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waiting to see neuro

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Old 11-25-2004, 06:46 AM   #1
Join Date: Nov 2004
Posts: 1
NikalPikal HB User
waiting to see neuro

Hi everyone,
I'm new to this board. I found it looking up info on ms. I'm just wondering if anyone has had any experiences similar to mine. Sometimes I feel like I'm losing my mind or that I'm just a hypochondirac (sp?). Anyway, here's my story, I'll try to keep it short.
17 years ago when I was 18, I had bilateral optic neuritis. I was almost completely blind for 2 months. I could see no color and only vague shapes of things. I was in the hospital for a week and given a battery of tests before being put on oral prednisone. I had a CT of the head, EEG, spinal tap, MRI, and tons of blood taken. The docs sent me home saying that they couldn't find a reason for my vision loss and it must have been viral. I completely recovered my vision, thank God, and went on with my life. Since then I've had strange things off and on that were mild and I blew them off. Things like numbness and tingeling in various parts of my body and fatigue for no reason. Last Sept. I had a really bad spell that lasted a month. I was very weak and had extreme fatigue. I was told that I had a nasty virus as the docs could find nothing wrong. Now for the past several weeks I've had a big patch on my left shoulder blade that feels like pins and needles, like when you've sat on your foot and it's fallen asleep. It's constant, but the pressure of my bra strap seems to lessen the sensation. My right hand and arm is also becoming very weak. I told my pcp my entire life history and that I'm concerned that I have ms. She ordered an MRI which showed 2 nonspecific periventricular white matter changes. I didn't have an MRI of my spinal cord, just the brain. Now I'm just waiting to see the neuro on Dec. 14. I don't want to have ms, but in a way the dx would be a relief because it would be an explaination for all of the strange things that have happened to me. My pcp is not saying yea or nay to ms, she's covering her butt and leaving it all up to the neuro.
If anyone has any advise or insight, please reply.

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Old 11-25-2004, 04:24 PM   #2
Senior Veteran
Join Date: May 2004
Posts: 1,069
apriltones HB User
Re: waiting to see neuro

hi, i have neuro symptoms, you can read my posts on here or fibro if you want. I have that symptom with tingling on shoulder blade, exactly same place!!! i really dont know what it is?? i just thought id tell you, sorry i cant be of any help. april x

Old 11-26-2004, 07:30 AM   #3
Join Date: Oct 2004
Posts: 62
angie81 HB User
Re: waiting to see neuro

HI NikalPikal
I am 23 and was just dx on monday with MS. I had alot our your symptoms at firtst i had opitic neruritis but mine was in my left eye and i couldnt see thing below like the floor and things it really scared me I had no idea what to think. So after a week of having it i went to my GP and he thought that I had had a stroke and so they did blood work and CAT scan but everything was norm. so I went to the University of Iowa and they told me that I had this then I went to My neuro on Monday and he said that I had 4 abnormal lesions. And that i had MS. WOW that was a shock even though the doc told about it at the U i was just in shock. But now that i think back about everything it all falls togther my legs fall asleep for no reason my pinky and finger next to it always has a weird feeling to it up to my elbow and I have a hard time FX in school and concentrating the Fatigue is horrible I have to take a nap everyday with my 3 yr old and i still feel that I havent gotten any sleep. So hopefully when you go to your neuro he will give you some advise. But make sure that you take alot of question that you have and make him answer them that is what he is there for. Good luck and I will be thinking of you.Angie

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