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Numbness question...


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Old 03-05-2006, 05:13 PM   #1
curious11
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Numbness question...

Could you please post if you have experienced numbness as a symptom of MS. I am wondering if it was complete numbness to the point where you can't recognize that the limb, or area is there, or if it was surface numbness- like just the skin?

Both my legs have become numb within the past couple of days. As soon as I told my parents (who are vactioning in the Dominican Republic) they were worried that I shouldn't be driving. But as I explained to them, it is more of just an annoyance, like when clothes rub against them etc. It is not to the point that I can't control them or recognize that they are there, just surface numbness.

I am going to call my neuro in the AM and let him know about this, and I am wondering if this is a good way to describe it. How would you all describe the numbness you have experienced?

 
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Old 03-05-2006, 06:55 PM   #2
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Re: Numbness question...

Hi curious11

Numbness, my right arm is numb from the shoulder to the fingertips, I can dig my nails into that arm and not feel too much.

I know exactly what you are talking about the surface numbness, I also have that on the same arm, but, I have it to the point that when my arm touches anything it has to be soft, like fleece, my recliner [my most cherished piece of furniture], I covered it with a big fleece blanket just because the texture of the material covering the chair, bothered my arm. This surface numbness comes and goes and it is an annoyance

I have noticed lately that I am back to not being able to identify things by touch, because of the numbness in my right hand, that bothers me.
I think that Neurontin helps with the numbness, I just think that mine is getting a little worse than normal.

Does this help?
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Old 03-05-2006, 07:26 PM   #3
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Re: Numbness question...

Hi Curious,

I know exactly what you are talking about. The symptom that sent me to the hospital, which was one that I had experienced 10 years prior was that kind of surface numbness. I had the numbness on the right side from the waist to the toes. It was as though the line of demarcation was my spine. It was exactly 1/2 of my body. I could use my leg and foot just fine, but it was an annoyance because it was an unusual sensation. I would tell the doctors that it was like it was just surface numbness, like you describe -- that it could really be noticed when clothes rubbed against my thigh. Odd.

Fran

 
Old 03-06-2006, 05:53 AM   #4
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Re: Numbness question...

Thanks guys! I am going to call my neuro in a little while and let him know. I think I black out when it comes to recalling old symptoms. And when I say old... it was only 6 months ago! haha But I know that this surface numbness from my stomach down was prominent during my last attack. And by the time I got in to see a GOOD neurologist, my feet were completely numb. I think they use that vibrating metal tool, and I could never feel the buzzing on my feet. My concern is that the surface numbness I have on both my legs will just lead to more symptoms if I don't do anything about it, and since I have been feeling pretty good for the past few months, I am not willing to take that risk! Things were just starting to get back on track, so I would like to keep them that way. Thanks for posting! Take care

 
Old 03-06-2006, 06:22 AM   #5
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Re: Numbness question...

to descriobe my nubmness,, it's onlu liek maybe an inch or so deep,,, cause i could still feel the bone,, cause i sprined my ankle,, and i could feel that hurting but couldn;t feel my skin,,, and i can pick up hot things or touch a hot pan and not know i burnt it till i looked and saw it,, it's really weird,, the other day i burnt my finger again i didn;t at first,, and i know i was on the area for about 15 seconds, and all the sudden felt it,, i guess the deeper the heat went the better i could feel,, cause it hurt like a *beep* lol

 
Old 03-06-2006, 06:53 AM   #6
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Re: Numbness question...

my numbness is more like a buzzing feeling, not really numb at all. just a buzzing that occurs under the skin of my left hand. for the past month i would awake from a deep sleep to find that the hand had gone completely dead. that has since stopped happening. sometimes i will feel the buzzing under in theballs of my feet, but this is more pins and needles and this is a bit painful.

 
Old 03-06-2006, 08:47 AM   #7
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Re: Numbness question...

Before I was diagnosed there were times when I had to actually look at my legs if I was in bed to see if they were bent or straight due to the numbness. I still get it taht severe at times, but my "normal" is now a tremendous loss of sensation from my rib cage down and worse on the right side. I also had one side of my face that was affected during one exacerbation which was attractive!!!! Got to love the adventures that come with MS!!!!!!!!!!!!!!!! Everyone is different but hopefully your numbness will be temporary! Blessings lucybelle

 
Old 03-06-2006, 08:12 PM   #8
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Re: Numbness question...

I too know exactly what you are talking about. My MS symptoms starting in Sept 2005. I went to take a shower in the morning and couldn't feel myself washing my right side. Immediately I thought I had a stroke.. After the diagnosis of MS I was able to put 2 and 2 together with the weird sensations down my spine when I bent my head...

Last episode my feet went numb, along with the left arm, which till this day almost 2 months later is not 100%. My 2 finger tips in my left arm are constant pins and needles. Occassionally my right side of my face feels tingling..

I guess my question to piggyback on Curious11 is ; Does this stuff ever go away? And if you still experience this numbness and issues while on meds, does that mean the meds are not working??

I appreciate any feedback. Thanks Curious11 for posting cause I felt like I was nuts!!!

 
Old 03-07-2006, 07:46 AM   #9
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Re: Numbness question...

Melissa, as far as my understanding goes there are some symptoms that don't go away. For me those would be hand tremor, spasticity, weakness, balance loss etc. For others it would be constant numbness and/ or tingling etc. The way I think of it is... you start off at 100%. With every attack you lose alittle bit of that. It may not be noticable at first, but over time, symptoms start to stick around and disability may start to set in. The medications role is to prevent new attacks from happening. I don't think of the CRAB drugs as doing much for symptoms once you have them. I consider that the job of the numerous drugs on the market to treat the specific symptoms of numbness, spasticity, tremor etc. I think doctors judge the CRAB drugs efficiency by the number of attacks you are having every year or so. If that number is increasing, I would say the medication isn't doing it's job. This is how I understand the whole process... I hope this helps, and also would love to hear insight on what other people think.

As far as my post originally on numbness... that hasn't been a symptom of mine to stick around or come and go, unless I was having an attack. So when it set in, I see that as a problem, not just an off day. My vision in my left eye has also slowly been getting blurrier. So with the slow onset of possible ON, and the numbness setting in over the past few days... I would think this to be another SPMS attack. I am still awaiting a return phone call from my neuro. I actually go to see the MS specialist in a week, so I look forward to hearing what they both have to say.

.:*A bend in the road is not the end of the road... unless you fail to make the turn!*:.
- love this quote

 
Old 03-07-2006, 11:30 AM   #10
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Re: Numbness question...

Curious, Very well put regarding meds/symptoms. My numbness is so "normal" for me these days that I can't remember how it was not to be numb. But, I still manage to live a fairly "normal" (I seem to use that word alot) and somewhat active life so I will continue to count my many blessings........Have a wonderful day! lucybelle

 
Old 03-07-2006, 02:55 PM   #11
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Re: Numbness question...

Curious, I think you described the process of CRAB medications really well. My understanding also is not that they will improve the symptoms, but rather that they can possibly reduce the number of relapses. After about a year on Copaxone my neurologist was very pleased with the reduction in size and even number of lesions. As I've mentioned in other posts this week, I was not smart at all these past 7 months by taking a "Copaxone holiday." Although no one can say for sure whether I would have fallen into this current relapse or not, there is a chance that stopping the Copaxone is a contributor to what is currently going on with me.

 
Old 03-07-2006, 06:43 PM   #12
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Re: Numbness question...

Life4Fun... My mother is a big pusher of the medication. My brother was diagnosed 10 years ago and hasn't had a relapse in about 8 years. Still to this day my mother checks up on him making sure he takes his Copaxone. But you are right... who are we to know for sure what would happen if we stopped taking the medication, and if whatever does happen is a cause of the change, or would have happened anyways? I wonder, but am in no position to take the chance.

 
Old 03-08-2006, 05:30 AM   #13
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Re: Numbness question...

Quote:
Originally Posted by curious11
Life4Fun... My mother is a big pusher of the medication. My brother was diagnosed 10 years ago and hasn't had a relapse in about 8 years. Still to this day my mother checks up on him making sure he takes his Copaxone. But you are right... who are we to know for sure what would happen if we stopped taking the medication, and if whatever does happen is a cause of the change, or would have happened anyways? I wonder, but am in no position to take the chance.

I figured that since I had no real problematic side effects with the Copaxone for the year and a half I was taking it that there is no reason not to take it now. Well, other than the fact that it costs TWICE as much in Argentina than it did in the US and my expatriate insurance only covers 80% rather than the small $40 copay each month. It's funny, most people that accept an international relocation offer from their employer take it because they think they will bank a lot of money while living offshore. This is my 3rd move and I can tell you flat out, even if you are very frugal, this is not usually a money-saving proposition. Live and learn.

 
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