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    Old 07-27-2007, 03:14 PM   #1
    Skinnyjess
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    Back from the optic nerve Dr

    Hi there, Im back from my App and he said my Optic nerves are healthy and not inflamed The only thing thing they found was that one of my pupils dilates abnormaly (not like the other?) I dont have any idea what this could mean?
    He said I didnt have MS in my eyes. That only 50% of people who have MS have it in there eyes so I need to get an MRI done as soon as I can.
    So now mon. I have to contact my Dr and tell her to order me an MRI. I cant get in to see an neuro till sept 27th. So Im hping that my general Dr will order the MRI. So I dont have to wait so long.
    I asked him why my vision is so blurry? he didnt have an answer he said I sould have my blood sugar checked out????????
    Ahhhhhhhh all this is so exsusting to me.

     
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    Old 07-27-2007, 03:51 PM   #2
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    Re: Back from the optic nerve Dr

    Hi, Skinny. Sorry, but your post makes no sense to me.

    First, you do not "get MS" in your eyes but you may get visual symptoms or a condition from MS. There are MANY people who never get Optic Neuritis or whose vision is not affected but based on what I've read, I personally feel that statistic is not accurate at all. That's great that the doctor said that your optic nerve isn't inflamed but now you've got me wondering about the doctor! What kind of doctor did you go to? An ophthalmologist or a neuro-ophthalmologist?

    The pupils dilating correctly (or not) has to do with the amount of light is coming into your eye. I'm sure this can be for many other reasons than Optic Neuritis but it does happen in that condition. Checking your blood sugar is probably because they want to rule out diabetes, which can also cause vision problems.

    How did this begin? Do you have blurriness in both eyes? Did you experience any pain, with or without movement? Can you see color differently in each eye? (Find something brightly colored and look at it one eye at a time -- of course, if both eyes are affected this won't be a clue!) IS it in both eyes -- or one? What tests did the doctor do?

    Last edited by Bearygood; 07-27-2007 at 03:52 PM.

     
    Old 07-27-2007, 04:33 PM   #3
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    Re: Back from the optic nerve Dr

    Actually, I sort of understand where you are coming from on this. I have had optical neuritis a couple of times, but I do have MS.....several other times, including RIGHT NOW, Ive had pain, blurriness, and random headaches which I swear are coming from my eyes, and yet as many times that I have seen the neuro-opthamologist, every other time I go I am told it is NOT optical Neuritis, and my optic nerve appears fine.....with that said, I have also been told EVERY SINGLE time that one of my pupils is bigger than the other (its not noticable to the naked eye, but they detmine this while they are dialated and with the right equiptment). I have had been checked for diabetes, and other disorders, everything is fine...it appears that I simply have one pupil allowing more light in than the other and its not related.

    Now, Bearygood is right, the statistics seem wrong here..and she is also right- you DO NOT get MS in your eyes, however a good percentage of people do experince optical neuritis and other eye disorders due to MS...optic neuritis is simply inflamation of the optic nerve...and MS causes inflamation of all sorts of nerves! The questions which Bearygood asked, at the end of her post are really very good questions. And, they will also help to detmine what exactly is going on.....did you see an opthamologist?? Seeing an optomotrist isnt good enough...seeing a neuro-opthamologist would be best! An opthamologist is usually qualified to make the judgement if a neuro-opth is required, but only if they are well trained, know what to look for, and have the right equiptment to do all the tests..

    I agree that you should get the MRI done sooner than you go for the Neuro appt, however, MAKE SURE you take both the films and the report to the Neuro when you go. There should be no reason why you cant get a copy of the films from the place which performs the MRI, and a copy of the report from the doctor who orders the tests....

    It is an exhausting thing to go thru, I feel for you..sometimes it feels like one doctor after another and one test after another. I know that feeling all too well...but eventually, it will slow down and you will start knowing when it is NECESSARY to seek medical attention and when this is just "another one of those things" which will pass...like me for example..right now, im riding out the eye pain, knowing that I have a specialist appt in October, and right now, I cant bring myself to go see him sooner...I have a strong feeling that this is a heat related episode and by the end of the weekend Ill probably feel better..if not, Ill re-evaluate then. But, for you, while you have this much pain and this much concern: follow up...you dont want to mess with your eyes. And, until you know for sure what yu are dealing with, you should continue to seek answers and treatment..
    good luck, feel better..
    Nikki

     
    Old 07-28-2007, 08:53 AM   #4
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    Re: Back from the optic nerve Dr

    He was an Ophthalmologist. He told my husband and I to get an MRI of my brain asap. Im not sure why he said 50%. ???? I think he was telling us that just because my optic nerve isnt inflamed dont mean I dont have MS he says I need to call and bug that neuro Dr till I get in to see him.
    I will be calling my General Dr tomorrow to ask her to order me an MRI for MS.
    My eyes get really blurry most of the time its one eye at a time. I also get pain that go's from my eyes to my brain. Sometimes dull sometimes sharp one eye is allot blurryer then the other. Colors seem to go into the shade when i look at them with just my rt eye. They look a tad brighter when I look at them with just my Lt eye. What does that mean?
    Yes I dont understand why Dr's dont just look for things. It seems they treat you like you are a bother to them. I wish I could find a better Dr. The best neuro in town has a wait list till sept or oct. Im on the list but in the mean time cant my general Dr order the MRI? I dont know why she hasnt done this as of yet. I hope when I call her on Mon she dosnt give me to much trouble about ordering the MRI test.

     
    Old 07-28-2007, 10:00 AM   #5
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    Re: Back from the optic nerve Dr

    Great, Jess. I don't want you to think I was being hard on you -- the reasons for my questions was to try to help you (as someone whose Optic Neuritis led to their dx) and also, I think it is VERY helpful to be educated. While doctors don't like you to dx yourself or be a know-it-all, I've found that speaking to them intelligently and using the right lingo helps them speak intelligently back to you.

    My journey started with an appointment with an ophthalmologist. I had some pain in my left eye which I ignored until it went blurry. It IS possible to have Optic Neuritis without pain but most commonly, there is some pain associated with it, especially when you move the eye from side to side, sometimes up and down. She gave me a visual field test, regular eyesight tests and also did a kind of "layman's" color test (like the one I told you to do). I thought I would be walking out with eyedrops and much to my surprise, I left with a prescription to see a neuro-ophthalmologist

    The neuro-ophthalmologist repeated the visual field test and looked at the optic nerve, which was thankfully in good shape (meaning that the color of the nerve was good, which means that although something was going on, prognosis for recovery was optimistic. He also administered a more advanced color test -- and when I say more "advanced", it's really just a little book with "x"s and "o"s on a background that's harder to identify the characters if color is impaired. (Sometimes it's not "x"s and "o"s but you get the idea.) He also repeated the regular eye tests and even though my vision was 20/20 (yes, this is possible even with blurry vision) he gave me the Optic Neuritis dx. While there are other things that can cause ON there are not that many and it is very closely associated with MS. I left that appointment with a prescription for a brain MRI. The MRI showed some lesions and he referred me to an MS Specialist. Slightly longer story but I do want to add that I actually wound up seeing a DIFFERENT neuro-ophthalmologist before I saw the MS Specialist and even though it was pretty clear I was heading toward an MS dx, she still wanted to see what was happening BEHIND the eye because of the pain so she ordered an MRI of the orbits. She told me that if she had been the first doctor I saw, she would have included that picture in the brain MRI. Although the brain MRI I had done DID show lesions, none "enhanced" (or "lit up"), which meant that they'd been there for a while but were NOT "active". The orbital MRI DID show an active lesion.

    Again, ON can present differently but my case was pretty classic or at least close to it. Started with pain which gave way to a little blurriness and color impairment. By the way, until I had the visual field test I didn't even know how my vision was impaired! You dont even know what you're not seeing because it's in the periphery.

    If what you're experiencing sounds anything like what I describe above and your ophthalmologist did not give you a visual field test or test for color impairment you need another doctor. If you have pain behind your eye there's definitely a chance that your optic nerve IS inflamed but that for whatever reason, your doc was not capable of seeing it.

    Let me know and I'll give you more info. -- don't want to inundate you all at once but I hope this was helpful.

     
    Old 07-28-2007, 04:04 PM   #6
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    Re: Back from the optic nerve Dr

    Yes you are very helpful! Thank you so much.
    I so enjoy hearing from people who are or were in the same boat that Im in right now.
    You know after he told me yesterday that I didnt have it in my eyes and he couldnt answer why I have the pain and blurryness, I wondered. And then he said for me to get into a Neuro Dr asap and get an MRI.
    I have done some research today and I read that with ON sometimes inlamation isnt present but the sympyoms are. Also one pupil will dilate at a diffrent rate. I still keep wondering why he didnt say anything more about that to me.
    What kind of head pain did you have? was it weird ? today I havent had any tingling ... but the day isnt over yet. I have had one toe tingle for 2 days it was the funniest feeling, and the otherday the top of my hand and pinky and ring finger were doing it. I have also had the top of my foot do it too on one foot? Its so strange. I feel like the nerves and mucles in my body have gone haywire.
    I enjoy hearing your story and would love to hear more about your symptoms that you had.

     
    Old 07-28-2007, 04:23 PM   #7
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    Re: Back from the optic nerve Dr

    Jess, I'm not sure where you read that. I have never see where ON is not DEFINED as inflammation of the optic nerve. That's what causes the visual impairment. However, it may not be visible to an eye doctor without having a baseline picture. (My second neuro-ophthalmologist had special equipment in her office to take a picture where the optic nerve was visible and repeated this on subsequent visits to see if the swelling was going down.) There can also be varying degrees -- some people have said they have had "mild" ON. Yes, the affected pupil will not dilate correctly because enough light is not coming in -- even my PCP could see that with his pen light.)

    Please let me know if your eye doctor did the color and visual field tests I mentioned.

    I did not have a headache at all, just achey pain that got sharper with movement. At the time of my ON I did have a lot of tingling and my hand was freezing up. It's not as bad as it was and in Relapsing Remitting MS (RRMS) it is not unusual for symptoms to come and go or at least lessen in severity. (Do note that symptoms and degrees can vary greatly from person to person.) There is no doubt I was having an attack at the time of my ON, what is also known in MS as an "exacerbation", often also referred to as a "flare". I've had some other symptoms as well that are obviously MS related but nothing as badly as that time and I am STILL getting better from my ON. Vision is back completely and color is just about fully back but not quite. (It's usually the last thing to go and last thing to come back.) ON is often treated with steroids, regardless of whether or not you have MS. I'll get to that and what happened with me in the next chapter, okay?

    Last edited by Bearygood; 07-28-2007 at 04:30 PM.

     
    Old 07-29-2007, 09:28 AM   #8
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    Re: Back from the optic nerve Dr

    No those tests were not done. He just simply looked into my eyes with a lens and a very bright light, He has me look to the sides and up and down as he looked. He was telling the nurse that the Optic nerve looked healthy and pink and dosnt see that it is inflamed. I was very happy to hear that! Then I asked him wait ... So what is making my eyes see so blurry and making my eyes have pain? He said he didnt know and for me to have my blood sugar checked? well I was back to feeling helpless again.
    I hope I get somewhere tomorrow while talking with my Genral Dr.
    I have hand tremor really bad in both hands and that is what started this whole thing... The hand tremor and the eye sight going blurry with pain. Oh yes and being so tired all the time too. well is been 4 weeks now and 4 dr's latter and still no answers. Just allot of Co-pay $ down the drain and allot of pokeing and prading for no reason.
    Lastnight my bottom lip stated burning really bad like it had a really bad sunburn. I wasnt eatting nor drinking anything it lasted about 30 min and went away. Today the left side of my face is having spasms they dont hurt just feel weird.
    Oh who knows? ... more phone calls and waiting I guess.

     
    Old 07-29-2007, 09:44 AM   #9
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    Re: Back from the optic nerve Dr

    Jess, please mention to your PCP that the eye doctor did NO tests other than to look into your eye, even though you're experiencing pain, color loss and blurriness. I find this ridiculous -- and scary! I don't think there is ANY way they could have determined whether you had ON or not by what you're describing. I highly recommend that you try to get a referral to a neuro-ophthalmologist right away. These are very, very simple tests and I have NEVER heard of them not being done to confirm or rule out an ON dx!!! They thought for sure that's what I had and they STILL did them (and repeated them several times throughout my recovery period to make sure I was progressing).

    Last edited by Bearygood; 07-29-2007 at 09:49 AM.

     
    Old 07-29-2007, 06:07 PM   #10
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    Re: Back from the optic nerve Dr

    [SIZE="5"]Hi Jess
    Sorry to join the discussion so late but I think I might be able to shed some light on what your Dr found with your eye exam. (I'm writing this is a large font because if your anything like me this small print is kinda hard to read)
    What your experiencing sounds very familiar to what has been happening to me for the last 10 yrs. I was diagnosed with an Adies pupil. One eye dialates way more than the other one, and they are both sluggish to react to light. It is very noticeable when I have a headache especially. It is supposedly a rare condition.
    My Neuro actually diagnosed it while he was doing a routine Neuro check where they shine the light in your eye, checking to see how your pupils constrict when exposed to light. In the middle of the exam, my left eye dilated for no apparent reason. It kind of freaked him out a bit and he called in the other 2 Neuro's in his practice to come in to see this for themselves. I felt like I was a freak in a circus or something. This has nothing to do with ON from what they told me. I have had 3 bouts of ON so far. In hind sight however, I am wondering if all this Neuro stuff is connected some how. I think I'm going to ask my Neuro about it tomorrow. I have a noon appointment for a routine checkup. This could be interesting.
    Check the Internet, or ask your Neuro about Adies Pupil and see what you think. Good luck and keep us posted
    Take Care
    KT

    Last edited by KTMorra; 07-29-2007 at 06:08 PM. Reason: changing font size

     
    Old 07-29-2007, 06:41 PM   #11
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    Re: Back from the optic nerve Dr

    KT, Jess doesn't have a neuro yet and at least to me, it sounds like she did not get a thorough eye exam.

    Did you have color loss, blurriness and ON type pain when you had Adies Pupil?

     
    Old 07-30-2007, 03:14 AM   #12
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    Re: Back from the optic nerve Dr

    Hi Beary

    Thanks for the heads up.
    Hope Jess reads this and does follow up with at least a neurologist, and possibly a Neuro ophthalmologist. Sooo many specialties and sub-specialties out there its amazing. When I had my episodes of ON they appear to be getting progressively worse with each time. The last one was in February of this year and I went from 20/40 vision in my left eye to legally blind in about 5 days. I haven't regained much of the vision in that eye and have very dull color vision in both. I had some pain with my first and 2nd bouts, I would call it more of an achy feeling like I did too much reading. But mostly double and blurred vision. The last one was very painful and has apparently left permanent damage.
    As far as the Adies pupil it only hurts when I go out in fairly bright sunlight. Most of the time I don't even notice it unless someone points it out to me. My husband can tell immediately if I am getting a bad headache or migraine, thats when it acts up the most. One thing I remembered from my initial diagnosis 10 yrs ago was to make sure if I ever had surgery to mention it to the anesthesiologist. I guess it mimics a sign of intra-cranial pressure and neurological deficits that they look for during and after surgery.

    Take care and have a great day
    KT

     
    Old 07-30-2007, 08:35 PM   #13
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    Re: Back from the optic nerve Dr

    Well I called my Genral Dr today and she isnt there, So maybe tomorrow I will get to talk with her. I called another neuro office here in town and she can get me in to a couple weeks insted of having to wait till oct. So If My genral Dr wont order the MRI then maybe I can get in to see this other nero I jusy have to have my genral Dr call and make the app.
    All this seems to be such a big pain. I looked and we dont have any Neuro eye drs here where I live. Maybe in kansas city its 3 hrs away or so. But would be well worth the drive.
    Ill keep you posted on what my Dr has to say tomorrow.

     
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