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    Old 05-02-2015, 09:26 AM   #1
    guille1966
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    Would like to share list of strange symptoms

    I have been having a number of strange neuro symptoms for the last 6 years and hope that some on this board might be able to share their knowledge. I am a male, 48, and am physically active. No diabetes.

    The latest is muscle rigidity in colder temperatures. But not very cold temperatures at all - it was just 60F outside according to my thermometer. I was wearing just a t-shirt and long parts, and as I said temp was 60F and there was no sun out. After about 20 minutes outside I noticed in both my arms difficulty moving fingers and wrist. It was worst on the right and when I move fingers up and down and wrist up and down. Went away after a few minutes inside. This has happened to me twice - similar temperatures outside. I have lived in MD now for 15 years and have had my face go numb that I can't talk - shoveling snow at 20F and 30 MPH winds blowing on my face! It doesn't seem normal that this could happen at a comfortable 60F.... or is it?

    My very first neuro like symptom occurred in 2009 - Lhermitte's sign. I would feel buzzing sensation on my butt when I moved my head down. Immediately went to a neuro. He ordered xray of the neck, MRI of neck and brain*no contrast), and VEP. All where normal. Over the years this would come and go. Mostly on the left side. Sometimes on the right side. Usually it would be a tight pressing sensation. Sometimes it starts in one sport and moves. Sometimes it stays. Usually I feel it in the fingers. Never had the electric sensation, but I have had tingling sensation on the fingers.

    Some time later I started to noticed that if I touch a certain part of my foot, I can also feel the sensation on my thigh. Over time this started to spread to many other parts of my body. Now it is everywhere. Just a few examples: If I touch my ribs on the left side in certain spot, I can feel the sensation on my left elbow. If I touch my face on the right side, pretty much anywhere, even ears, I can feel a strange sensation over my right eye. If I rub my right cheek I can also feel a sensation on a specific spot on my ribs and right my knee. If i touch a specific spot on on a finger on my right hand, can feel it too on the elbow. The list goes on and on.

    About 4 years ago I started to noticed rigidity on my left finger when ever it is cold. Specifically it is difficult to move the finger up and down. Goes away If I warm up. This also happens when I start to exercise. As I am warning up starting the exercise I noticed difficulty moving that finger. Actually the whole hand feels strange. I have also noticed that in this stage my hands feel cold on my face. But after everything is warm, it is back to normal.

    Recently I have had some strange new systems that I suspect to be raynauds syndrome. But I thought that I'd mention anyway. About 3 months ago I noticed that my hands and feet were really red. Color begins to become normal if I raise my hands over my head. Initially thought it must be an allergic reaction to sometime, but, the issue continued days after. That first instance was the most severe and lately it seems that the color change happens when there is a temperature change. For example, taking a shower, or walking into a room after being outside in colder temperatures.

     
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    Old 05-02-2015, 10:22 AM   #2
    MSJayhawk
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    Re: Would like to share list of strange symptoms

    guille1966,

    Welcome.

    While some of your symptoms do indeed resemble Raynaud's Syndrome, not all do. Raynaud's Syndrome is an MS mimicry. MS has many mimicries (400+ known). For me, my lower tolerance is at 52 F (11.11 C). Below this and I have head, hands, and feet issues. Mine is MS rather than Raynaud's Syndrome.

    At the time you saw the neuro, was this neuro an MS Specialist? About 5% of MSers present initially with symptoms, but without visible lesions on their MRI. For others, doctors with little or no MS experience can literally miss the images.

    Raynaud's Syndrome is a treatable disease. I would encourage you to seek out an MS Specialist from the standpoint that they will run the gauntlet of tests to eliminate the MS mimicries. If one of the mimicries is identified, you would likely be see by another specialist, but you would not be wandering in limbo land.

    Thanks for sharing. I hope you can get to a definitive diagnosis.

    If we can assist you, we are here. Ask as many questions as you need.
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    Last edited by MSJayhawk; 05-02-2015 at 11:53 AM. Reason: typo

     
    Old 05-02-2015, 03:33 PM   #3
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    Re: Would like to share list of strange symptoms

    Hi guille1966,

    Lhermittes sign is not exclusive to Multiple Sclerosis as there are other causes for this symptom. When Lhermittes is related to MS it is caused by a lesion(s) on the cervical spinal cord.

    Lhermittes causes abnormal sensations such as vibration/buzzing, electrical shocks, tingling from the spine down. The sensations will only last seconds but can be repeated each time the head is bent down.

    Quote:
    About 3 months ago I noticed that my hands and feet were really red. Color begins to become normal if I raise my hands over my head. Initially thought it must be an allergic reaction to sometime, but, the issue continued days after. That first instance was the most severe and lately it seems that the color change happens when there is a temperature change.
    You really should bring this to your Drs. attention. This does not sound like Raynaud's as it would not go away from raising you hands above your head. My Daughter has Raynaud's and her fingers and toes turn white, red and sometimes bluish. This can be caused by heat or cold as well as stress. Position of her body does not affect it.

     
    Old 05-02-2015, 04:24 PM   #4
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    Re: Would like to share list of strange symptoms

    Hi there. I agree, this does not sound like Reynauds. I was just dx with Reynauds this winter. And, I have MS. My doctor explained that Reynauds can be primary, or secondary. In my case, its secondary to MS.

    When I am out in the cold, my feet- especially my toes- turn completely white. This does not go away with any type of exercise or raising my feet. I can warm them up, even by putting sock warmers in my shoes, but it only goes away after an hour or so of heat. Instantly, is out of the question. Its extremely painful...to the point where I cant put weight on my foot. Its caused some pretty severe problems this winter.

    Now that its warmed up quite a bit- it hasnt happened to me. Even with extreme stress, my father passed away unexpectedly last week, I havent had these symptoms...

    I think you need to really see a good vascular doctor to get a true Reynauds diagnosis- and an MS specialist if you still think its MS related.
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    Old 05-03-2015, 08:16 AM   #5
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    Re: Would like to share list of strange symptoms

    I also have Raynaud's Syndrome and MS. Do these things often go hand in hand? My fingers will turn totally white in the cold and it takes a while for them to turn pink again. Feels uncomfortable. My mom has the same thing. It only started for me this winter.

    Last edited by mindi111; 05-03-2015 at 08:23 AM.

     
    Old 05-03-2015, 04:05 PM   #6
    guille1966
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    Re: Would like to share list of strange symptoms

    Thanks for the replies.

    I would agree with the comments that what I am experiencing is not exactly Reynaud's. But is something like it. In addition to the red hands and feet, my big toe on my right foot turns white and becomes numb. Again, like Reynaud's, but not exactly. My case is not related to temperature at all. My toe and part of the palm on the foot goes white when I walk, run, or just put a lot of pressure on that specific part of the foot. I was able to make it come and go by changing the way I walk. Toe goes white when I walk normal, becomes normal when I walk on the blade of the foot. Is that strange, or what? It is superficial, just the skin that goes.

    The really strange one though is if I touch one part of the body then feel it in another issue. If I touch a specific spot on the left side of my knee, I feel it on the right. There are many spots on my body that will do this. Anybody heard of this one? I have not been able to find much about this on the net.

     
    Old 05-03-2015, 05:53 PM   #7
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    Re: Would like to share list of strange symptoms

    guille1966

    I have not had the symptom you described just now. This is, however, real. Unfortunately this is still not fully understood. What you are experiencing is called Allochiria (a Greek origin word meaning "other hand"). This is a neurological disorder in which the patient responds to stimuli presented to one side of their body as if the stimuli had been presented at the opposite side.

    There is a theory to Allochiria called Hammond's Theory which assumes that there is an almost complete decussation of sensory fibers within the grey matter. Another theory is Huber's theory which relates to lesions which cause a blockage. From what I read, this symptom eventually goes away. A neurologist should be able to assist you with this investigation.

    If anything, this is quite specific of a symptom and should help you get some further testing done. Stay strong!!
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    Old 05-03-2015, 06:19 PM   #8
    guille1966
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    Re: Would like to share list of strange symptoms

    Actually in my case it is on the same side. Touch one spot, feel it in another on the same side. Usually, feel it higher up. For example, touch a specific spot on my foot, feel it in a specific spot on my thigh. When it goes up it appears to be permanent ounce it starts on a spot. Sometimes I will get spots where I feel touch going down (touch stomach left side, feel it somewhere left leg), but those tend to last a few days. I do have some spots where I can't tell if it goes up or down. For example, on my left leg if I touch a specific spot on the left side of the knee, I can feel it somewhere on the right side - of the same knee.

    Anyway, Allochiria gives me a starting point to do my search. Trying to search by the description of the symptom lands way too many hits that have nothing to do with what I am looking for.

     
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