer

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    Old 03-08-2017, 07:41 AM   #1
    MichelleB61
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    Lifetime EBV sufferer

    Unfortunately, even though over 95% of the world's population is infected with this virus, there is little known on how to deal with it when it raises it's ugly head. I've been dealing with this for 56 years. I was born with it. I had herpes lesions on my face that had to be cleared up before I was allowed to be adopted. I had these lesions appear on my face again at the age of 15. I ran a fever of 102+ degrees for 28 straight days at the age of 37. It was then I was finally diagnosed with EBV. Not by my doctor, nor the Infectious Disease Specialist I was seeing, but by a visiting Infectious Disease german scientist that was visiting the lab that I worked at. He knew that I had been out sick for a long time, and when he visited, he noticed the lymph nodes in my neck were swollen. He took blood, asked me questions about my history, and within hours he diagnosed me. I took this information to my doctor, who then ran an EBV test and found my levels to be extremely high. I was told there is nothing that can be done, and that I had to just ride the EBV wave until it was over. Now I'm 56 years old, and I was just diagnosed with Mono, and my EBV levels are off the charts. Again, no words of wisdom from my doctors, except that now we understand what caused my debilitating bowel issues last year, and my recent bout of chronic ear infections, which BTW, I finally found relief by seeing a chiropractor. Yes I said chiropractor. Once he popped my neck, my ears instantly started draining. I haven't even mentioned the debilitating fatigue. UGH! I've spent the last two days, since I'm highly contagious with Mono, researching any type of relief for EBV. I found that we need to be sure to take Vitamin D. EBV can cause low Vitamin D in our bodies, and without it we are especially susceptible to MS. I also found that high doses of Vitamin C relieve EBV symptoms and keeps it from reoccurring. However, I'm talking about 50,000 mg of Vitamin C. You have to receive this by IV. So, since this is not an option, and I have zero clue who or where does this, I'm sitting here consuming fruit and veggies that are high in Vitamin C. Has anyone out there found anything else that could possibly help?

     
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    Old 03-21-2017, 11:36 AM   #2
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    Re: Lifetime EBV sufferer

    Hi Michelle, welcome to the Boards. I hope you are doing better -- sorry I didn't see your post sooner.

    I am your age and I too have EBV and have had mono 3 times. Many doctors will give you a Vitamin C IV in their office. Did you ask your doctor?

    I was just diagnosed with CVID, which for me, explains years and years of chronic viruses and infections. I don't know why years of doctors never thought to look for it. I was referred to an allergist by a doctor who thought I was making it all up. Well the allergist turned out to also be an immunologist -- who immediately guessed what I had once he heard how many times I have been sick. But it then took 8 months of blood tests to confirm the diagnosis.

    It may be something to ask your doctor about.

    Please let me know how you are feeling.

     
    Old 11-27-2017, 10:07 AM   #3
    fuzzfrombeyond
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    Re: Lifetime EBV sufferer

    I am truly sorry you've had to go through what sounds like an intense struggle with this illness but I may have some things to offer that have helped me! I had mono last year and I was bed riden for 2 months and suffering from a range of symptoms like fatigue and swollen organs.I used all that time to research because I didn't have to work or any stresses to worry about except recovering from this.I found basically that a holistic method is the only real solution.You have to rid your life, your mind,body and soul of anything toxic while planting and growing everything that is good.I started with a whole foods low to moderate fat plant based diet that allowed my body to heal itself without dietary factors contributing.Clean water and air were vital.Reducing stress using meditation.Breathing exercises and cold showers will change your life these 2 things have been the focus of my year in healing post mono. Forrest bathing has amazing health benefits, which is basically just going out into the forrest all the trees have oils that they give off that are good for your body.Check all your nutrient levels. Use herbs to heal.The more active you are walking and exercising all day the faster you will heal. Optimize in everyway and you will get better, not only will you get better but you will find meaning in all this suffering if you just persevere. You got this!!!

     
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    Old 12-15-2017, 11:25 PM   #4
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    Re: Lifetime EBV sufferer

    Thank you, fuzzfrombeyond, for all the great information! And welcome to the boards.

     
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