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Please, help- when do you repeat an mri?

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Old 01-21-2005, 05:03 PM   #1
Join Date: Jan 2005
Posts: 9
newlife00 HB User
New, Please help me- need to repeat my MRI?

Hi Everyone,

First of all, I really appreciate you reading this. I'll make this as brief as possible - I'm almost 34 years old... about 2 years ago I developed Optic Neuritis in my left eye. Not long after, I got it in my right eye. I had all the MS tests - spinal tap was negative and the mri had a couple spots that I was told were not "ms-like". I have also developed anti-bodies to my Thyroid (hashimoto's) - but Lupus was ruled out by the blood test. Here is my question. For the past couple months I have been feeling generally very dizzy - it's the feeling like someone just spun me in circles then stopped. I have tingling in both hands at least once a day and the shakes when the tingles happen. - I am very fatigued and have also started twitching (especially at night- bedtime) - I also have some bad leg cramping. I have some abdominal discomfort on the left side that just started today, and my left arm and hand went quite numb. I phoned my internist who said I should immediately see a neurologist - is it even possible that I could have MS show up in tests only a year and a half after showing negative? Anyone have something like that happpen? Perhaps you could suggest other things that could cause these symptoms? I really appreciate your comments - I'm a bit scared.

Last edited by newlife00; 01-21-2005 at 10:17 PM. Reason: adding info.

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Old 01-22-2005, 12:05 PM   #2
Join Date: Aug 2004
Posts: 316
baddoey HB User
Re: Please, help- when do you repeat an mri?

I would suggest getting another MRI - I just recently got dxed with MS and my symptoms are mild like yours - this in no way means that you have MS, people with MS have tons of different symptoms (no 2 cases are alike) - there are many other things that mimic MS and cause "spots" on the brain. But I agree with you internist, get another MRI an blood work and start the process of isolating the problem.

Old 01-22-2005, 10:53 PM   #3
Join Date: Jan 2005
Posts: 9
newlife00 HB User
Re: Please, help- when do you repeat an mri?

thank you baddoey - It meant a lot that you wrote to me. I do wish that your degree of MS stays as mild as possible. How long were you having symptoms before you were diagnosed? Were the symptoms on and off?

Old 01-24-2005, 06:37 AM   #4
Join Date: Aug 2004
Posts: 316
baddoey HB User
Re: Please, help- when do you repeat an mri?

I was having symptoms for just a few months. . and they are on and off - even through the day.

Old 01-24-2005, 04:27 PM   #5
Leanne R
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Join Date: May 2004
Posts: 186
Leanne R HB User
Re: Please, help- when do you repeat an mri?

Hi New,
I am in the same boat as you. I have been ill for a long time (10 years) but my eyes are now really being affected (can't focus, attacks of vision loss for a minute or so and I have problems with bright lights) I have numbness in two places which is severe. I feel so tired and fatigued and often feel sick and flu-like. I am undiagnosed at present as nothing has shown up on my MRI or LP but I too have thyroid antibodies, as my mum has Hashimotos they said it might be just something I was born with (I can't see how these antibodies are doing nothing) my thyroid function tests are all normal.

My aunt had MS and after 10 years despite not having a diagnosis I am convinced I have MS as it has got worse over the years.

I am thinking of going back to my neurologist again to ask for anothe MRI (last one was two years ago) I feel awkward asking him for these tests as they make you feel that you are asking for something which is unnessicary.

I am also going to try nd approach my endo again to see if he wil do more tests on my thyroid like an ultrasound or something.

L x

Old 01-28-2005, 02:00 PM   #6
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Join Date: Jan 2005
Location: ohio
Posts: 26
jaycasa1231 HB User
Re: Please, help- when do you repeat an mri?

I started with an open mri that showed 2 "spots" then I had a closed mri which showe more white matter and more "spots". still no dx but I go back in 9-10 months for another mri. I would say to have another mri. It's your body so I think it's your call. Good luck

Old 02-10-2005, 03:14 PM   #7
Join Date: Feb 2005
Posts: 80
crystal22 HB User
Re: Please, help- when do you repeat an mri?

newlife00--When my MS symptoms 1st started, I had 2 MRI's, one of my brain and one of my cervical spine. Both showed no problems, the symptoms went away, and I put it out of my mind for 9 months until I started having more symptoms. I had more MRI's which showed several demyelinated areas in my brain as well as spinal cord. I don't know why these didn't show up the first time I had symptoms, the doctor doesn't have any explanation. My point is that if you feel you need another MRI you should discuss that with your doctor. your symptoms might not be MS, but it's better to find out what's going on than to wonder all the time. Hope everything works out for the best!

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