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    Old 07-25-2007, 05:07 AM   #1
    CJRT's Avatar
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    Shaking and swaying

    My shaking and swaying have gotten a LOT worse this week. I am really having a hard time doing anything because my arms and hands feel so weak and I am having trouble holding on to things without dropping them.

    Everything is shaking now, head, hands, arms, legs, feet. Today has been the worst so far. I really don't know what to do. I don't see the neuro again until Sept. 12. I don't think I can go that long with what's going on with me now.

    I'm also having more cognitive difficulties and speech difficulties this week as well.

    And with the shaking comes a feeling in my arms that my muscles are about ready to pop out of my skin. I just feel like they are going to start firing off without any control from me. It's the weirdest sensation and I feel like I have to clutch my arms tightly together to keep them from just jerking away.

    I'm having so much shaking and swaying that I can't even drive at the moment. Having a hard time typing this. Hubby says call the neuro, but they can't get me in and have me on the cancellation list. Ha, that's a joke. I've heard that one before and couldn't get in for 2 months.

    I really want this neuro to see my shaking like this. He should have my MRI results back by now as well.

    I have to have some relief from this. It's really starting to bother me and I'm so frustrated at the moment that I can't do anything for myself or anyone else. I can't even read as my hands and head shake so much that I can't hold them steady enough to hold a book. Reading usually is my haven when I don't feel well.

    And this morning I feel really sick to my stomach. Like it wouldn't take much for me to throw up.

    I have tried to stay postive and I think that most days I do maintain a fairly positive attitude. That is until the last few days where things have progressed to much, much worse.

    I really don't think I'm stressed about what I might or might not have. But I do know that the shaking gets old and makes me very frustrated with myself when I can't control it and do simple tasks.

    Any suggestions on what I can do to help the shaking? On how to get in to see the neuro while I'm so visibly having symptoms? I would really like him to SEE this and see how bad its gotten.

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    Old 07-25-2007, 05:21 AM   #2
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    Re: Shaking and swaying

    Hi CJ
    I agree with your Hubby. Give your Neuro a call ASAP. Where you have already seen him its not like they have to make you an appointment as a new patient. I am sure this is something he would want to be notified of. Most Neuros have nurses that handle the calls they get from their patients, ask to talk to his or even possibly the Dr himself can give you a call back when he has a break in between patients. If you wait until your appointment and then go in and tell him how much trouble you are having he will most definitely ask you why you didn't call. It won't hurt to call, this may be a relapse that you need medication for now.

    Are you dialing yet??
    Take care and let us know how your doing.

    PS; If for some strange reason you can't get through to the MD, don't hesitate to go to the ER. They can get in touch with your Neuro and make sure he knows the severity of your problem.

    Last edited by KTMorra; 07-25-2007 at 05:24 AM. Reason: Forgot to add something

    Old 07-25-2007, 07:46 AM   #3
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    Re: Shaking and swaying

    I had to go get an injection at my reg. doctor's office (depo-prevara) and the nurse took one look at me and said she wanted the dr. to step in and have a look. Well the dr., my GP basically said that now that she's referred me to the neuro, there's nothing she can or will do. She suggested it was anxiety and I told her I had just seen my psychiatrist who says its NOT anxiety.
    So then she suggested I go into my neuro's office instead of calling. As he's just around the corner, I did that. He's away this week. So no help from anyone. My psychaitrist thinks that mentally I'm doing fine, my GP thinks its anxiety and my neuro is out of town. So now I don't know WHAT to do.

    I hate to go to the ER just for shaking because when I went in for the stomach pain that turned out to be the hernia, I mentioned the problems I was having that had a neurological basis and they kind of told me that they didn't handle that, I needed to see the neurologist.

    I have a good neuro, but I can't get in to see him. And now everyone else is trying to lay it off on other problems and I feel like a pinball being batted around to other dr. who tell me its NOT their problem.

    This is just SO frustrating. I am ready to just scream today out of total frustration. It seems like no one's really concerned about this but me.

    And now I DO feel stressed after dealing with someone who says its "anxiety" when the specialist for that says its NOT.

    This is just one of those days (weeks) that I could have lived without. I just feel like crawling in bed and staying there until Sept. 12 as no one seems to care how I feel or how I don't function well when I shake so badly. Even my GP said: MS does NOT cause the shakes. I contradicted her and said that a lot of people have tremors, so she doesn't even know that much about it.

    Well thanks for letting me vent my frustration. I honestly think that frustration is my biggest problem. Don't these doctors realize what they do to us to keep shoving us off on other doctors and saying that they can't or won't deal with our problems. And waiting months for anxwers or treatment I think makes it all worse.

    I was hoping that maybe she'd at least document the degree of shakiness so that I could at least show that to the neuro, but now that she's so convinced its anxiety, I don't want THAT going to the neuro.

    I just really feel stuck between a rock and hard place right now. Can't get anyone to do anything and can't get in to see the ONE doctor that's supposed to be taking care of this.

    OK, enough whining. Going to go lay down and listen to my ipod. That always relaxes me.

    Old 07-25-2007, 11:49 AM   #4
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    Re: Shaking and swaying

    Doesn't your neuro have someone on call in their absence? Dr.'s usually do. It sounds to me like you should be seen now, not next week.

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