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Upper Back Spasticity


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Old 04-16-2006, 11:35 AM   #1
TamCazz
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Upper Back Spasticity

Does anyone have problems with spasticity in their upper back and shoulders? I am newly diagnosed, and everything I've read talks primarily about the lower back and legs. I have a lesion in my C-Spine, and wonder if that might have something to do with it? It's miserable.....I take Baclofen. Any other ideas?
Tammy

 
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Old 04-16-2006, 04:00 PM   #2
duttin
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Re: Upper Back Spasticity

Tammy,

I have spacticity in multiple ares.I take baclofen,zanaflex and 325 mg of quinine.With the spasticity comes pain and I take vicodin.It has provided much releif

Toni

 
Old 04-18-2006, 03:01 PM   #3
kelpie
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Re: Upper Back Spasticity

Hi Tammy, I have muscle spasms in my neck, shoulders, chest, & upper back. I've just been diagnosed by one neurologist and am waiting for a 2nd opinion. However, I thought I'd mention that the MS specialist did say he MS can cause upper back spasticity. I'm currently taking Soma but am probably going to switch to Baclofen. I've heard there's IV Bacolfen that may be more effective than oral Baclofen? But I'm not sure about that - it seemed like something I read online, so unfortunately since I didn't bookmark it specifically, can't tell you more than that. Maybe the Baclofen manufacturers have some information about using Baclofen to treat spasticity in MS.

good luck, kelpie

 
Old 04-18-2006, 05:54 PM   #4
duttin
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Re: Upper Back Spasticity

There is a baclofen pumb,which is inserted under the skin,this is used when oral meds don't provide releif.

Drinking tonic water has helped some.It has quinine in it.

Toni

 
Old 04-19-2006, 05:38 AM   #5
agravy
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Re: Upper Back Spasticity

does anyone get pains that are well it's kinda hard to explain. It feels like someone is behind you squizing you really tight, but you can breath perfectly normal. It feels like a knife in your back and like severe indigestion in your chest or something. That's about the only way I know how to describe it. It's almost like spasms, but you can't rub them away. They generally last anywher from 10-20 min and then just stop completely like nothing was ever wrong. I've had my husband check my pulse & blood pressure just to see if I was having a heart attack or maybe a panic attack or something, but everthing was fine. Has anyone else ever had anything like this happen to them?
Alicia

 
Old 04-19-2006, 10:28 AM   #6
kelpie
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Re: Upper Back Spasticity

Quote:
Originally Posted by agravy
does anyone get pains that are well it's kinda hard to explain. It feels like someone is behind you squizing you really tight, but you can breath perfectly normal. It feels like a knife in your back and like severe indigestion in your chest or something. That's about the only way I know how to describe it. It's almost like spasms, but you can't rub them away. They generally last anywher from 10-20 min and then just stop completely like nothing was ever wrong. I've had my husband check my pulse & blood pressure just to see if I was having a heart attack or maybe a panic attack or something, but everthing was fine. Has anyone else ever had anything like this happen to them?
Alicia
Hi Alicia, I think I've had something similar if not exact. It's a weird "pressure" from my neck, sometimes the base of my skull, down to the middle of my shoulder blades and yes feels something like being squeezed from behind. And though I can breathe, it feels uncomfortable, as if there's a hand on my lungs inside or on my esophagus. Weird, huh? Other times it feels like something is squeezing and compressing all the muscles, ligaments, vertebrae in my back. Sometimes there's pain but most of the time it's a very uncomfortable "pressure" and it feels heavy. When it's worse it becomes more difficult to be on my feet, and my head just doesn't feel "with it", it's like my perceptions are off and my thinking becomes very sluggish. I'm not "dizzy" but very unstable on my feet, walk into walls, ataxia, that kind of thing. I'm sure this ataxia is linked to these weird muscle spasms - if that's what they are - but my doctors just kind of go "hmmmm...." when I tell them about this. In fact, I'm reluctant to mention moste of the time because I don't want to be called crazy!

Nice we can compare notes in this forum! It is helpful.

take care, kelpie

 
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