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  • Odd case of Mono for the third time? Help!

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    Old 08-03-2009, 10:07 AM   #1
    Blueskies74
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    Odd case of Mono for the third time? Help!

    Hi There,

    9 weeks ago, I developed the following symptoms:

    High fever
    Swollen lymph nodes (neck & back of head primarily)
    Eye pain
    Slight cough
    MAJOR fatigue
    Fever (100-101)
    Night Sweats

    Took a monospot test- Positive
    Antibody test- Equivocal (current infection not confirmed)

    As time has gone by I have developed:

    Spenomelgy (confirmed by ultrasound)
    Constant low grade fever (99-100)
    Itchiness
    Intermittant vomiting
    Intermittant diaherrea
    shortness of breath
    chest pain
    Swollen lymphs in armpit and clavicle
    High Platelet Count (456)
    Increased Basophils

    All other CBC counts in range.

    I had confirmed mono in 1987 & 1990 both much milder cases.

    This is the 9th week now, and I am not feeling any better.

    Anybody have any idea how long this potentially could last? Should there be concern of misdiagnosis (getting concerned about lymphoma)?

     
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    Old 08-03-2009, 10:27 AM   #2
    Blueskies74
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    Re: Odd case of Mono for the third time? Help!

    PS- I have also lost 17lbs and have no appitite.

    Had a strep test-negative

    I'm a 34yr old female

     
    Old 08-03-2009, 09:44 PM   #3
    harka
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    Re: Odd case of Mono for the third time? Help!

    Hi Blueskies,

    Those previous times you had mono, was it also confirmed by a heterophile antibody test (i.e. monospot?) In a healthy individual with a normal immne system, getting EBV-induced mononucleosis is VERY unusual. There are other infections, though, which can cause mononucleosis OTHER than EBV (such as CMV to give an example).

    Are you still having fevers? Have you been tested for HIV?

     
    Old 08-04-2009, 04:51 PM   #4
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    Re: Odd case of Mono for the third time? Help!

    Thank you for your response Harka!

    I did indeed test positive previously with the monospot tests.
    I tested negative for CMV. What other infections that I should be aware of???

    My fever is still present continuously (going from 99.4 at a low to 101.6 as a high in the last week).

    I tested negative for HIV a year ago, and haven't engaged in any high risk behaviors since that time.

    Thanks again for taking the time to respond!

     
    Old 08-05-2009, 01:50 AM   #5
    plasva
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    Re: Odd case of Mono for the third time? Help!

    Has the doctor ever ordered an Epstein-Barr Virus Antibody panel? It's nice because it comes with an interpretation of the results (past vs. current infection.)

    To me, it sounds like your Mono. "acting up" again. I know someone who's had it "come back" a 2nd time.

    As far as how long it will last, my boyfriend had it around age 25, and he said it lasted a few months... described the awful fatigue you're describing and said he felt horrible for a few months (I think around 3 months...sorry.)

    I hope you feel better soon!

    PS: I wouldn't worry about it turning into Lymphoma. Just get another CBC in a few months to put your mind at ease.

     
    Old 08-05-2009, 08:23 AM   #6
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    Re: Odd case of Mono for the third time? Help!

    Thank you so much plasmadiumovale! I did have the EBV Antibody panel twice now. The first result was 6 weeks ago with a 'Equivocal' for current infection, and 'Positive' for convalescent infection. Last week they repeated the test with the exact results.

    Doc says she would think I would be feeling good based on those results-with an odd day of fatigue, so she's concerned.

    She has a CT scheduled and a biopsy for me to be sure what's going on.

     
    Old 08-05-2009, 01:11 PM   #7
    shyf
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    Re: Odd case of Mono for the third time? Help!

    I had 3 separate cases of EBV mono with 2 relapses of previous infections. My immune system still hasn't recovered 100%. My last known new case was a year ago and I've still not recovered from the fatigue and my lymph nodes remain swollen. I've been on multiple anti-virals and it never helped.

     
    Old 07-19-2011, 04:46 AM   #8
    mysteriousmilli
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    Re: Odd case of Mono for the third time? Help!

    Hi, whilst its unusual its not unheard of to have it multiple times. I was dx first time 3 years ago, very severe case was off work for several months, then again 18 months ago quite mild, now found out today have tested postitive for a third time and feel quite awful most of the time. Just had to cancel my place at a music festival in a few weeks, can't bear the thought of 50,000 people in a field with potentially 50,000 different infections for me to pick up. Take care of yourself!

     
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