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    Old 06-26-2004, 02:06 PM   #1
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    Optic Neuritis

    Hello. I am new here. I have not yet been diagnosed with MS, though it's something I've suspected for years. Right now I'm diagnosed with Fibromyalgia. I've never had any MRI's done of my brain or spine to dx MS.

    I had optic neuritis about 18 years ago when I was 14 or 15. I've read that 55% of those that have optic neuritis will go on to develop MS.

    So here is my question, who has had optic neuritis? Did you get it before or after your MS diagnosis?

    Thanks in advance for your replies.

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    Old 06-26-2004, 03:53 PM   #2
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    Re: Optic Neuritis

    I have had optic neuritis. I had it in March of 2003, and was diagnosed with MS in December of 2003. My ophthalmologist wanted to do an MRI when I had the optic neuritis, but until then I had never heard any mention of MS. So I told him that he was crazy, and I didn't have MS. The O.N. cleared up on its own, and I let it go. But then about 6 months later I developed numbness in my mouth, on the same side of my face that I had the optic neuritis on. Something smelled fishy to me. So I called my internist, as well as my immunologist. Both said to see a neurologist. I did, and while he thought that I was perfectly fine from his physical exam (yeah, right. I can't walk in a straight line, but I'm just fine.) he sent me for an MRI of the brain. It showed several lesions. I went to see an MS specialist, and in January of this year I had a spinal tap and the diagnosis was confirmed.

    So, I didn't have a positive diagnosis of MS when I had the optic neuritis, but that's only because of my own stupidity and me refusing to have an MRI. I guess I just didn't want to believe it could happen to me. But even though I didn't have a positive diagnosis when I had the O.N., looking back on all of m y "klutziness" and other physical symptoms over the years, I have probably had MS for a long time, long before the Optic Neuritis. That's just what led me to eventually seek a diagnosis.

    Old 06-28-2004, 03:33 AM   #3
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    Re: Optic Neuritis

    I don't know if it was it was diagoxed as optic neuritis, but my first sympton was blurred vision. I went to an eye doctor who gave me a prescription for glasses, which i never filled. About 1 year later my legs became numb like novacane and stayed that way. An MRI showed MS. That was 22 years ago. It is relapsing remitting, but slowly progressing the last five years.

    Old 06-29-2004, 12:32 PM   #4
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    Re: Optic Neuritis

    Hello Redwing...

    I had 2002...
    I have posted my experience on here under optic neuritis....
    But in short...i was having Dbl vision and went to ER..and got an emeregency MRI..nothing seen....was admited over night...sent home said i was stessed...and thats what it was from..but they did say the MRI was for suspicious of MS..
    Then vision was dark and grey and color was freaky and was put on Solumedrol for 7 days IV...
    Vision shorta came back there is obvious demage of the nerve and still effect of that..dim color when entering dark place..and depth off.

    Now...2yrs later...L'hermettes Sign....GP sending me back to a neuro again..July 29.

    I have had no dx.
    I do have all my documents from my old neuro....he sadly left. But i do have all the test rests and his notes.
    Hope this helps in some way...

    Old 07-01-2004, 11:59 AM   #5
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    Re: Optic Neuritis

    Originally Posted by redwing074
    I had optic neuritis about 18 years ago when I was 14 or 15. I've read that 55% of those that have optic neuritis will go on to develop MS.

    So here is my question, who has had optic neuritis? Did you get it before or after your MS diagnosis?

    It's interesting that you asked that question. I made a different post, but my mom was diagnosed with MS about 2 months ago. It came as a real shock. She just woke up one morning and coudln't walk. All her mobility functions were not working. After being in the hosiptal for 4 days and running all kinds of tests, they determined that she had MS. This actually was her second episode. Her first episode happened over 20 years ago, when she had optic neuritis. The doctor's didn't even think of that until after the fact .... so to answer your question, my mom had optic neuritis before she was diagnosed with MS, but the optic neuritis was actually her first episode.

    I hope that helps .... and i hope that you find the answers you're looking for.

    Good luck and take care.
    Love kitten

    Old 07-01-2004, 12:04 PM   #6
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    Re: Optic Neuritis

    Redwing, I've heard of many people who had eye problems, went to the opthamologist and he made them go for an MRI which determined the MS. Apparently it can be seen when its ON easily. But, of course, all cases differ!

    Old 07-03-2004, 07:07 PM   #7
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    Re: Optic Neuritis

    Hey Redwing!

    You may or may not be familiar with the MS story of Montel Williams, the famous talk show host. One of his earliest symptom was the eye problem, which resolved so no further investigation was done. Because of his work-outs on weights, the complaints with regards to leg and feet pain were attributed to the active lifestyle. It was approximately 20 years later that he was dx'd with MS. He went in for treatment of severe leg and foot pain.

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