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lovetosmile48 12-27-2006 11:27 AM

Re: What Were First Symptons...
 
[QUOTE=lovetosmile48][/QUOTE]Hi Lisa I do know how you feel as I found out two months ago that I have Ms. My frist symptoms was a weired feeling from the bottom of my feet, like I was walking on water even when I knew that I was walking on the steps or the floor. Like the signal from my brain was not connecting to my feet. Then I always had bad migraines, then I started falling down, once I pitch I couldn't bring my self back. I went to my doctor and told him what I was feeling and he had me get an Mri and that is when they found the leagens in my brain. the neurologist put me on Rebif but as I don,t have any insurance, I am waiting to see if I can get some help. They termanated my employment as sooon as I show them the Doctor report, and so went the insurance 2 days after.Now I am getting itching from the bottom of my feet mostly at night how weird is that.I have gotten my kit for my Rebif just waiting for some form of payment for the meds, so reading the question and answer that are posted has help me out a lot. I know it is a big change for us but we got each other for suport ,and I pray FOR EACH AND EVERY ONE OF US TO BE STRONG AND DO THE BEST WE CAN WITH WHAT WE GOT, do not put your self in a box just learn to live with the changes the we now have, and except every day as a blessing .Allison. HAPPY NEW YEAR:angels:

tiff-cher 12-27-2006 11:33 AM

Re: What Were First Symptons...
 
fairynuf...
I have the same thing just on the left side......from the top of my head to the bottom of my left foot!

Yourtroubl 12-27-2006 11:42 AM

Re: What Were First Symptons...
 
Hey, I think you should do something about them terminating your job. I am an executive manager and I probably will tell my boss but I know enough about the Disabilities act to know that you have a good claim.

Yourtroubl 12-27-2006 11:45 AM

Re: What Were First Symptons...
 
Its funny how diverse these symptoms are. I have been battling severe hand pain, back pain, elbow and shoulder pain along with severe fatigue for 1 year. I gained 50 pounds taking steriods and they did help some. I have been diagnosed with possible fibromyalgia, bursitis, tendonitis, "I dont know what makes your hands hurt and numb"...Rheumy.... I started having bouts of bowel incontinence and had surgery for internal hemmorhoids and some repair (that hurt really bad for two days.

Then the incontinence came back in about one month. I have seen a neurologist and had a 2 hour MRI last night. He is testing me for MS.
He said it could be anything from poor sleep to MS.

I worry, I have always been active. I just want to have something that can be resolved. I never thought of MS this whole year.

lgr014 12-27-2006 07:05 PM

Re: What Were First Symptons...
 
Hi Tiff....yes I agree...knowing ANYTHING would be better than wondering! I'm waiting to get results from my mri. I called dr this morning after the mri place told me they sent results this past friday....then dr was closed on tuesday. Dr. said this morning they were looking for the results but "don't see them anywhere"......and they were having them faxed over!

I called them back later today and was told that the dr hasn't looked at them yet but that from what she (nurse) could tell, she thought they looked ok. But will call me after the dr looks.......needless to say, I haven't heard anything further.

Loves - I agree, you should be able to take action against being terminated!! That is horrible!!

Take care everyone!

Lisa

duttin 12-28-2006 06:24 PM

Re: What Were First Symptons...
 
Lisa,

Don't except the word of the nurse,brain MRI's are difficult to read .It took me 4 neuro's to finally get one to read the MRI's.The first 3 went by the radiologist report.What idiots.

lgr014 12-28-2006 07:09 PM

Re: What Were First Symptons...
 
Thanks, Nuffs....I didn't hear anything today....maybe tomorrow.......why does this have to be so difficult?!

tiff-cher 01-08-2007 07:31 AM

Re: What Were First Symptons...
 
Igr014
Well today is the day wish me luck!!!!!!
TC
P.S. maybe some answers!!!

MSNik 01-08-2007 08:12 AM

Re: What Were First Symptons...
 
Hi everyone. I dont mean to be the bad guy here, but can I ask why having a diagnosis is so important to many of you? I mean, you ever hear be careful what you wish for??
I was, I guess, according to all of you, one of the lucky ones. I had excellent doctors who had me diagnosed within 2 months. I also started Rebif within 2 months of my first excaberation. From there, it has all gone down hill...
Rebif and I do not get along...is it working? time will tell when I have my next MRI, which isnt till March...meanwhile, the injections stink- the side effects are horrible and after being on it 3 full months, it is not getting any easier to be sick with "flu like symtoms" 5 days a week! Having MS, is horrible, as far as how your family, and loved ones view you...my husband now expects me to wake up complaining every morning..instead of asking me how I feel, he asks me if he can get me tylenol every day! There are series of questions about do you tell people at work, etc....I cant even hold down a fulltime job anymore! I an going back to work parttime next week, and that is terrifying me.
I dont mean to be hardcore...but having a dx only means that you have an "explanation" for your aches/ pains/ issues. It also means injecting yourself from 1-7 times a week and dealing with all that goes with that...not to mention the never ending blood work which goes with the diagnosis...for those of us who were considering having kids...its an ending to that...at least if you want to be on the disease modifying drugs..you can of course, stop taking them and get pregnant, but they say you should be off of them at least 6 months...does anyone who puts their body thru the adjustment period really want to go off of it for 6 months and then start again? Does anyone who really has MS feel up to chasing an infant around the house??
Sometimes I wish I had never been diagnosed!
I dont mean to be cold, or unfeeling to all of you who have been thru billions of tests and zillions of opinions, but truly, what do you think that having a dx is really going to do for you, besides start you on meds? And, if starting on meds is soo important, and it might be- find a doctor who will prescribe them. They are out there...you just have to look...or take all your test results to an MS specialist for an evaluation...chances are, if they see what you feel, they will start you on CRABs right away..
I wish each and everyone of you health...and happiness.
Nikki

lgr014 01-08-2007 06:24 PM

Re: What Were First Symptons...
 
Hi Nikki,

I do understand your point of view (as much as I am able to right now) - but think back to before you were diagnosed.....my personal story is one of having strange symptoms off & on for years until I finally started feeling that it must be "normal" to have something hurting or not feeling good. When I would try to talk to my family about it, I was just dismissed and told that I'm a hypochondriac. It's a HORRIBLE feeling to know something is going on, then start 2nd guessing yourself and wonder "am I just crazy"??? or is this something real??? and, if it's something real, what is it??? and is it something serious and something that is potentially very dangerous or damaging to my body???

I'm so sorry that you are having a rough time with your meds, I [U]truly[/U] .am! Are there other types of meds your dr can prescribe? Would you really rather have no idea of what is going on with your body / mind??

Take care,

Lisa

Blessed4Life 01-09-2007 08:00 AM

Re: What Were First Symptons...
 
lgr014,

I read your post and realized that I have fallen into the mindset of just accepting that twitches, pain and numbness are a part of my normal existance and there is nothing to do about it. Just before logging on I thought about the neuro appointment I have in a couple of weeks. I have already decided that I will have yet another bad experience. I have already made up in my mind that despite the daily muscle spasms and jerks that come and go on a daily basis from my head (face) to my toes, that come time for my exam there will be no evidence of these experiences. I too have found myself just not even bothering to mention what I am experiencing to my family. Since it happens so often it is no longer a "big deal". And so that is everyone's opinion "big deal" you have twiching in your face and you cannot control it.

lgr014 01-09-2007 06:29 PM

Re: What Were First Symptons...
 
Blessed,

It's sad, isn't it?? To have family that you feel you can't talk to...my sister is a nurse , and I do love her to death, but I feel uncomfortable even talking to her about this - they have no idea of any of my symptoms lately or that I've had an mri - I'm sitting here tonight - and last night as well - trying to get an interpretation of my mri report - it is frustrating!

Also coughing my head off - dealing with bronchitis right now as well!

Anyway, I'm thankful to have this forum to communicate with you guys!

Take care!

Kim_blessed 01-14-2007 10:31 AM

Re: What Were First Symptons...
 
IGR,
I was just reading through old posts and I wondered if you ever were diagnosed?

Kim

tiredpoet 01-14-2007 12:28 PM

Re: What Were First Symptons...
 
I think what I would add here too is, at least in my experience, and it seems to be for others as well in the posts I've read, one of the hardest things to deal with is not knowing. Symptoms come and go, sometimes they stick around, some are worse than others, and it's hard to explain to other people what we're going through, particularly for those of us with cognitive issues. I know there are times when I literally cannot say what I mean, and I find it hard to get people to understand. I look perfectly healthy, how can anything be wrong with me? Certain symptoms like fatigue, muscle weakness, cognitive issues, etc, are things no one can understand if they haven't experienced them. Having a diagnosis, a name for this, something I can explain to others, is important. It would make me feel like people are not looking at me like I'm a hypochondriac or someone who is pretending to be sick. At least saying "I have MS" might get someone to go look it up and read about it and learn and realize what people with this disease go through.

Everyone here has wonderful advice and great things to contribute to this message board. It's really a good place to turn, for both people who have already been diagnosed, who can share their experiences, and for people who haven't who can voice their concerns and ask questions. I'm really grateful to everyone who contributes.

hkholwerda 01-14-2007 12:52 PM

Re: What Were First Symptons...
 
Just a quick note for everyone, diagnosed or not.....I am not a overly religous person, but I do believe that being as positive as possible helps us through the 'process'. I am not saying it is easy, but I highly recommend people have a positive attitude :D I always remind myself that MS will not kill us, I actually think it makes us all stronger (obviously not by choice).
Just food for thought....
Holly


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